The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Use It or Lose It, an Invite a Day

April 6, 2017

Edith

With the cognitive change Mom was experiencing, time together didn’t need to be complex – the simpler, the better. An invite a day helped me offer her time to use her curiosity and sense of adventure so that hopefully she wouldn’t lose them.

—excerpt from Living Is for Living: A Caregiver’s Story

Having fun Alzheimer's Disease, Caregiving, Dementia, Eldercare, In the Moment, Time terry@thejoyofcaring.com Leave a Comment

Aren’t We Lucky?

April 3, 2017

Bottom Line? Mom still kicked ass, even with “moderate dementia of the Alzheimer’s type” (doctor’s new diagnosis) as I witnessed at night when I’d go in to tell her I loved her and she’d say: “Aren’t we lucky?”

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info Alzheimer's Disease, Caregiving, Dementia, Eldercare terry@thejoyofcaring.com Leave a Comment

Windows Down, Music Up

April 1, 2017

Mom with Caregivers Samantha and Hannah

I was one of Mom’s caregivers and, so far, I was doing just fine. I could do this. In fact, I loved doing this, even when it was hard, thanks to Mom’s amazing attitude and the incredible support we received.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self Caregiving, Gratitude, Millennials terry@thejoyofcaring.com 2 Comments

Making Time for the One I Chose First

March 30, 2017

July 30, 1988

Time with my spouse, when he had my full attention, was rare. It was time to make an effort to find time together in our life with Mom in our home.

—excerpt from Living Is for Living: A Caregiver’s Story

Finding time Marriage, Pivoting, Reframing, Time terry@thejoyofcaring.com 2 Comments

Tuesday’s Conversation – a week later, on having a stroke in the eye

March 29, 2017

That night, when Mom stood up to go to bed, she looked at me with her one good eye, smiled, and said, “Thank you for helping me to … to try to stay alive.” Not morbid, not dramatic, just straight-forward and true – that was Mom.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info Caregiving, Dementia, Eldercare, Health concerns terry@thejoyofcaring.com Leave a Comment

Step Three, Mid-Air Challenge

March 27, 2017

AA’s Step Three:  “Made a decision to turn our will and our lives over to the care of our Higher Power.” Like the kids when they were young, Mom trusted me so completely it was sobering; it helped to know I wasn’t alone. (See, Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Letting go, Practicing faith Dementia, Eldercare, Parenting, Step 3, The Twelve Steps of AA terry@thejoyofcaring.com 2 Comments

Tuesday’s Conversation – on having a stroke in the eye

March 26, 2017

The day Mom had a stroke in her eye, likely leaving her sight permanently impaired, I went in to say good night. After giving her her medicine, including the long-taken baby aspirin to reduce risk of stroke and the newly prescribed eye drop to reduce the pressure in her injured eye, Mom looked at me and asked, “We had a nice afternoon, didn’t we?”

“Yes, Mom, we had a nice afternoon.”  I hugged her and said, “Thank you for showing me how it’s done.”

—excerpt from Living Is for Living: A Caregiver’s Story

Making peace Dementia, Eldercare, Health concerns terry@thejoyofcaring.com Leave a Comment

The Bottom Line

March 24, 2017

Dad and Me
July 30, 1988

What’s the Bottom Line? My Dad’s catchphrase, the one he came back to, used to bug me. I fought its simplicity, was irritated by his repetitiveness, preferred the complications.

The Bottom line:

My Dad died almost ten years ago.

He was uncomfortable with difficult emotions.

He worked right up to the end.

He drank too much.

He was imperfect.

The Bottom Line:

My Dad was funny.

He was insightful.

He was devoted to my Mom, his clients, and his family.

He is still with me.

He was and is my Dad.

(Written in 2012)

The Bottom Line:

I love you Dad.

I miss you Dad.

I carry you with me every day.

I know you trust me to take care of Mom.

I will do my best to protect her happiness, health and independence without sacrificing my own.

(Added in 2017)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Eldercare, Life after death, Step 3 terry@thejoyofcaring.com Leave a Comment

Memory Loss in the Movies

March 22, 2017

Just because a person can’t remember, it doesn’t mean they can’t be fully present, trying to make sense of the world around them. I’m grateful Mom was near, where we could help.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info Alzheimer's Disease, Eldercare, Memory Loss terry@thejoyofcaring.com Leave a Comment

In My Defense (Why I Write)

March 20, 2017

I am thankful that over the years, I found time to write and to express; this outlet helped me later, much of my time spent within our home caring for Mom.  As she sat beside me, reading her book, I sat beside her, typing away at my computer, thinking, strategizing, having fun.

—excerpt from Living Is for Living: A Caregiver’s Story

Speaking up One day at a time terry@thejoyofcaring.com 4 Comments

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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