The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Archives for June 2017

The Challenges of Pain and Delirium as they relate to Dementia – aka Guess who has a UTI?

June 29, 2017

While it complicated her care, Mom’s inability to remember the pain or other details had its advantages: she loved taking guilt-free naps with Cinnamon and regularly expressed gratitude for her good health when I tucked her in at night.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go #ENDALZ, Alzheimer's Disease, Caregiving, Dehydration, Delerium, Health first, Infection, Pain, UTI terry@thejoyofcaring.com 6 Comments

Summer Solstice 2017, the longest day and grief

June 24, 2017

After a busy spring, I was exhausted. It helped that, when our youngest played Herb Alpert and the Tijuana Brass on his phone, Mom danced in her chair, from head to toe.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, Alzheimer's Disease, Caregiver burden, Caregiving, Gratitude, Grief, Losing a loved one terry@thejoyofcaring.com 4 Comments

Looking for Dad

June 18, 2017

It’d been fifteen years since Dad died, and I looked for him every day, grateful for all the ways he was still right here, with me.

—excerpt from Living Is for Living: A Caregiver’s Story

Making peace #ENDALZ, Alzheimer's Disease, Caregiving, Gratitude, Life after death, Losing a loved one terry@thejoyofcaring.com 2 Comments

Under One Roof

June 16, 2017

Under one roof – a tremendous relief – our whole family, even when it’s brief.

Truly, I’m glad they’re livin’ their dreams – still, it’s not always as great as it seems.

Keepin’ it simple, I miss ’em when they’re away – not said to hold ’em back, just to enjoy this day.

There’s nuthin’ in the world like our home when it’s full – the laughter, the fun, even the bull.

A rambunctious crowd – I’d have it no other way – this is our family, each with our say.

Monday will come, as will the Fall, we’ll rearrange, still we’ll always be all.

Under one roof – a tremendous relief – our whole family, even when it’s brief.

—from Living Is for Living: A Caregiver’s Story

Having fun #ENDALZ, Gratitude, Marriage, Millennials, One day at a time, Parenting terry@thejoyofcaring.com Leave a Comment

My Sisters (in-law)

June 13, 2017

My sisters (in-law) may not have been part of my start, still, I was grateful they were part of my present.  Although we were from different gardens, I loved our awesome bouquet!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help Alzheimer's Disease, Caregiver burden, Eldercare, Friendship, Fun, Gratitude, Marriage, Pivoting, Reframing terry@thejoyofcaring.com Leave a Comment

a thousand words

June 12, 2017

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Having fun #ENDALZ, Caregiving, Gratitude, Millennials, Parenting terry@thejoyofcaring.com 6 Comments

Time to Be Three

June 8, 2017

Our ten-year-old, done with elementary school and on his way to middle school, sat at the kitchen counter one early summer morning,

“You know what I don’t get?” he said to me.

“They start preparing us to be big when we’re only three.

We go to pre-school to get ready for kindergarten,

To kindergarten to get ready for first grade,

To first grade to get ready for second,

Second to get ready for third,

Third to get ready for fourth,

Fourth to ready for fifth,

And fifth for sixth.

Now there’s sixth for seventh,

Seventh for eighth,

 then eighth for ninth,

ninth for high school,

high school for college, and

college for your job.”

Our ten-year-old son, with the big blue eyes,

looked at me with clarity and asked,

“When does a three-year-old get to be three?”

—from Living Is for Living: A Caregiver’s Story

Having fun Gratitude, In the Moment, Millennials, Parenting terry@thejoyofcaring.com 2 Comments

Head’s Up re: Infection and Alzheimer’s Disease

June 5, 2017

Even in the absence of pain or other symptoms, any change is reason to seek help. We were extremely fortunate that after all Mom had been through, her interactivity had returned. As she slogged through another round of pre-CT scan barium solution, I handed her a magazine; she took a quick look and threw it down on the table: “Housekeeping!” she proclaimed, “who wants to read a magazine about that!”

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info #ENDALZ, Alzheimer's Disease, Dementia, Diverticulitis, Eldercare, Health concerns, Hospitalization, Infection, Lyme Disease terry@thejoyofcaring.com 2 Comments

Step Six Readiness

June 1, 2017

AA’s Step Six: “Were entirely ready to have our Higher Power remove all these defects of character.” These days, Dad was my ever-present ally, his wisdom helping me care for Mom each step of the way. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Step 6, The Twelve Steps of AA terry@thejoyofcaring.com 4 Comments

I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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