The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

Categories

Tags

#ENDALZ #gotitfrommymama Acting as if Alzheimer's Disease Believe Caregiver burden Caregiving COVID-19 Deep Vein Thrombosis Dementia Diverticulitis Eldercare Friendship Fun Gratitude Grief Health concerns Health first Hospice Care Hospitalization Infection In the Moment Keep it simple Life after death Losing a loved one Marriage Memory Loss Millennials One day at a time Parenting Pets Pet Therapy Pivoting Prednisone side effects Reframing Siblings Step 3 Step 4 Step 9 Step 11 Step 12 The Twelve Steps The Twelve Steps of AA Time Working outside the home

  • Reading List
  • Contact Me

In Mom’s Words

April 12, 2019

When I thought back on a lifetime with Mom (54 years and counting), I recalled her words, like salve to my soul. As reserved as she was, the words she chose stood out – even the ones that stung when delivered, felt like love now.  

—excerpt from Living Is for Living: A Caregiver’s Stor

Finding time, Having fun, Letting go, Listening first, Making peace, Taking care of self #ENDALZ terry@thejoyofcaring.com 6 Comments

“Excuse Me”- Saving Face and Alzheimer’s disease

December 1, 2018

Helping caregiver Jess shop for her wedding dress

I don’t believe Mom saw Alzheimer’s coming; I do believe, though, that it would have eased her mind to know that she continued to make new friends, bringing joy, humor and grace, and inspiring the rest of us to do the same.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Letting go, Making peace Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage terry@thejoyofcaring.com 10 Comments

#tbt Making Peace with Mom’s DNR

November 15, 2018

Dear Higher Power, Please help me to take heroic measures to love and care for Mom, to help her continue to live healthy and well – not to prolong the time when she is failing and unwell. Please help me to never give up, and also to let go when the time comes. Please help me to honor Mom while she is alive, and also when she dies. A DNR – natural death – is the right choice – it’s a choice my Mom has made. It’s a choice I agree with. It’s a choice that hurts and relieves. It’s a choice I need to respect. Please help me to find peace with Mom’s DNR. Thy will be done. Amen

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go, Letting go, Listening first, Maintaining balance, Making peace, Practicing faith Alzheimer's Disease, Caregiving, Gratitude, Keep it simple, One day at a time terry@thejoyofcaring.com 4 Comments

Simple Kindness

October 24, 2018

When in doubt

In a world with atrocity, apathy, anxiety, distraction and just plain busy-ness, I was touched by all the simple kindnesses that helped me as I helped Mom. Thanks to those simple, and often unexpected, kindnesses, the pieces of our life in Maine were starting to fall into place.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Learning as we go, Maintaining balance, Making peace, Taking care of self Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, One day at a time, Parenting terry@thejoyofcaring.com 4 Comments

What is basketball? – aka caring for me

August 3, 2018

When a coach at the Not Too Late, women over 50, basketball camp said, “you’re only as strong as your biggest weakness,” her words resonated, giving me reason to keep working on me, on the court and off.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, Marriage, Parenting terry@thejoyofcaring.com 8 Comments

#tbt when meds are a mess, aka take note(s) and speak up

April 26, 2018

Photos courtesy of our caregiver Karly, showing she’d cut pill in half and was making the day great!

I was grateful for my husband and kids and our awesome caregivers who spent enough time with Mom to know her well, to let me know what they saw, and to make sure she got her meds when I stepped away.

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go Alzheimer's Disease, Caregiving, Eldercare, Gratitude, Health concerns, Medicine Side Effects terry@thejoyofcaring.com Leave a Comment

Happy Easter!

April 1, 2018

I was grateful, too, that these days, I could sit at Mom’s side, no words necessary, knowing she felt my love and that it was the emotionality I once felt sorry about, that fueled me now in her daily care.

—excerpt from Living Is for Living: A Caregiver’s Story

 

Making peace Alzheimer's Disease, Gratitude, Losing a loved one, Parenting, Step 4 terry@thejoyofcaring.com 2 Comments

Sandwiched – caring for Mom, while caring for kids

February 18, 2018

2004                             2018

There’s plenty of literature out there about the challenge of being part of the “Sandwich Generation.” I too have sleepless nights worrying about Mom, as well as the kids. At the same time, I gotta admit, it’s pretty cool.

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance #ENDALZ, Alzheimer's Disease, Caregiving, Generation X, Gratitude, Health first, In the Moment, Keep it simple, Millennials, One day at a time, Parenting terry@thejoyofcaring.com 2 Comments

Thank You for That, aka an Attitude of Gratitude

February 8, 2018

I was especially grateful for the wisdom and support I received from so many places, including Mom – she may have forgotten some things due to Alzheimer’s, however there was an awful lot else she still reminded me to appreciate.

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance #ENDALZ, #gotitfrommymama, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, Parenting, Pets terry@thejoyofcaring.com 2 Comments

January Freeze, Step Two’s Coming to Believe

February 5, 2018

IMG_0970

AA’s Step Two: “Came to believe a power greater than ourselves can restore us to sanity.” When offering Mom the paper birds to touch and the memory of our home in Wisconsin to connect didn’t soothe her, I took down the mobile and put it in a drawer. Sometimes, we just gotta believe someone we trust can take our worries away. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith #ENDALZ, Acting as if, Alzheimer's Disease, Anxiety, Caregiving, Depression, Friendship, Gratitude, Keep it simple, Marriage, Parenting, The Twelve Steps terry@thejoyofcaring.com 4 Comments

  • « Previous Page
  • 1
  • …
  • 3
  • 4
  • 5
  • 6
  • 7
  • …
  • 16
  • Next Page »

Pages

  • Reading List
  • Contact Me

Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

Spam Blocked

5,668 spam blocked by Akismet

Subscribe to Blog via Email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 54 other subscribers

© 2026 ·Journey · by WPStud.io