The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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#ENDALZ #gotitfrommymama Acting as if Alzheimer's Disease Believe Caregiver burden Caregiving COVID-19 Deep Vein Thrombosis Dementia Diverticulitis Eldercare Friendship Fun Gratitude Grief Health concerns Health first Hospice Care Hospitalization Infection In the Moment Keep it simple Life after death Losing a loved one Marriage Memory Loss Millennials One day at a time Parenting Pets Pet Therapy Pivoting Prednisone side effects Reframing Siblings Step 3 Step 4 Step 9 Step 11 Step 12 The Twelve Steps The Twelve Steps of AA Time Working outside the home
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Never too old to play basketball

July 7, 2019

It was an honor to be one of 130 Maine athletes to attend the National Senior Games where I played on Team Phoenix. Watching women, ages 50-90, play basketball, not only inspired me, it gave me hope –  I wanted to be kicking ass when I’m in my eighties and beyond too!

—excerpt from Living Is for Living: A Caregiver’s Story

Finding time, Having fun, Learning as we go, Letting go, Maintaining balance, Practicing faith, Taking care of self #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Eldercare, Fun, Gratitude, Health first, Pivoting terry@thejoyofcaring.com 6 Comments

RIP little bunny – processing grief in Alzheimer’s and elsewhere, and finding meaning to help us through

May 4, 2019

When I discovered our eleven-year-old bunny rabbit sprawled out in her cage, I was hit with disbelief. Even when death is expected, peaceful, and quick, it can be hard to accept. I’m grateful for my spouse and neighbor Mandy who helped me through.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Laughing out loud, Learning as we go, Letting go, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, Caregiving, Friendship, Gratitude, In the Moment, Keep it simple, Life after death, Losing a loved one, Marriage, One day at a time terry@thejoyofcaring.com 6 Comments

High Fives All Around – We’ve Got This

April 12, 2019

In support of a member facing a cancer diagnosis, her team had handed out bracelets with the words No One FIGHTS Alone! Running errands and thinking of this fierce, kind and resilient athlete, I pulled into Dunkin Donuts for an afternoon pick-up. When the guy in front of me bought my cup of coffee, it was the high five I needed, reminding me to reach out to others too.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Having fun, Helping others, Learning as we go, Maintaining balance, Practicing faith, Taking care of self Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, One day at a time, Parenting, Step 12 terry@thejoyofcaring.com 6 Comments

#tbt Making Peace with Mom’s DNR

November 15, 2018

Dear Higher Power, Please help me to take heroic measures to love and care for Mom, to help her continue to live healthy and well – not to prolong the time when she is failing and unwell. Please help me to never give up, and also to let go when the time comes. Please help me to honor Mom while she is alive, and also when she dies. A DNR – natural death – is the right choice – it’s a choice my Mom has made. It’s a choice I agree with. It’s a choice that hurts and relieves. It’s a choice I need to respect. Please help me to find peace with Mom’s DNR. Thy will be done. Amen

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go, Letting go, Listening first, Maintaining balance, Making peace, Practicing faith Alzheimer's Disease, Caregiving, Gratitude, Keep it simple, One day at a time terry@thejoyofcaring.com 4 Comments

January Freeze, Step Two’s Coming to Believe

February 5, 2018

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AA’s Step Two: “Came to believe a power greater than ourselves can restore us to sanity.” When offering Mom the paper birds to touch and the memory of our home in Wisconsin to connect didn’t soothe her, I took down the mobile and put it in a drawer. Sometimes, we just gotta believe someone we trust can take our worries away. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith #ENDALZ, Acting as if, Alzheimer's Disease, Anxiety, Caregiving, Depression, Friendship, Gratitude, Keep it simple, Marriage, Parenting, The Twelve Steps terry@thejoyofcaring.com 4 Comments

Paradiso Found, aka reversing the jinx : )

December 11, 2017

In response to the carpenter’s “this place is jinxed,” I chose Paradiso blue for the upstairs floor. Thank God for humor, animals, friendship and faith for keeping me on track; those, and Mom, who was not one bit superstitious and who knew paradise when she saw it, even with one eye.

—excerpt from Living Is for Living: A Caregiver’s Story

Laughing out loud, Practicing faith #ENDALZ, #gotitfrommymama, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, One day at a time, Pets, Reframing, Step 12 terry@thejoyofcaring.com 2 Comments

Step Twelve, Whole, Not Hole

December 3, 2017

AA’s Step Twelve: “Having had a spiritual awakening as the result of these Steps, we tried to carry this message to others, and to practice these principles in all our affairs.” This meant being present in the moment, right here, right now, maybe not all of the time, however, more and more of the time. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith #ENDALZ, Acting as if, Eldercare, Gratitude, Health first, Marriage, Parenting, Pet Therapy, Step 12 terry@thejoyofcaring.com 2 Comments

“Hot Tamale” and the Blessing of Awesome Caregivers

November 14, 2017

I met Hannah when I coached her on a fast-pitch softball team. I never anticipated that it would be Hannah, ten years later, who’d help us care for Mom. No surprise, Hannah was a great teammate!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Practicing faith #ENDALZ, Alzheimer's Disease, Caregiver burden, Caregiving, Eldercare, Friendship, Gratitude, Health first, Millennials, Step 11 terry@thejoyofcaring.com Leave a Comment

A-yuh, aka “Do you even go to church?”

November 6, 2017

While I respected that church was the best way for some to worship, it wasn’t the only way. I was grateful for all the diverse experiences that had helped me develop a faith that guided me daily and set me free.

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Caregiver burden, Gratitude, Parenting, Step 11, The Twelve Steps of AA terry@thejoyofcaring.com 2 Comments

Step Eleven, I Am Not Alone

November 1, 2017

AA’s Step Eleven: “Sought through prayer and meditation to improve our conscious contact with our Higher Power, praying only for knowledge of our Higher Power’s will for us and the power to carry that out.” When I’m feeling anxious and need a hand to hold, I can hold my own. Then I’ll find my hands are joined in prayer, and I am not alone. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith, Uncategorized Acting as if, Alzheimer's Disease, Caregiving, Eldercare, Gratitude, Keep it simple, Marriage, One day at a time, Parenting, Step 11 terry@thejoyofcaring.com Leave a Comment

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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