The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Laughter in Grief – showing up the best we can and finding hope amidst loss

April 23, 2020

Little did Dad know when he made up Douglas the Rabbit stories for us kids, that someday I’d share them with my kids; little did I know that the stories I wrote down to remember Dad after he died, would someday entertain Mom, when she could no longer get out of bed.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Helping others, Laughing out loud, Learning as we go, Letting go, Looking forward, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, COVID-19, Eldercare, Gratitude, Keep it simple, Life after death, One day at a time terry@thejoyofcaring.com 2 Comments

COVID-19 Staying at Home – finding guidance in parental wisdom during this time of pandemic stress

April 1, 2020

Tamridge, Mom and Dad, circa 1980

There were moments, when nothing seemed as it was and everything seemed newly tenuous. Dad’s “we shall see” and “bottom line” and Mom’s “living is for living” and “aren’t we lucky” reminded me to be patient, to simplify, to let go of fear, and to count our blessings.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Gathering Info, Helping others, Learning as we go, Letting go, Listening first, Maintaining balance, Making peace, Practicing faith, Speaking up, Taking care of self Alzheimer's Disease, Caregiving, Corona Virus 2019, COVID-19, Eldercare, Gratitude, In the Moment, Infection, Keep it simple, Life after death, One day at a time terry@thejoyofcaring.com 14 Comments

Speaking of pep in her step – Cinnamon’s getting hers back too!

February 14, 2020

I worried when Mom died, we might lose Cinnamon too. Then, somewhere along the way, she reset her sights. It was as if the love we’d given her as a puppy, she gave to Mom during their life together, and all the love Mom gave her during that time, Cinnamon was passing on to us now.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Helping others, Learning as we go, Letting go, Listening first, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, Canine Caregiver, Caregiving, Dementia, Eldercare, In the Moment, Life after death, Pet Therapy, Pets terry@thejoyofcaring.com Leave a Comment

Remembering to Breathe, ie. taking care of ourselves during the holidays

December 9, 2019

On retreat with the Chaplaincy Institute of Maine, I took a long walk by myself in the woods. I flopped down in the fresh snow. I lay there, looking up at a tall evergreen that reached up to the blue sky (the blue Mom loved). I breathed in and out, deliberately, five times. It felt so good, I decided to go for ten.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Learning as we go, Learning from mistakes, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, Caregiver burden, Eldercare, Gratitude, Grief, Keep it simple, Life after death, Losing a loved one terry@thejoyofcaring.com 4 Comments

Grief and Belief, in the four weeks since Mom passed on

November 12, 2019

Mom died at dawn on Tuesday, October 15, 2019 – two years from the day we got her back to Maine. Then, at 54, our beautiful friend Terry T died too. Even in the midst of battling cancer, she’d texted me: Sorry about your mom, but I know, because I believe, that she is at peace. Thank you dear Terry T for showing me the way. Peace be with you, too.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Helping others, Learning as we go, Letting go, Maintaining balance, Making peace, Practicing faith, Taking care of self #ENDALZ, Caregiver burden, Eldercare, Gratitude, Grief, Hospice Care, Life after death terry@thejoyofcaring.com 10 Comments

A Bushel and a Peck, ie. transitioning to hospice care

October 4, 2019

In Mom’s Alzheimer’s care, we’d guided her through a daily routine to promote her good moments. With the wisdom and support of her hospice team, we modified that approach to better meet her evolving needs. I was grateful that, even though caring for Mom as she approached death wasn’t easy, I got to do it and that, even when I felt alone, I was supported.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Gathering Info, Learning as we go, Letting go, Listening first, Maintaining balance, Making peace, Practicing faith, Taking care of self Eldercare, Hospice Care, One day at a time terry@thejoyofcaring.com 8 Comments

On the Edge, aka re-finding balance in caring for a loved one with Alzheimer’s disease

August 29, 2019

Stepping away gave me time to feel Alzheimer’s vastness – like standing beside the Grand Canyon, exhausted, I felt overwhelmed, like I could fall right in. The following summer, during valuable caregiving hours, my spouse and I visited local memory and nursing care facilities. Our options better understood, I could get back to taking it a day at a time and feeling grateful for the moments we still had with Mom in our home. 

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Gathering Info, Learning as we go, Learning from mistakes, Letting go, Looking forward, Maintaining balance, Making peace, Practicing faith, Taking care of self A day at a time, Caregiver burden, Eldercare, Gratitude, Parenting, Step 3 terry@thejoyofcaring.com 10 Comments

Never too old to play basketball

July 7, 2019

It was an honor to be one of 130 Maine athletes to attend the National Senior Games where I played on Team Phoenix. Watching women, ages 50-90, play basketball, not only inspired me, it gave me hope –  I wanted to be kicking ass when I’m in my eighties and beyond too!

—excerpt from Living Is for Living: A Caregiver’s Story

Finding time, Having fun, Learning as we go, Letting go, Maintaining balance, Practicing faith, Taking care of self #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Eldercare, Fun, Gratitude, Health first, Pivoting terry@thejoyofcaring.com 6 Comments

This one’s for you Mom

June 15, 2019

Mom, #4, circa 1952, playing college hoops and later
recognized as a scholar-athlete for playing four sports!

Stepping away from caregiving to fly to the 2019 Senior National Basketball Games in New Mexico wasn’t easy. It helped to know that, if she could, Mom would be cheering us on.

—excerpt from Living Is for Living: A Caregiver’s Story

Having fun, Learning as we go, Maintaining balance, Taking care of self, Uncategorized terry@thejoyofcaring.com 6 Comments

RIP little bunny – processing grief in Alzheimer’s and elsewhere, and finding meaning to help us through

May 4, 2019

When I discovered our eleven-year-old bunny rabbit sprawled out in her cage, I was hit with disbelief. Even when death is expected, peaceful, and quick, it can be hard to accept. I’m grateful for my spouse and neighbor Mandy who helped me through.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Laughing out loud, Learning as we go, Letting go, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, Caregiving, Friendship, Gratitude, In the Moment, Keep it simple, Life after death, Losing a loved one, Marriage, One day at a time terry@thejoyofcaring.com 6 Comments

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Top Posts & Pages

  • Newest Release...
  • Upcoming Book Release: A Seal Named Sunshine
  • The Wrap: Douglas the Rabbit's Winter Holiday Surprise
  • Seeing What Is Right in front of Us
  • A Giant Lesson in Mindfulness
  • 1, 2, 3...ready or not, here we come: Douglas the Rabbit's Fall Field Trip
  • Up next, just in time for Mom's birthday: Douglas the Rabbit Makes Some Friends
  • Introducing my next adventure: The Original Douglas the Rabbit Story
  • Living Is for Living: A Caregiver's Story is launched!
  • Letting Go, for real

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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