The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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#ENDALZ #gotitfrommymama Acting as if Alzheimer's Disease Believe Caregiver burden Caregiving COVID-19 Deep Vein Thrombosis Dementia Diverticulitis Eldercare Friendship Fun Gratitude Grief Health concerns Health first Hospice Care Hospitalization Infection In the Moment Keep it simple Life after death Losing a loved one Marriage Memory Loss Millennials One day at a time Parenting Pets Pet Therapy Pivoting Prednisone side effects Reframing Siblings Step 3 Step 4 Step 9 Step 11 Step 12 The Twelve Steps The Twelve Steps of AA Time Working outside the home
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Healing as We Go – UTIs and Mohs Nose, Mom and Me

October 12, 2017

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As my spouse and I drove 1400 miles to Maine where we’d set up shop for Mom and Cinnamon to join us, I tried to be brave, to count my lucky stars, to practice my faith. Fingers crossed, in prayer and gratitude.

—excerpt from Living Is for Living: A Caregiver’s Story

Making peace, Practicing faith #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiving, Eldercare, Keep it simple, Losing a loved one, Marriage, Millennials, Mohs procedure, Parenting, UTI, Working outside the home terry@thejoyofcaring.com Leave a Comment

Fingers Crossed, all packed up and ready to go

October 9, 2017

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Getting Mom back to Maine among family and friends, the ocean near, was my own bucket list odyssey.  My counselor said, “Some dreams do come true.” I hoped she was right.

—excerpt from Living Is for Living: A Caregiver’s Story

 

Practicing faith #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Gratitude, Marriage, One day at a time terry@thejoyofcaring.com 4 Comments

Step Ten, “Progress Not Perfection”

October 5, 2017

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AA’s Step Ten: “Continued to take personal inventory and when we were wrong promptly admitted it.” These days, with how Mom’s Alzheimer’s anchors her in the moment, I’m grateful for how this slogan and Step Ten help me stay right here with her. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, Marriage, One day at a time, Parenting, Progress not Perfection, Step 10, The Twelve Steps of AA terry@thejoyofcaring.com Leave a Comment

Glad to be Acadia Manset’s Granddaughter

October 2, 2017

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Grammy, aka Acadia Manset (1991)

Sorting through Grammy’s records, I discovered she’d written under the pen name Acadia Manset, for her favorite haunts in Maine. The way she’d cared for her aging mother, Dora, inspired me to care for my mom like she had, in the sanctity of our home.

—excerpt from Living Is for Living: A Caregiver’s Story

Listening first #ENDALZ, Alzheimer's Disease, Caregiving, Eldercare, Grandparenting, Gratitude, Life after death, One day at a time, Parenting terry@thejoyofcaring.com 2 Comments

“Retiring” the Car Keys, i.e. Driving Lala

September 29, 2017

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Mom’s 85th birthday, photo cred to our caregiver Hannah

When I reminded her that her license had expired and reassured her that I’d be happy to drive her anywhere she wanted to go, Mom nodded and smiled. What a relief that the driving question was behind us.

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Alzheimer's Disease, Dementia and Driving, Eldercare, Millennials terry@thejoyofcaring.com Leave a Comment

Celebrating G

September 26, 2017

How could we be so blessed a third time around? He’s so many things…among them a constant reminder that this is not a limited supply of love and beauty we are dealing with, it’s an endless one.

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Gratitude, Millennials, One day at a time, Parenting, Pets terry@thejoyofcaring.com 2 Comments

Nine Squares

September 21, 2017

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Whole Life Grid a la Susan Jeffers, PhD, Feel the Fear and Do It Anyway

According to the sign out front of a local church, “THERE IS A TIME FOR EVERYTHING.  BE SURE TO MAKE TIME FOR GOD.” My middle square – “Spirituality and Faith” was a great place to start!

—excerpt from Living Is for Living: A Caregiver’s Story

Finding time, Taking care of self #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Health first, In the Moment, Marriage, Parenting, Pets, Step 9 terry@thejoyofcaring.com Leave a Comment

Moving Mom (again)

September 19, 2017

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Mom loved the fact this guy never stopped smiling, even in strong winds!

Of the many difficult decisions we’d made in caring for Mom, one of the most challenging was moving her away from her home in Maine. The time had come to move her back. Fingers crossed her health would remain stable until we got her there.

—excerpt from Living Is for Living: A Caregiver’s Story

Looking forward Alzheimer's Disease, Caregiving, Friendship, Gratitude, Life after death, Marriage, Millennials, Parenting, Step 9 terry@thejoyofcaring.com 2 Comments

“First Things First”

September 14, 2017

Starting to feel breathless with all the What Ifs, I remembered this AA slogan. The nurse drew blood and collected urine in record time and, free to go, I asked Mom what she wanted for lunch. “Something meaty,” she replied: First Things First!

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Maintaining balance #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Diverticulitis, Gratitude, Health first, Infection, One day at a time, Step 9 terry@thejoyofcaring.com 4 Comments

“Lady Girl” – aka when Mom forgets who I am

September 13, 2017

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Mom had referred to me as her sister and her friend. Then, as Tramadol messed with her mind, she asked me if I’d be her secretary and later, my personal favorite, her “Lady Girl.” I was just glad she still knew I was on her side.

—excerpt from Living Is for Living: A Caregiver’s Story

Letting go Alzheimer's Disease, Caregiving, Friendship, Gratitude, Losing a loved one, Marriage, One day at a time, Step 9 terry@thejoyofcaring.com 17 Comments

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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