The Joy of Caring

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The Challenges of Pain and Delirium as they relate to Dementia – aka Guess who has a UTI?

June 29, 2017

While it complicated her care, Mom’s inability to remember the pain or other details had its advantages: she loved taking guilt-free naps with Cinnamon and regularly expressed gratitude for her good health when I tucked her in at night.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go #ENDALZ, Alzheimer's Disease, Caregiving, Dehydration, Delerium, Health first, Infection, Pain, UTI terry@thejoyofcaring.com 6 Comments

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Comments

  1. Andrea Cayer says

    June 29, 2017 at 3:56 pm

    Terry, your entries move me. It is admirable that you are using this format not only to share your experiences as a caregiver, but to educate as well. My heart is full for you, your mom, and your family. I was the caregiver for one of my five brothers recently. He lived with me for the last seven months of his life as cancer raged his body and ultimately played a role in his death in January as he experienced a health crisis that he could not fight. Through those months, I experienced so many of the emotions, frustrations and worries that you write about. May you continue on this challenging journey with loved ones at your side and sleep well knowing the indescribable gifts you are giving to your mother and ultimately to yourself xoxo

    Reply
    • terry@thejoyofcaring.com says

      July 1, 2021 at 10:40 am

      Andrea, thank you, always, for your insight and support.

      Reply
  2. Karin Severson says

    June 30, 2017 at 3:36 pm

    Terry… you are doing an amazing job with the care of your Mother!! Most people can’t or won’t take these responsibilities on. But even with my Mom in a care facility… I understand your caretaking responsibilities… just on a different level. UTI’s run a muck in the nursing home… and often present as a change in mood or me wondering if Mom has had a small stroke or something. Even with aides there to monitor… it is often I who suggests a Dr visit or some testing. I guess what I am trying to say is I have great admiration for what you do! I can’t imagine how exhausted you feel. Emotional exhaustion is often way more tiring then physical exhaustion. The strength you are showing your children… and the love your Mother feels that she can’t express… will all be worth it in the end. I think you are amazing!! Thanks for sharing your personal life and experiences so we may all benefit. ❤️

    Reply
    • terry@thejoyofcaring.com says

      July 1, 2021 at 10:44 am

      Thank you Karin – I love all the beautiful photos you share of your beautiful Mom and daughters – I’m glad to share this caregiving role with you!

      Reply
  3. Ann Noble says

    June 30, 2017 at 8:27 pm

    That is a wonderful description of your situation. Love reading the blog.

    Reply
    • terry@thejoyofcaring.com says

      July 1, 2021 at 10:44 am

      💜

      Reply

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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