I’m Okay: Stay or go? I don’t know. Them or her? I’m not sure. Where to be? Don’t ask me. Either way, I’m okay.
—excerpt from Living Is for Living: A Caregiver’s Story
#marchmadness
Our Game
“I like to help out where I can… to play Terry’s game,” said Mom when the doctor asked her what she liked to do. Here I thought I was helping her with her life, when what she wanted was to help me with mine. Sounded good to me!
—excerpt from Living Is for Living: A Caregiver’s Story
Note to Self
This is not the time to doubt what you’re capable of – this is the time to believe.
(Written along the way on a scrap of paper and stuck in a book)
—from Living Is for Living: A Caregiver’s Story
The Infinity between Now and Then
With Mom in our home, after decades living apart, we had countless moments at each other’s side. Even when time here on earth with our loved ones feels finite, we can still share infinite moments together.
—excerpt from Living Is for Living: A Caregiver’s Story
Celebrating International Women’s Day
Mom and I spent the afternoon at the neuropsychologist’s office. Speaking of honoring women – what a blessing were Mom’s strength, resilience and good humor – it changed everything.
—excerpt from Living Is for Living: A Caregiver’s Story
When Did Forever Start?
So many questions asked along the way: “When did forever start?” Who can say? “Do soldiers have God?” I sure hope so. “Will you ever stop loving me?” Never, no.
—excerpt from Living Is for Living: A Caregiver’s Story
The Baddest Thing I Ever Did
You ask me, “What was the baddest thing you ever did?”
Your seven-year-old innocence hanging there, between us in the air.
At first I shrug, where do I begin?
Someday maybe I’ll share…the baddest thing I ever did:
I said yes when I wish I’d said no…loss of me, loss of health, loss of time for my self.
Too ashamed to write down the details here, after all this time, still filled with fear.
Fear, you’ll love me less, if you only knew.
True love of me – a cliché I know, but one that is true.
Too much, too deep, too painful to pass along – even after all this time,
so I hold it all in and I answer you back,
“Oh, I did my share, but the baddest thing I did was not be honest to others,
to say yes when I wish I’d said no.”
Then I ask you back, “What was the baddest thing you ever did?”
You shrug.
Why didn’t I stick with that?
(A poem for our youngest, 2005)
—from Living Is for Living: A Caregiver’s Story
The Joy of Caring
I titled this blog, with our eldest son’s encouragement, the joy of caring.com, intending to care for Mom in a way that helped me stay healthy, sane, and balanced, so that I could be present for this part of her life in a way she would want, that would benefit my spouse and kids, and that made space for joy, too.
—excerpt from Living Is for Living: A Caregiver’s Story
Letting Go of Anonymity
It was time to be brave, to speak up, and to share publicly, trusting it’d be okay. So I launched this blog, practicing my motto when the kids were young: “Keep It Simple, Keep It Positive, Keep It Fun.”
—excerpt from Living Is for Living: A Caregiver’s Story
Why Blog?
As we cared for 84-year-old Mom, diagnosed a year earlier with Alzheimer’s disease, I realized what a gift to her and to us were the scrapbooks she’d kept and the memoirs she’d penned. I wanted to create my own version of this for us and our kids. I hoped to turn all the writing I’d done into something that could help others, too. In a world where others weren’t afraid to speak up, I hoped to add a voice of hope.
—excerpt from Living Is for Living: A Caregiver’s Story
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