The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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#ENDALZ #gotitfrommymama Acting as if Alzheimer's Disease Believe Caregiver burden Caregiving COVID-19 Deep Vein Thrombosis Dementia Diverticulitis Eldercare Friendship Fun Gratitude Grief Health concerns Health first Hospice Care Hospitalization Infection In the Moment Keep it simple Life after death Losing a loved one Marriage Memory Loss Millennials One day at a time Parenting Pets Pet Therapy Pivoting Prednisone side effects Reframing Siblings Step 3 Step 4 Step 9 Step 11 Step 12 The Twelve Steps The Twelve Steps of AA Time Working outside the home
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“Beast Mode” Time

August 9, 2017

A gift from my CrossFit trainer Nicole

Hospitalized again, Mom being evaluated for another intestinal ailment, with enough blood loss to warrant a transfusion, it was time to gear up again.

—excerpt from Living Is for Living: A Caregiver’s Story

Helping others #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, One day at a time, Parenting terry@thejoyofcaring.com 8 Comments

Step Eight Discernment

August 7, 2017

AA’s Step Eight: “Made a list of all persons we had harmed, and became willing to make amends to them all.” According to a fortune cookie, my life was about to get more interesting. It was time to move on with faith and open up to the healing ahead. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Health first, Step 8, The Twelve Steps of AA terry@thejoyofcaring.com Leave a Comment

Standing by Me

August 1, 2017

standbyme photo
July 30, 1988

When we danced as newlyweds to “Stand by Me,” I didn’t know exactly what that would mean, only that we’d have ups and downs and I hoped he’d be at my side through both. The words comforted me now as they had then, and I was ever grateful.

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance #ENDALZ, Alzheimer's Disease, Caregiving, Gratitude, Marriage terry@thejoyofcaring.com 4 Comments

Summer in Wisconsin ain’t too shabby either!

July 27, 2017

Mom on walk
Thanks to our caregiver Hannah for catching Lala and Cinnamon in action

Having fun #ENDALZ, Alzheimer's Disease, Caregiving, Gratitude, Keep it simple, One day at a time, Pets terry@thejoyofcaring.com 2 Comments

Brotherly Love on Mom’s Birthday

July 19, 2017

Of all the things I could give Mom for her birthday, the very best would be the promise to always try to work things out with my bros. Mom cherished each one of us, in different ways, and having us all in her life, in the ways that we could be, not only made my role as primary caregiver doable, it also helped to make her life, at 85 and with dementia, complete.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help Alzheimer's Disease, Caregiving, Dementia, Eldercare, Gratitude, Siblings, Teamwork terry@thejoyofcaring.com 2 Comments

Triple Salchow – enough is enough

July 16, 2017

IMG_0078

As my spouse put it when I fretted: “getting your Mom two weeks in Maine is like completing a triple salchow – that’s something to feel good about.”

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance #ENDALZ, Alzheimer's Disease, Caregiving, Gratitude, Marriage, Unearned Guilt terry@thejoyofcaring.com 6 Comments

Step Seven Humility

July 13, 2017

AA’s Step Seven: “Humbly asked our Higher Power to remove our shortcomings.” Faith in a Higher Power…It’s what helped me, Mom still in Maine for a bit longer, in another’s care. #thankGodforHannah! (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Alzheimer's Disease, Caregiving, Friendship, Health first, Marriage, Parenting, Step 7, The Twelve Steps of AA terry@thejoyofcaring.com 2 Comments

The Happiest Days, i.e. “Going to Camp”

July 6, 2017

Mom looking at lake in bathrobe

As we weighed the challenges of getting Mom to camp vs. her love of summers there, I remembered her advice twenty-five years earlier when I asked her about taking our newborn first to live in Prague so that Doug could take a job there: “Go for it.”

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance #ENDALZ, Alzheimer's Disease, Caregiving, Gratitude, One day at a time terry@thejoyofcaring.com 4 Comments

The Challenges of Pain and Delirium as they relate to Dementia – aka Guess who has a UTI?

June 29, 2017

While it complicated her care, Mom’s inability to remember the pain or other details had its advantages: she loved taking guilt-free naps with Cinnamon and regularly expressed gratitude for her good health when I tucked her in at night.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go #ENDALZ, Alzheimer's Disease, Caregiving, Dehydration, Delerium, Health first, Infection, Pain, UTI terry@thejoyofcaring.com 6 Comments

Summer Solstice 2017, the longest day and grief

June 24, 2017

After a busy spring, I was exhausted. It helped that, when our youngest played Herb Alpert and the Tijuana Brass on his phone, Mom danced in her chair, from head to toe.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, Alzheimer's Disease, Caregiver burden, Caregiving, Gratitude, Grief, Losing a loved one terry@thejoyofcaring.com 4 Comments

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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