The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

Categories

Tags

#ENDALZ #gotitfrommymama Acting as if Alzheimer's Disease Believe Caregiver burden Caregiving COVID-19 Deep Vein Thrombosis Dementia Diverticulitis Eldercare Friendship Fun Gratitude Grief Health concerns Health first Hospice Care Hospitalization Infection In the Moment Keep it simple Life after death Losing a loved one Marriage Memory Loss Millennials One day at a time Parenting Pets Pet Therapy Pivoting Prednisone side effects Reframing Siblings Step 3 Step 4 Step 9 Step 11 Step 12 The Twelve Steps The Twelve Steps of AA Time Working outside the home

  • Reading List
  • Contact Me

A Mom’s Love, unlimited

May 11, 2025

Three decades ago, pregnant and new to Wisconsin, I injured my back. My spouse away, I was grateful for the friends who broke into our house to take care of our toddler and call for an ambulance.

The very next day, Mom flew in from Maine to take care of things while I got back on my feet (literally), and then break me out of the hospital, driving me home in the way back of the minivan to a first floor hospital bed she had procured.

That was Mom’s love: she showed up at the drop of a hat, wherever, whenever, and got the job done.

A year ago, record-breaking weather hit the home in Maine where we’d cared for Mom during her last stretch, in a first floor hospital bed we had procured. I wrote about that journey in Living Is for Living — Mom’s words when I asked for her two cents when Alzheimer’s disease made her health care tricky.

The historic storms and hefty clean-up were a wake-up call. Until then, my spouse and I had assigned what’s next? to the future. Suddenly, it was crystal clear it was time for us to consider our next steps.

In the midst of this, I flew to Wisconsin to be a good grandma and dog sit, a welcome distraction from wild weather stress. Waiting for the plane to de-ice on my homeward trek, I reflected on my attachment to the house we’d so lovingly renovated, which had brought me back to Maine after twenty-five years away. I loved our last chapter living there, with Mom, my husband, our adult kids, friends and pets. It was hard to fathom leaving it, even though Mom and several of the pets had passed on, and the kids had since fanned out far away.

With a heavy heart, I googled “how to let go of a house when you are emotionally attached.” There were lots of good ideas I’d try in the coming year, and I realized it was possible to love a home and its story the way I did and still move on. I just needed to trust that the next chapter could be awesome too.

Just then I looked up to spot, two seats ahead, a baseball cap that read October 15, 1997.

While 1997 didn’t strike a chord, October 15 did. That’s the day Mom had died, in our beloved seaside home, me and the animals at her side.

All of a sudden, I knew without doubt, that Mom was with me, and that she’d continue to be with me, wherever I am and wherever I go.

I don’t need a certain house to keep her close.

That is Mom’s love: it isn’t limited to time or place, it’s with me wherever I am, wherever I go.

Mom’s “Living Is for Living” is all I need to keep her near. This reminder’s helped me through challenges I’ve encountered since, wrapping up the last chapter and turning toward the next, this one yet to be written.

Here’s to a Mom’s love, unlimited — Happy Mother’s Day!

Accepting help, Letting go, Looking forward, Maintaining balance, Making peace, Navigating Concerns, Practicing faith, Taking care of self Alzheimer's Disease, Caregiving, Gratitude, Keep it simple, Life after death, Marriage, One day at a time terry@thejoyofcaring.com 4 Comments

Newest Release…

January 11, 2024

Sharing this book reminds me of opening Sunshine’s crate.

Rather than dashing to the sea, Sunshine peered out, cautiously. When her crate was gently disassembled and she was eased onto the sand, she made her way slowly down the beach, guided by her Marine Mammals of Maine (MMoME) caregivers who shielded her view of the spectators gathered to cheer for her and poolmate Dexxy. When Sunshine made it to the bay, she paused in the shallows while she acclimated to the chilly water, lapping waves, glistening sun. Then she submerged, and off she went. 

I can relate to Sunshine’s apparent reluctance, as I release this book I wrote and illustrated about her recovery, from collection to rehabilitation to release. I also received great care along the way and down the homestretch – from my childhood friends Nancy (who illustrated the front cover), Biz (who took photos of the release) and Margie (who cheered my every step), to my editor, Genie Dailey (Fine Points Editorial Services), and my creative coach, Lindy Gifford (www.manifestidentity.com), to the folks at MMoME (who gave the book their thumbs up).

Wanting to get the story and its details right, I too have taken my sweet time before taking the plunge. And just like the time came for Sunshine to swim free, the time has come to set her story free. So here it is, available online and by request at your local book shop. I hope you enjoy!

Accepting help, Finding time, Gathering Info, Having fun, Helping others, Learning as we go, Letting go, Maintaining balance, Navigating Concerns, Practicing faith Friendship, Gratitude, Keep it simple, One day at a time, Travels of a Gray Seal Pup terry@thejoyofcaring.com Leave a Comment

The Wrap: Douglas the Rabbit’s Winter Holiday Surprise

October 2, 2023

“Laughter is the sun that drives winter from the human face.”—Victor Hugo (1802-1885), author of The Hunchback of Notre Dame and Les Miserables

Across traditions, winter holidays are observed with decorations, foods, gifts, lights, rituals, and visits with family and friends. They celebrate hope and joy, even amidst hardship. In that spirit, I’m excited to offer:

In this last book of the series, Douglas invites the other animals to a gathering that captures the friendships they share. It’s a reminder of the importance of making time for what matters most: Connection to others and the world we share.

This one’s a shout-out to my spouse, Doug, and our children—Siena, Matt, and Garrett—with whom we witness the humor and beauty around us, with special thanks to the sightings that inspired the illustrations: Canadian geese skidding to a stop across fresh ice, paper snowflakes created by the kids from coffee filters, shooting stars streaking across the night sky.

I share this story today, on what would have been Dad’s 90th birthday, in gratitude for all the ways he made us laugh, including his story-telling, and for encouraging me to tell stories, too.

“Peace and quiet,” he’d say, a twinkle in his eye, when I’d ask him what he wanted for his birthday.

When I ask myself that question, as I approach my sixtieth, what I want is the gift of kindness.

So, in wrapping the Douglas the Rabbit Adventure Series, it makes sense that, even without doing so intentionally, this final story celebrates these three gifts: peace, quiet, and kindness.

I hope you enjoy!

Accepting help, Finding time, Having fun, Laughing out loud, Learning as we go, Letting go, Maintaining balance, Making peace, Navigating Concerns, Practicing faith, Sacred Practices, Taking care of self, Uncategorized Celebrating joy, Friendship, Gratitude, Keep it simple, Life after death, Natural beauty, Parenting terry@thejoyofcaring.com Leave a Comment

Seeing What Is Right in front of Us

September 12, 2023

We find ourselves by looking out at what looks back…

—Poet David Whyte in Lon’s Fort (Many Rivers Press, 2012)


As we celebrate the resurrection of the retaining wall out front,

meant to keep the dogs in and the water out, I take my daily walk.

Everywhere I look, I see walls…rock, metal, brick, vinyl, cement.

Some crumbling, some reinforced. Some peeling, some painted fresh. 

Some leaning, some erect. Some clean and bare, some covered in growth.

Some walls are ornamental, some utilitarian. Some provide privacy, some protect. 

Some are new; some are old…boundaries then, gardens now. 

Some have spikes delivering a clear STAY OUT, some offer a deliberate way in.

Nothing says WELCOME like an open gate.

Together, the walls I see around me remind me of the the walls I’ve built inside me:

WHO were my walls meant to keep in and out? 

WHAT do they look like from the other side? 

WHEN did I build them and do they still serve? 

WHERE do I let others through?

WHY do I keep my walls in place? 

HOW can I reinforce them? HOW can I tear them down?

In the midst of all this, I see a wall doubling as a lost and found,

a pair of pink plastic sunglasses resting on top.

I wonder who left them and what adventure they were on.

I remember when our kids were young, the way walls inspired climbing, balancing, jumping…

simpler times for sure.

And so I walk on, a smile on my face, grateful that finding the answers isn’t always necessary,

that sometimes just seeing the questions is enough.

Learning as we go, Maintaining balance, Making peace, Navigating Concerns, Practicing faith, Self-Reflection Gratitude, Keep it simple, One day at a time, Parenting terry@thejoyofcaring.com 2 Comments

Living Is for Living: A Caregiver’s Story is launched!

November 28, 2022

What I am letting go in publishing this book isn’t Mom; it isn’t my caregiving journey; it isn’t even all the reflection I’ve done along the way. What I am letting go is fear, the what ifs, the wish for one more do-over, choosing, instead, to let love fill our sails:

If you or someone you know is interested in reading Living Is for Living: A Caregiver’s Story, it is available to order at your local book store (just ask) and also online at Amazon.com, Barnes & Noble, Sherman’s Maine Coast Book Shops, IndieBound, and Bookshop (just click).

Thank you for your interest and I wish you and your loved ones many blessings this holiday season.

Accepting help, Finding time, Gathering Info, Having fun, Helping others, Laughing out loud, Learning as we go, Learning from mistakes, Letting go, Listening first, Looking forward, Maintaining balance, Making peace, Practicing faith, Speaking up, Taking care of self Alzheimer's Disease, Caregiving, Eldercare, Gratitude, Health first, Keep it simple, Marriage, One day at a time, Parenting terry@thejoyofcaring.com 5 Comments

Book Lay Out: “and” not “or”

September 28, 2022

This last bit, the back and forth with Lindy as she carefully lays out Living Is for Living, word by word, reminds me of childbirth: it requires willingness, focus, patience and humility, in the midst of discomfort and anticipation. There’s the familiar cognitive back and forth: do I hold on or do I let go or am I kidding myself to think I have any control over what happens next, once this book is published.

So what do I do? I nest: I sort trinkets, rehang pictures, rearrange books. I even gladly pause to take my many morning herbs (intended to tame Lyme and other things). And, big surprise, I write : )

Then I remember the notion of AND that I learned in my interfaith chaplaincy studies. What if I swap and for or: I hold on and I let go and I kid myself. This balance of good intention and good humor do seem to come in handy at this moment of delivery.

I’m grateful

that the animals

are right here at my side

and that Lindy is

one heck of a writing midwife,

respecting my perspective and pace,

while attending to every single detail.

We’ll get there—I just gotta trust, breathe, do what I can, and let the process unfold. Speaking of which, back to checking the latest version!

Accepting help, Laughing out loud, Learning as we go, Letting go, Maintaining balance, Practicing faith, Speaking up Gratitude, Reframing terry@thejoyofcaring.com 2 Comments

Walking with Mom, year two, in grief and in joy, too

June 25, 2021

As I stood on the stage, being ordained an interfaith minister by the Chaplaincy Institute of Maine, I heard and felt Mom’s presence in the birds singing in the trees and the gentle breeze on my face. I felt the pieces of my story settling into place. I was excited, curious and, most of all, ready, for whatever comes next.

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go, Letting go, Looking forward, Maintaining balance, Making peace, Practicing faith Alzheimer's Disease, Caregiving, Eldercare, Grief, Hospice Care, Life after death terry@thejoyofcaring.com 10 Comments

Grief and Guilt, a year later, and the Magic of Fruit Loops, Pivoting, Barking Dogs, Yellow Leaves and Blue Jays

October 12, 2020

As we returned home from an afternoon hike, Siena spotted another Blue Jay, this one perched in a tree at the top of our street. We looked at each other and smiled, understanding that Mom is still right here, with us. We just need to be available to the moment, the best we can.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Helping others, Laughing out loud, Learning as we go, Learning from mistakes, Letting go, Maintaining balance, Making peace, Taking care of self #ENDALZ, Alzheimer's Disease, Canine Caregiver, Caregiver burden, Eldercare, Gratitude, Grief, Hospice Care, Life after death, Pet Therapy, Pivoting, Progress not Perfection terry@thejoyofcaring.com 4 Comments

Labor of Love, another take on “caregiver burden”

September 10, 2020

Labor Day, after everyone left, leaving me and the dogs, I spent several hours doing the laundry, covering the boat, taking down the flag, moving things around, packing things up. Mom was with me every step of the way I realized as I stored the paddles behind the bathroom door, like she used to do. Sometimes what looks like a burden is actually an opportunity to heal.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Having fun, Learning as we go, Letting go, Listening first, Maintaining balance, Making peace, Taking care of self #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiver burden, Eldercare, Life after death terry@thejoyofcaring.com 6 Comments

Mom’s birthday, another first

July 10, 2020

Looking at photos of 17-year-old Mom the summer her dad died, and following her as she marched forward into a life spent pushing the boundaries, I understood that her “living is for living” wasn’t just a way to deal with her elder years, it was the way she’d handled early loss and carried on.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Gathering Info, Learning as we go, Letting go, Listening first, Maintaining balance, Making peace, Practicing faith, Taking care of self #gotitfrommymama, Alzheimer's Disease, Believe, Eldercare, Life after death terry@thejoyofcaring.com 8 Comments

  • 1
  • 2
  • 3
  • 4
  • Next Page »

I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

Subscribe to Blog via Email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 57 other subscribers

Top Posts & Pages

  • A Mom's Love, unlimited
  • Newest Release...
  • Upcoming Book Release: A Seal Named Sunshine
  • The Wrap: Douglas the Rabbit's Winter Holiday Surprise
  • Seeing What Is Right in front of Us
  • A Giant Lesson in Mindfulness
  • 1, 2, 3...ready or not, here we come: Douglas the Rabbit's Fall Field Trip
  • Up next, just in time for Mom's birthday: Douglas the Rabbit Makes Some Friends
  • Introducing my next adventure: The Original Douglas the Rabbit Story
  • Living Is for Living: A Caregiver's Story is launched!

Archives

  • May 2025
  • January 2024
  • November 2023
  • October 2023
  • September 2023
  • August 2023
  • July 2023
  • June 2023
  • November 2022
  • October 2022
  • September 2022
  • August 2022
  • July 2022
  • June 2021
  • October 2020
  • September 2020
  • July 2020
  • May 2020
  • April 2020
  • February 2020
  • January 2020
  • December 2019
  • November 2019
  • October 2019
  • September 2019
  • August 2019
  • July 2019
  • June 2019
  • May 2019
  • April 2019
  • December 2018
  • November 2018
  • October 2018
  • August 2018
  • April 2018
  • February 2018
  • January 2018
  • December 2017
  • November 2017
  • October 2017
  • September 2017
  • August 2017
  • July 2017
  • June 2017
  • May 2017
  • April 2017
  • March 2017

Pages

  • Reading List
  • Contact Me

Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

Spam Blocked

1,358 spam blocked by Akismet

Subscribe to Blog via Email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 57 other subscribers

© 2025 ·Journey · by WPStud.io