The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Living Is for Living: A Caregiver’s Story is launched!

November 28, 2022

What I am letting go in publishing this book isn’t Mom; it isn’t my caregiving journey; it isn’t even all the reflection I’ve done along the way. What I am letting go is fear, the what ifs, the wish for one more do-over, choosing, instead, to let love fill our sails:

If you or someone you know is interested in reading Living Is for Living: A Caregiver’s Story, it is available to order at your local book store (just ask) and also online at Amazon.com, Barnes & Noble, Sherman’s Maine Coast Book Shops, IndieBound, and Bookshop (just click).

Thank you for your interest and I wish you and your loved ones many blessings this holiday season.

Accepting help, Finding time, Gathering Info, Having fun, Helping others, Laughing out loud, Learning as we go, Learning from mistakes, Letting go, Listening first, Looking forward, Maintaining balance, Making peace, Practicing faith, Speaking up, Taking care of self Alzheimer's Disease, Caregiving, Eldercare, Gratitude, Health first, Keep it simple, Marriage, One day at a time, Parenting terry@thejoyofcaring.com 5 Comments

Choosing Emphasis… here, there, everywhere

October 6, 2022

When I blogged about caring for Mom, I meant to keep it real. I wrote about what I was experiencing, editing to make sure it was readable, and then letting it fly. I wrote to reflect, to connect, to relieve, unaware of certain choices, like whether “to quote,” to italicize, to make bold, to use exclamation points!

In the midst of a later read-through of Living Is for Living, the book based on the reflections I blogged, one of the students I tutor was reading an assignment aloud. The plot was complex, and he was working hard to interpret the details. I was struck by how his tone shifted when he got to a sentence in italics; his voice showed that he knew those words were significant, even before he read them.

Which landed me back at my computer the next morning, reviewing Living Is for Living, this time paying attention to the emphasis I’d used. I discovered plenty of all four techniques, which made sense given the intensity of what I was feeling and describing along the way, which led to a realization today:

Sometimes, the words I say are heard differently than how I mean them. I wonder, in the way I speak, in the emphasis I offer, am I cueing the recipient in an effective way? Not that I need to, that I even can, hide how deeply I feel what I feel, still, I can certainly be more aware of how I communicate and its impact on others.

Both in writing and in conversing, I can “slow down,” pay attention, step away, and come back more intentional about how and what I emphasize—even when I’m charged up!

Gathering Info, Learning as we go, Learning from mistakes, Speaking up terry@thejoyofcaring.com 1 Comment

Grief and Guilt, a year later, and the Magic of Fruit Loops, Pivoting, Barking Dogs, Yellow Leaves and Blue Jays

October 12, 2020

As we returned home from an afternoon hike, Siena spotted another Blue Jay, this one perched in a tree at the top of our street. We looked at each other and smiled, understanding that Mom is still right here, with us. We just need to be available to the moment, the best we can.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Helping others, Laughing out loud, Learning as we go, Learning from mistakes, Letting go, Maintaining balance, Making peace, Taking care of self #ENDALZ, Alzheimer's Disease, Canine Caregiver, Caregiver burden, Eldercare, Gratitude, Grief, Hospice Care, Life after death, Pet Therapy, Pivoting, Progress not Perfection terry@thejoyofcaring.com 4 Comments

Remembering to Breathe, ie. taking care of ourselves during the holidays

December 9, 2019

On retreat with the Chaplaincy Institute of Maine, I took a long walk by myself in the woods. I flopped down in the fresh snow. I lay there, looking up at a tall evergreen that reached up to the blue sky (the blue Mom loved). I breathed in and out, deliberately, five times. It felt so good, I decided to go for ten.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Learning as we go, Learning from mistakes, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, Caregiver burden, Eldercare, Gratitude, Grief, Keep it simple, Life after death, Losing a loved one terry@thejoyofcaring.com 4 Comments

On the Edge, aka re-finding balance in caring for a loved one with Alzheimer’s disease

August 29, 2019

Stepping away gave me time to feel Alzheimer’s vastness – like standing beside the Grand Canyon, exhausted, I felt overwhelmed, like I could fall right in. The following summer, during valuable caregiving hours, my spouse and I visited local memory and nursing care facilities. Our options better understood, I could get back to taking it a day at a time and feeling grateful for the moments we still had with Mom in our home. 

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Gathering Info, Learning as we go, Learning from mistakes, Letting go, Looking forward, Maintaining balance, Making peace, Practicing faith, Taking care of self A day at a time, Caregiver burden, Eldercare, Gratitude, Parenting, Step 3 terry@thejoyofcaring.com 10 Comments

Father’s Day in Albuquerque

June 22, 2019

Me and Dad, circa 1974
Me and Dad, circa 1974

That Father’s Day, sixteen years since Dad died, I heard him heckle when I missed foul shots, laugh when I threw elbows, and cheer when I backed someone down. When I worried about missed opportunities, I recalled his “don’t worry about what’s over and done.” And, when I noticed the 85+-year-old men playing on a neighboring court, I imagined Dad and his killer hook shot in their midst. Too bad I didn’t get that gene!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Laughing out loud, Learning from mistakes, Taking care of self Alzheimer's Disease, Caregiving, Gratitude, Health first, Infinity, Keep it simple, Life after death, Losing a loved one, Marriage, Millennials, One day at a time, Parenting terry@thejoyofcaring.com 8 Comments

#TBT – Helping Mom Manage her Finances

December 7, 2017

IMG_0377
Mom’s Calculator

Helping Mom manage her finances was an important step in her care, one I’m glad we took, despite our discomfort, before another loss.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning from mistakes #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiving, Eldercare terry@thejoyofcaring.com Leave a Comment

I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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