The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Here’s to you Ainty Jono

September 1, 2019

I was lucky that this sweet, funny, intelligent, kick ass, sassy woman was my aunt and that her daughters and their spouses were part of my village. I hoped we’d see Mom through her life with the steady, patient and brave approach that helped them see Aunt Joan through hers. I was thankful to them for showing me that it could be done.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Helping others, Laughing out loud, Speaking up Alzheimer's Disease, Caregiving, Eldercare, Life after death terry@thejoyofcaring.com 6 Comments

On the Edge, aka re-finding balance in caring for a loved one with Alzheimer’s disease

August 29, 2019

Stepping away gave me time to feel Alzheimer’s vastness – like standing beside the Grand Canyon, exhausted, I felt overwhelmed, like I could fall right in. The following summer, during valuable caregiving hours, my spouse and I visited local memory and nursing care facilities. Our options better understood, I could get back to taking it a day at a time and feeling grateful for the moments we still had with Mom in our home. 

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Gathering Info, Learning as we go, Learning from mistakes, Letting go, Looking forward, Maintaining balance, Making peace, Practicing faith, Taking care of self A day at a time, Caregiver burden, Eldercare, Gratitude, Parenting, Step 3 terry@thejoyofcaring.com 10 Comments

Mom at 87

July 19, 2019

Uncategorized terry@thejoyofcaring.com Leave a Comment

Never too old to play basketball

July 7, 2019

It was an honor to be one of 130 Maine athletes to attend the National Senior Games where I played on Team Phoenix. Watching women, ages 50-90, play basketball, not only inspired me, it gave me hope –  I wanted to be kicking ass when I’m in my eighties and beyond too!

—excerpt from Living Is for Living: A Caregiver’s Story

Finding time, Having fun, Learning as we go, Letting go, Maintaining balance, Practicing faith, Taking care of self #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Eldercare, Fun, Gratitude, Health first, Pivoting terry@thejoyofcaring.com 6 Comments

Father’s Day in Albuquerque

June 22, 2019

Me and Dad, circa 1974
Me and Dad, circa 1974

That Father’s Day, sixteen years since Dad died, I heard him heckle when I missed foul shots, laugh when I threw elbows, and cheer when I backed someone down. When I worried about missed opportunities, I recalled his “don’t worry about what’s over and done.” And, when I noticed the 85+-year-old men playing on a neighboring court, I imagined Dad and his killer hook shot in their midst. Too bad I didn’t get that gene!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Laughing out loud, Learning from mistakes, Taking care of self Alzheimer's Disease, Caregiving, Gratitude, Health first, Infinity, Keep it simple, Life after death, Losing a loved one, Marriage, Millennials, One day at a time, Parenting terry@thejoyofcaring.com 8 Comments

This one’s for you Mom

June 15, 2019

Mom, #4, circa 1952, playing college hoops and later
recognized as a scholar-athlete for playing four sports!

Stepping away from caregiving to fly to the 2019 Senior National Basketball Games in New Mexico wasn’t easy. It helped to know that, if she could, Mom would be cheering us on.

—excerpt from Living Is for Living: A Caregiver’s Story

Having fun, Learning as we go, Maintaining balance, Taking care of self, Uncategorized terry@thejoyofcaring.com 6 Comments

RIP little bunny – processing grief in Alzheimer’s and elsewhere, and finding meaning to help us through

May 4, 2019

When I discovered our eleven-year-old bunny rabbit sprawled out in her cage, I was hit with disbelief. Even when death is expected, peaceful, and quick, it can be hard to accept. I’m grateful for my spouse and neighbor Mandy who helped me through.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Laughing out loud, Learning as we go, Letting go, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, Caregiving, Friendship, Gratitude, In the Moment, Keep it simple, Life after death, Losing a loved one, Marriage, One day at a time terry@thejoyofcaring.com 6 Comments

High Fives All Around – We’ve Got This

April 12, 2019

In support of a member facing a cancer diagnosis, her team had handed out bracelets with the words No One FIGHTS Alone! Running errands and thinking of this fierce, kind and resilient athlete, I pulled into Dunkin Donuts for an afternoon pick-up. When the guy in front of me bought my cup of coffee, it was the high five I needed, reminding me to reach out to others too.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Having fun, Helping others, Learning as we go, Maintaining balance, Practicing faith, Taking care of self Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, One day at a time, Parenting, Step 12 terry@thejoyofcaring.com 6 Comments

In Mom’s Words

April 12, 2019

When I thought back on a lifetime with Mom (54 years and counting), I recalled her words, like salve to my soul. As reserved as she was, the words she chose stood out – even the ones that stung when delivered, felt like love now.  

—excerpt from Living Is for Living: A Caregiver’s Stor

Finding time, Having fun, Letting go, Listening first, Making peace, Taking care of self #ENDALZ terry@thejoyofcaring.com 6 Comments

“Excuse Me”- Saving Face and Alzheimer’s disease

December 1, 2018

Helping caregiver Jess shop for her wedding dress

I don’t believe Mom saw Alzheimer’s coming; I do believe, though, that it would have eased her mind to know that she continued to make new friends, bringing joy, humor and grace, and inspiring the rest of us to do the same.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Letting go, Making peace Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage terry@thejoyofcaring.com 10 Comments

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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