The Joy of Caring

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On the Edge, aka re-finding balance in caring for a loved one with Alzheimer’s disease

August 29, 2019

Stepping away gave me time to feel Alzheimer’s vastness – like standing beside the Grand Canyon, exhausted, I felt overwhelmed, like I could fall right in. The following summer, during valuable caregiving hours, my spouse and I visited local memory and nursing care facilities. Our options better understood, I could get back to taking it a day at a time and feeling grateful for the moments we still had with Mom in our home. 

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Gathering Info, Learning as we go, Learning from mistakes, Letting go, Looking forward, Maintaining balance, Making peace, Practicing faith, Taking care of self A day at a time, Caregiver burden, Eldercare, Gratitude, Parenting, Step 3 terry@thejoyofcaring.com 10 Comments

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Comments

  1. Karin severson says

    August 29, 2019 at 1:30 pm

    Always thinking of you all… sending love and strength. Wise words from your youngest… we always need to take care of ourselves too. You are amazing!!

    Reply
    • terry@thejoyofcaring.com says

      July 1, 2021 at 8:11 pm

      Ditto 💕

      Reply
  2. Susie Miller says

    August 29, 2019 at 2:23 pm

    Terri-I always love reading your blog. My Dad had Lewy Body dementia when he died in 2017 and my Mom has other issues that often bring me to the same edge you describe here. It IS so hard! It’s a very insular journey at times so thanks for writing about it. You are not alone…out here in the wide world it’s good to know other people share our same struggles and I definitely do on my end. Have you ever read “The Guest House” by Rumi? This being human is not for the faint hearted!😊🙏🏽💚

    Reply
    • terry@thejoyofcaring.com says

      July 1, 2021 at 8:12 pm

      Thanks Susie, I’ll have to look for that book.

      Reply
  3. Darlene Junker says

    August 29, 2019 at 3:41 pm

    Love you and love hearing about the realities of your journey. You are a wonderful daughter…wherever your mom is. 💟

    Reply
    • terry@thejoyofcaring.com says

      July 1, 2021 at 8:12 pm

      💜

      Reply
  4. Robin says

    August 29, 2019 at 5:14 pm

    Your pen is a light into your life of living with your mother who has Alzheimer’s. My heart is beside yours and I hope you feel its closeness.

    Reply
    • terry@thejoyofcaring.com says

      July 1, 2021 at 8:13 pm

      I do, Robin 💕

      Reply
  5. Megan says

    August 30, 2019 at 12:45 am

    Oh Terry, you write the way you live, fully and without abandon. I sat on my parents’ front porch today and read your post. The bright sun and your raw and beautiful words had ME blinking in the summer sun and holding back the tears. Your honesty is such an open door allowing others to see the struggles and to know they are not alone. Well done friend. Reaching across the space between us with love and support for all you do. ❤️

    Reply
    • terry@thejoyofcaring.com says

      July 1, 2021 at 8:13 pm

      A big hug to your parents Meg.

      Reply

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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