The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Firstborn Fun

May 19, 2017

As Siena turned 24, I thought I’d share some things about her that had held true since the start. She’s humorous and she humor’s us, most of the time. She loves the color blue and coffee talk. She can make anything fun, even exercise, just ask the animals.

—excerpt from Living Is for Living: A Caregiver’s Story

Having fun Gratitude, Millennials, Parenting terry@thejoyofcaring.com 2 Comments

Step Five and the Transformation of Being Heard

May 16, 2017

Jennie's Happy Place
From my sister-in-law Jennie’s May garden

AA’s Step Five:  “Admitted to our Higher Power, to ourselves and to another human being the exact nature of our wrongs.” Not only does being heard set us free, being able to listen without having to jump in and rescue is transforming as well. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Listening first Parenting, Step 12, Step 5, The Twelve Steps of AA terry@thejoyofcaring.com Leave a Comment

Motherhood Then, Caregiving Now

May 14, 2017

Mom and the kids, 1999

The challenges I faced as mother and daughter were strikingly similar, and what comforted me then, comforted me now: Faith is the way. Caregiving, like motherhood, is living proof of our Higher Power’s love.

Practicing faith Alzheimer's Disease, Caregiving, Parenting terry@thejoyofcaring.com 2 Comments

What Is Your Reason?

May 12, 2017

One of my reasons, then (1994) and now (note Dad’s reflection on the right)

For as long as I could remember, exercise had relieved stress and cleared my mind. These days, Mom rebounding, I hoped it would help me get my spark back too.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, Alzheimer's Disease, Caregiving, Dementia, Exercise, Friendship, Health first, Marriage, Parenting terry@thejoyofcaring.com 2 Comments

Guess Who Got Her Spark Back?

May 11, 2017

When she got into bed, Mom said “I’m sorry” – I’m not quite sure for what. I answered “I’m sorry” back – I’m not quite sure for what for. It broke my heart even as I knew it meant that the part of her that I had feared had shut down for good was back. How lucky am I?

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Alzheimer's Disease, Caregiving, Gratitude, Marriage, One day at a time, Parenting terry@thejoyofcaring.com 4 Comments

Just Listen

May 8, 2017

Listen, just listen…why is it so hard to do, when I know it’s what you need from me most?

I start out trying, and the next thing I know, I’m speaking, advising, wanting to take your pain away.

Listen, just listen…why is it so hard to do?

I don’t want you to feel anxious, sad, or alone, even though I know that’s part of life too.

You’ll be okay, I’ll be okay, if I just let you be, to find your way.

So I’ll try to listen, just listen…as long as you’ll try to let me know, when it’s something different you need from me.

—excerpt from Living Is for Living: A Caregiver’s Story

Listening first Caregiving, Friendship, Gratitude, Marriage, Parenting terry@thejoyofcaring.com Leave a Comment

We Shall See… One Day at a Time

May 6, 2017

Like AA’s One Day at a Time, Dad’s “We shall see” freed me to turn my attention elsewhere. These days his approach helped me to take care of Mom in each moment – to offer and love, not to force or press.

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance Alzheimer's Disease, Caregiving terry@thejoyofcaring.com Leave a Comment

Please Take a Look at Mom

May 3, 2017

I was grateful to all who took a look at Mom as they addressed her health concerns; I believe it was the most important part of providing her care. I wanted them to know, I saw them too.

—excerpt from Living Is for Living: A Caregiver’s Story

Speaking up Alzheimer's Disease, Caregiving, Gratitude terry@thejoyofcaring.com 2 Comments

A Week of Haikus for Darlene

May 3, 2017

Gosling in the Yard

On hospital time, with Spring’s midwest prairie view, I google “haiku.”

Japanese poem, three lines of five, seven, five, nature inspires.

The lake with its geese, “attached by a stream to Maine”, reminds Mom of home.

We may wonder why, we reach for the sun each day…It’s the way we love.

Goslings in the yard, Mom would enjoy if she could – I see for us both.

Neighbor boy in boots, plops butt-first in the puddle, his Dad and I smile.

The dogs tug the leash – trees bud, flowers bloom, birds sing – we rejoice at life.

—from Living Is for Living: A Caregiver’s Story

Having fun Alzheimer's Disease, Caregiving, Friendship terry@thejoyofcaring.com Leave a Comment

Online History during Hospital Stay

May 1, 2017

…prednisone makes some patient’s worse, diverticulitis can be very painful, surgery is not always necessary, ice cream sandwiches and haikus help, dementia gets in the way of pain relief, delirium isn’t necessarily permanent, fecal impaction is no joke, Milk of Magnesia works…

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info Alzheimer's Disease, Caregiving, Dementia, Diverticulitis, Eldercare, Health concerns, Hospitalization, Pain relief, Prednisone side effects terry@thejoyofcaring.com Leave a Comment

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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