The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Father’s Day in Albuquerque

June 22, 2019

Me and Dad, circa 1974
Me and Dad, circa 1974

That Father’s Day, sixteen years since Dad died, I heard him heckle when I missed foul shots, laugh when I threw elbows, and cheer when I backed someone down. When I worried about missed opportunities, I recalled his “don’t worry about what’s over and done.” And, when I noticed the 85+-year-old men playing on a neighboring court, I imagined Dad and his killer hook shot in their midst. Too bad I didn’t get that gene!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Laughing out loud, Learning from mistakes, Taking care of self Alzheimer's Disease, Caregiving, Gratitude, Health first, Infinity, Keep it simple, Life after death, Losing a loved one, Marriage, Millennials, One day at a time, Parenting terry@thejoyofcaring.com 8 Comments

RIP little bunny – processing grief in Alzheimer’s and elsewhere, and finding meaning to help us through

May 4, 2019

When I discovered our eleven-year-old bunny rabbit sprawled out in her cage, I was hit with disbelief. Even when death is expected, peaceful, and quick, it can be hard to accept. I’m grateful for my spouse and neighbor Mandy who helped me through.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Laughing out loud, Learning as we go, Letting go, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, Caregiving, Friendship, Gratitude, In the Moment, Keep it simple, Life after death, Losing a loved one, Marriage, One day at a time terry@thejoyofcaring.com 6 Comments

High Fives All Around – We’ve Got This

April 12, 2019

In support of a member facing a cancer diagnosis, her team had handed out bracelets with the words No One FIGHTS Alone! Running errands and thinking of this fierce, kind and resilient athlete, I pulled into Dunkin Donuts for an afternoon pick-up. When the guy in front of me bought my cup of coffee, it was the high five I needed, reminding me to reach out to others too.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Having fun, Helping others, Learning as we go, Maintaining balance, Practicing faith, Taking care of self Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, One day at a time, Parenting, Step 12 terry@thejoyofcaring.com 6 Comments

“Excuse Me”- Saving Face and Alzheimer’s disease

December 1, 2018

Helping caregiver Jess shop for her wedding dress

I don’t believe Mom saw Alzheimer’s coming; I do believe, though, that it would have eased her mind to know that she continued to make new friends, bringing joy, humor and grace, and inspiring the rest of us to do the same.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Letting go, Making peace Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage terry@thejoyofcaring.com 10 Comments

Simple Kindness

October 24, 2018

When in doubt

In a world with atrocity, apathy, anxiety, distraction and just plain busy-ness, I was touched by all the simple kindnesses that helped me as I helped Mom. Thanks to those simple, and often unexpected, kindnesses, the pieces of our life in Maine were starting to fall into place.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Learning as we go, Maintaining balance, Making peace, Taking care of self Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, One day at a time, Parenting terry@thejoyofcaring.com 4 Comments

“Hot Tamale” and the Blessing of Awesome Caregivers

November 14, 2017

I met Hannah when I coached her on a fast-pitch softball team. I never anticipated that it would be Hannah, ten years later, who’d help us care for Mom. No surprise, Hannah was a great teammate!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Practicing faith #ENDALZ, Alzheimer's Disease, Caregiver burden, Caregiving, Eldercare, Friendship, Gratitude, Health first, Millennials, Step 11 terry@thejoyofcaring.com Leave a Comment

Finding a Samantha in Maine, during Hospitalization #3 (this one for a DVT)

October 19, 2017

Finding me awake and in tears, the nighttime nurse replied, “Your mom is 85. She has a complicated health history, with Alzheimer’s, diverticulitis, kidney disease, infection, limited activity level and  dehydration. This clot is so big, it didn’t just happen in travel; this condition’s been developing for a while. This is not on you.” Thanks to her, I went from feeling alone to feeling the love.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help #ENDALZ, Alzheimer's Disease, Caregiver burden, Caregiving, Deep Vein Thrombosis, Eldercare, Friendship, Gratitude, Health first, Millennials terry@thejoyofcaring.com 8 Comments

Still Smiling : )

August 31, 2017

just smile
Drawn by Mom, April 14, 1973

Thanks to Mom, I’d learned to smile, even when it isn’t easy.  Thanks to Mom, I was still smiling now.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Letting go #ENDALZ, Alzheimer's Disease, Caregiving, College-age kids, Empty Nest, Gratitude, Millennials, Parenting, Working outside the home terry@thejoyofcaring.com 4 Comments

Brotherly Love on Mom’s Birthday

July 19, 2017

Of all the things I could give Mom for her birthday, the very best would be the promise to always try to work things out with my bros. Mom cherished each one of us, in different ways, and having us all in her life, in the ways that we could be, not only made my role as primary caregiver doable, it also helped to make her life, at 85 and with dementia, complete.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help Alzheimer's Disease, Caregiving, Dementia, Eldercare, Gratitude, Siblings, Teamwork terry@thejoyofcaring.com 2 Comments

My Sisters (in-law)

June 13, 2017

My sisters (in-law) may not have been part of my start, still, I was grateful they were part of my present.  Although we were from different gardens, I loved our awesome bouquet!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help Alzheimer's Disease, Caregiver burden, Eldercare, Friendship, Fun, Gratitude, Marriage, Pivoting, Reframing terry@thejoyofcaring.com Leave a Comment

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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