The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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RIP little bunny – processing grief in Alzheimer’s and elsewhere, and finding meaning to help us through

May 4, 2019

When I discovered our eleven-year-old bunny rabbit sprawled out in her cage, I was hit with disbelief. Even when death is expected, peaceful, and quick, it can be hard to accept. I’m grateful for my spouse and neighbor Mandy who helped me through.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Laughing out loud, Learning as we go, Letting go, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, Caregiving, Friendship, Gratitude, In the Moment, Keep it simple, Life after death, Losing a loved one, Marriage, One day at a time terry@thejoyofcaring.com 6 Comments

In Mom’s Words

April 12, 2019

When I thought back on a lifetime with Mom (54 years and counting), I recalled her words, like salve to my soul. As reserved as she was, the words she chose stood out – even the ones that stung when delivered, felt like love now.  

—excerpt from Living Is for Living: A Caregiver’s Stor

Finding time, Having fun, Letting go, Listening first, Making peace, Taking care of self #ENDALZ terry@thejoyofcaring.com 6 Comments

High Fives All Around – We’ve Got This

April 12, 2019

In support of a member facing a cancer diagnosis, her team had handed out bracelets with the words No One FIGHTS Alone! Running errands and thinking of this fierce, kind and resilient athlete, I pulled into Dunkin Donuts for an afternoon pick-up. When the guy in front of me bought my cup of coffee, it was the high five I needed, reminding me to reach out to others too.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Having fun, Helping others, Learning as we go, Maintaining balance, Practicing faith, Taking care of self Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, One day at a time, Parenting, Step 12 terry@thejoyofcaring.com 6 Comments

Simple Kindness

October 24, 2018

When in doubt

In a world with atrocity, apathy, anxiety, distraction and just plain busy-ness, I was touched by all the simple kindnesses that helped me as I helped Mom. Thanks to those simple, and often unexpected, kindnesses, the pieces of our life in Maine were starting to fall into place.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Learning as we go, Maintaining balance, Making peace, Taking care of self Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, One day at a time, Parenting terry@thejoyofcaring.com 4 Comments

What is basketball? – aka caring for me

August 3, 2018

When a coach at the Not Too Late, women over 50, basketball camp said, “you’re only as strong as your biggest weakness,” her words resonated, giving me reason to keep working on me, on the court and off.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, Marriage, Parenting terry@thejoyofcaring.com 8 Comments

HALT and let in the love

January 17, 2018

IMG_0825

I learned long ago, in Al-Anon, that when we feel irritable or unreasonable, we need to “HALT” – it may be that we are Hungry, Angry, Lonely and/or Tired. Sometimes HALTing means putting our own feet up, sometimes it means taking a moment to learn from others who are doing just that.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Helping others, Learning as we go, Taking care of self #ENDALZ, Addiction, Alzheimer's Disease, Anxiety, Caregiving, Depression, Friendship, Gratitude, In the Moment, Keep it simple, Marriage, Parenting, Prayer terry@thejoyofcaring.com

Sweet Dreams, aka taking care of caregiver

November 30, 2017

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Fitbits don’t lie!

It hadn’t made sense to get mad at the kids for disrupted sleep, nor did it make sense to get irritated with Mom.  I just had to make a plan to get some shut-eye and stick with it.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, Alzheimer's Disease, Caregiver burden, Caregiving, Eldercare, Gratitude, Health first, Keep it simple, Parenting, Step 11 terry@thejoyofcaring.com Leave a Comment

Nine Squares

September 21, 2017

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Whole Life Grid a la Susan Jeffers, PhD, Feel the Fear and Do It Anyway

According to the sign out front of a local church, “THERE IS A TIME FOR EVERYTHING.  BE SURE TO MAKE TIME FOR GOD.” My middle square – “Spirituality and Faith” was a great place to start!

—excerpt from Living Is for Living: A Caregiver’s Story

Finding time, Taking care of self #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Health first, In the Moment, Marriage, Parenting, Pets, Step 9 terry@thejoyofcaring.com Leave a Comment

What Next? (dropping our youngest off at college)

August 28, 2017

Earnest 18-year-old you with me in your heart, asks me straight up “What next?”

You don’t want me to miss out on my life making sure that she doesn’t miss out on hers.

“I’m not sure,” I admit – I tell you the truth, cuz I value your two cents, and you’d see through anything else.

“I’m taking it a day at a time, trying to draw out this phase, trusting I’ll know when it’s time for a change.

Seriously, how lucky am I, that in the midst of your world, you see me sitting here, and give me just what I need.

Although I’m still not sure what is next, I promise to take care of me the best I can, in the mix.

All I ask is you do the same…What’s next for you?

Great things, I have no doubt – and I will cheer your every step.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, Alzheimer's Disease, Caregiving, Dementia, Eldercare, Empty Nest, Gratitude, In the Moment, Millennials, One day at a time, Parenting, Pivoting terry@thejoyofcaring.com Leave a Comment

Summer Solstice 2017, the longest day and grief

June 24, 2017

After a busy spring, I was exhausted. It helped that, when our youngest played Herb Alpert and the Tijuana Brass on his phone, Mom danced in her chair, from head to toe.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, Alzheimer's Disease, Caregiver burden, Caregiving, Gratitude, Grief, Losing a loved one terry@thejoyofcaring.com 4 Comments

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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