The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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#tbt when meds are a mess, aka take note(s) and speak up

April 26, 2018

Photos courtesy of our caregiver Karly, showing she’d cut pill in half and was making the day great!

I was grateful for my husband and kids and our awesome caregivers who spent enough time with Mom to know her well, to let me know what they saw, and to make sure she got her meds when I stepped away.

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go Alzheimer's Disease, Caregiving, Eldercare, Gratitude, Health concerns, Medicine Side Effects terry@thejoyofcaring.com Leave a Comment

HALT and let in the love

January 17, 2018

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I learned long ago, in Al-Anon, that when we feel irritable or unreasonable, we need to “HALT” – it may be that we are Hungry, Angry, Lonely and/or Tired. Sometimes HALTing means putting our own feet up, sometimes it means taking a moment to learn from others who are doing just that.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Helping others, Learning as we go, Taking care of self #ENDALZ, Addiction, Alzheimer's Disease, Anxiety, Caregiving, Depression, Friendship, Gratitude, In the Moment, Keep it simple, Marriage, Parenting, Prayer terry@thejoyofcaring.com

Looking for the Right Words, in Alzheimer’s and Elsewhere

December 18, 2017

IMG_0344-1The wonder of it is, finding and using a more loving language is something we can all do, here and now, to make the world more beautiful.

Learning as we go #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, One day at a time, Parenting, Siblings, Step 12 terry@thejoyofcaring.com 2 Comments

A Tree in a Forest and a Health Care POA Prayer

October 28, 2017

From my diary two years before, as I stepped into the shoes of health care agent:

Please help me to care for Mom,

to stay in the moment with her while getting her the health care she needs,

to keep her safe while supporting her independence,

to collaborate with the boys and all the rest,

to meet her needs as well as those of the others in my life, and

to stay right here, right now, while figuring out what’s next.

Thank you for helping us to help her.

Amen

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go, Practicing faith #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiver burden, Caregiving, Deep Vein Thrombosis, Diverticulitis, Gratitude, Health first, Intestinal Bleed, Power of Attorney, Prayer, Step 3 terry@thejoyofcaring.com 4 Comments

“Retiring” the Car Keys, i.e. Driving Lala

September 29, 2017

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Mom’s 85th birthday, photo cred to our caregiver Hannah

When I reminded her that her license had expired and reassured her that I’d be happy to drive her anywhere she wanted to go, Mom nodded and smiled. What a relief that the driving question was behind us.

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Alzheimer's Disease, Dementia and Driving, Eldercare, Millennials terry@thejoyofcaring.com Leave a Comment

Celebrating G

September 26, 2017

How could we be so blessed a third time around? He’s so many things…among them a constant reminder that this is not a limited supply of love and beauty we are dealing with, it’s an endless one.

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Gratitude, Millennials, One day at a time, Parenting, Pets terry@thejoyofcaring.com 2 Comments

Empty Nest Plus One

September 12, 2017

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Mom and Doug, a couple summers back

Sunday morning, two days after we stopped the Tramadol, as she tried to make sense of the prior couple of days, Mom asked, “Who’s going to keep me from going crazy?” I was glad I could answer, “I will do my best, Mom, and Doug will help too.”

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Alzheimer's Disease, Back Pain, Caregiving, Diverticulitis, Gratitude, Keep it simple, Marriage, Millennials, Pain relief, Parenting, Step 9, Tramadol Side Effects terry@thejoyofcaring.com 4 Comments

The Challenges of Pain and Delirium as they relate to Dementia – aka Guess who has a UTI?

June 29, 2017

While it complicated her care, Mom’s inability to remember the pain or other details had its advantages: she loved taking guilt-free naps with Cinnamon and regularly expressed gratitude for her good health when I tucked her in at night.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go #ENDALZ, Alzheimer's Disease, Caregiving, Dehydration, Delerium, Health first, Infection, Pain, UTI terry@thejoyofcaring.com 6 Comments

“Living is for Living” – Mom’s Three Things

May 30, 2017

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In the many conversations we’d had regarding whether Mom wanted a DNR, this was her bottom line: “There’s no point to living if you’re not really living.” So, as I made our daily plans, in addition to the items Mom’s care required, I added time to enjoy a “calm and prolonged breakfast,” nature, and companionship.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go, Maintaining balance Alzheimer's Disease, Caregiving, Dementia, Eldercare, Fun, Health first, In the Moment, Reframing terry@thejoyofcaring.com 6 Comments

Bubby Rules

May 22, 2017

(Written to celebrate her storied life, May 2015)

If our dog Bubby Blue made the rules, here’s what she’d say: See a treat?  Go ahead and eat.

Want to swim?  Jump on in.

Hungry?  Help yourself.

See a stranger? Bark.

Don’t hold grudges, it’s a waste of time.

Tired? Take a nap.

Lonely? Get a hug.

Got an itch?  Let someone scratch it.

Need to poop?  Poop.

Just keep wagging your tail, and you’ll be fine.

Never give up… it’s the little things in life that make it worth living.

—from Living Is for Living: A Caregiver’s Story

Learning as we go Fun, Gratitude, Pets terry@thejoyofcaring.com Leave a Comment

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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