Aileen Fisher, illustrated by Stefano Vitale, The Story of Easter (Harper Collins Publishers, 1997).
Al-Anon Family Group Headquarters, Inc., Al-Anon’s Twelve Steps & Twelve Traditions (Virginia Beach, VA: Al-Anon Family Group Headquarters, Inc., 1981). See also, Hazelden, Step Four: Getting Honest (Center City, MN: Hazelden Foundation, 1992); Alateen’s 4th Step Inventory (Virginia Beach, VA: Al-Anon Family Group Headquarters, Inc., 1989); William G., AA cofounder, Alcoholics Anonymous: The Story of How Many Thousands of Men and Women Have Recovered from Alcoholism, commonly referred to as “The Big Book” (New York, NY: Alcoholics Anonymous World-Wide Services, Inc., 1976).
Alzheimer’s Association, “Creating Your Care Team,” www.alz.org.
Alzheimer’s Association, “Daily Care Plan,” www.alz.org. See also, Camille Peri, “Alzheimer’s Disease: A Caregiver’s Checklist for Daily Care,” www.webmd.com.
Alzheimer’s Association, “Do not resuscitate (DNR),” www.alz.org. See also, Susan M. Matthews, PhD, “CPR Versus DNR for the Elderly Patient,” www.lifemattersmedia.org (8/19/2016); Michael Gordon, MD, MSC, FRCPC, “The Role of CPR in the Elderly,” www.hmpgloballearningnetwork.com (4/19/2013).Kevin M. Dirksen, MDiv, MSC, HEC-C, and Neil S. Wenger, MD, MPH, “For elderly patients, CPR unlikely to be the right medicine,” www.pressherald.com (3/19/2013); Paul C. McLean, “CPR more often prolongs seniors’ suffering than saves lives,” www.theguardian.com (3/5/2013); The Family Caregiver Alliance, “Advanced Illness: CPR and DNR,” www.caregiver.org (12/31/2004).
Alzheimer’s Association, “End-of-Life Decisions, Honoring the Wishes of a Person with Alzheimer’s Disease,” www.alz.org.
Alzheimer’s Association, “Grief and Loss as Alzheimer’s Progresses,” www.alz.org. See also, Paula Spencer Scott, “Anticipatory Grief: How to Cope with the ‘Living Death’ of Alzheimer’s,” www.caring.com (updated 4/24/2017); Sid Kirchheimer, reviewed by Brunilda Nazario, MD, “Caregiver Grief Triggers Mixed Emotions,” www.webmd.com.
Alzheimer’s Association, “In Home Care,” www.alz.org. See also, Family Caregiver Alliance, “Hiring In-Home Help,” www.caregiver.org; Erik Johnson, “How to start paying your caregiver on the books: Six steps to transition your nanny or senior caregiver from being paid under the table,” www.care.com (7/16/2021).
Alzheimer’s Association, “Medication Safety,” www.alz.org. See also, The American Geriatrics Society 2012 Beers Criteria Update Expert Panel, “American Geriatrics Society updated Beers criteria for potentially inappropriate medication use in older adults,” Journal of the American Geriatrics Society, 2012; 60:616–31; Mark D. Coggins, “Tramadol Safety Concerns,” Today’s Geriatric Medicine Vol. 8 No. 4, www.todaysgeriatricmedicine.com; The American College of Gastroenterology, “Ulcers and Gastrointestinal Bleeding: Protecting Your Health—What you should know about the safe and appropriate use of common pain medications,” www.illinoisgastro.com; Caregiver’s Forum Message Board, “Alzheimer’s Patient Worse Now Taking Prednisone,” www.alzconnected.org (1/5/2012).
Alzheimer’s Association, “New Alzheimer’s Association Survey Reveals Dramatic Impact of Alzheimer’s Disease on Families,” www.alz.org (6/1/2017). See also, Scott, “How to Avoid Strained Sibling Relationships When a Parent Has Alzheimer’s,” www.caring.com (7/3/2017); Scott, “7 Ways to Save Your Relationships from Caregiver Stress,” globalag.igc.org (New America Media, 3/17/2012).
Alzheimer’s Association, “Parent’s Guide, Helping Children and Teens Understand Alzheimer’s Disease,” www.alz.org.
Alzheimer’s Association, “Risk Factors,” www.alz.org. See also, Claudia Wallis, “The Sleep–Dementia Connection,” apple.news (4/16/2019); Catharine Paddock, PhD, “Study links severe gum disease to raised dementia risk,” www.medicalnewstoday.com (3/20/2019); David Railton, “Herpes may account for 50 percent of Alzheimer’s cases,” www.medicalnewstoday.com (10/19/2018); Harrison Wein, PhD, “Sleep deprivation increases Alzheimer’s protein,” www.nih.gov (4/24/2018); Nicholas J. Justice, “The relationship between stress and Alzheimer’s disease,” www.ncbi.nlm.nih.gov (4/21/2018); Sandee LaMotte, “Can poor sleep lead to Alzheimer’s or dementia?” www.cnn.com(8/23/2017); Tara Bahrampour, “Interrupted Sleep may lead to Alzheimer’s, new studies show,” www.washingtonpost.com (7/18/2017); Lund University, “Gut bacteria may play a role in Alzheimer’s disease,”www.sciencedaily.com (2/10/2017); James M. Ellison, MD, MPH, Swank Center for Memory Care and Geriatric Consultation, ChristianaCare, “Infections that Can Cause Dementia,” www.brightfocus.org (11/14/16, updated 7/15/21); Fiona MacDonald, “Scientists Identify a Virus and Two Bacteria That Could Be Causing Alzheimer’s, ‘We can’t keep ignoring the evidence,’” www.sciencealert.com (3/11/2016); Priya Maheshwari and Guy D. Eslick, The University of Sydney, Penrith, NSW, Australia, “Bacterial Infection and Alzheimer’s Disease: A Meta-Analysis,” www.alzheimersanddementia.com (2014); Amy M. Collins, associate ed., “Fecal Impaction and Dementia: Knowing What to Look for Could Save Lives,” ajnoffthecharts.com.
Alzheimer’s Association, “Treatments for Sleep Changes,” www.alz.org. See also, Amanda Gardner, “Alzheimer’s and Sleep Problems,” www.webmd.com.
CDC, “People who are at higher risk for severe illness,” www.cdc.gov (3/26/2020). See also, Alzheimer’s News Today, “Information About COVID-19 for Alzheimer’s Disease Patients,” alzheimersnewstoday.com (3/24/2020); Tanner Jensen, “Dr. James Ellison: How to Keep People with Dementia Safe from Coronavirus,” www.beingpatient.com (3/5/2020);Tal Axelrod, “Maine issues stay-at-home order,” thehill.com (3/31/20).
Alzheimer’s Society, “Delirium,” www.alzheimers.org.uk.
Amanda Jellig, “1 year later: a look back at the worst wind-storm in Maine’s history,” wgme.com (10/28/2018).
Arnold Mindell, Dreambody: The Body’s Role in Revealing the Self (Sigo Press, 1982), as discussed in: Gregg Levoy, Callings: Finding and Following an Authentic Life (New York, NY: Three Rivers Press, 1997).
Atul Gawande, Being Mortal: Medicine and What Matters in the End (New York, NY: Metropolitan Books, 2014).
Barbara Cooney, Miss Rumphius (Puffin Books, 1982).
Barry Reisberg, MD, see “What Are the 7 Stages of Alzheimer’s Disease?” www.alzheimers.net.
Brenda Barron, “9 Tips for Managing Sandwich Generation Stress,” www.care.com.
“Can Milk of Magnesia Relieve Constipation?” www.healthline.com.
Carole B. Larkin, “How to Take Care of a Dementia Patient in the Hospital,” www.alzheimersreadingroom.com (12/6/2016).
Carol Staudacher, A Time to Grieve: Meditations for Healing after the Death of a Loved One (New York, NY: HarperOne, 1994).
Caroline Knapp, Drinking: A Love Story (New York, NY: The Dial Press, 1996).
Catherine Salmon, PhD, and Katrin Schumann, The Secret Power of Middle Children: How Middleborns Can Harness Their Unexpected and Remarkable Abilities (New York, NY: Hudson Street Press).
Charlie Lopresti, “Powerful nor’easter hits Maine, thousands without power,” wgme.com (10/17/2019).
David B. Feldman, PhD, “Why the Five Stages of Grief Are Wrong: Lessons from the (non-) stages of grief,” www.psychologytoday.com(7/7/2017). See also, David Kessler, Finding Meaning: The Sixth Stage of Grief (New York, NY: Scribner, 2019); “The Sixth Stage of Grief with David Kessler,” www.onecommune.com(6/11/2020); Christina Gregory, PhD, “The Five Stages of Grief:An Examination of the Kubler-Ross Model,” www.psycom.net (updated 9/23/2020).
Connie Matthiessen, senior ed., “Marriage and Relationships: How Caregiving Couples Can Make It Work,” www.caring.com (updated 5/16/2017). See also, Matthiessen, “Love and Marriage (and Caregiving): Caring.com’s Marriage Survey,” www.caring.com (12/3/2016).
Daily Caring, “3 Ways to Reduce Caregiver Stress with Positive Self Talk,” “10 Ways Caregivers Can Take a Quick Break Right Now,” “3 Ways to Manage Caregiver Stress and Prevent Burnout,” and “Stop Caregiver Stress from Killing You,” dailycaring.com.
Dale Carnegie, How to Win Friends & Influence People: The Only Book You Need to Lead You to Success (New York, NY: Gallery Books, 1936).
Daniel J. DeNoon, reviewed by Louise Chang, MD, “Pain a Problem in Alzheimer’s Disease, Undertreated Pain Plagues Alzheimer’s Patients Who Hurt, but Can’t Tell,” www.webmd.com (9/22/2006). See also, Wilco P. Achterberg, et al., “Pain management in patients with dementia,” www.ncbi.nlm.nih.gov (11/1/2013).
Darcy Wakefield, I Remember Running: The Year I Got Everything I Ever Wanted—and ALS (New York, NY: Marlowe & Company, 2005).
Definition of synchronicity, www.lexico.com.
“Diverticulitis,” www.webmd.com, reviewed since by Neha Pathak, MD (9/16/2021).
Don Miguel Ruiz, MD, with Janet Mills, The Four Agreements: A Practical Guide to Personal Freedom, A Toltec Wisdom Book (San Rafael, CA: Amber Allen Publishing, 1997).
Donna Schempp, LCSW, “Ten Real-Life Strategies for Dementia Caregiving,” www.caregiver.org.
Douglas the Rabbit (1967-76) by my Dad, the story of a rabbit whose curiosity led to many exciting adventures.
Edie Thys Morgan, “Losing my Mom to Alzheimer’s, Then Finding Her Again: I wish someone had told me about the beauty that waited at the end of this journey, www.nytimes.com (5/9/2020).
F.T. Cohen, et al., “The marriage and family experience: Intimate relationships in a changing society,” en.m.wikipedia.org (2011).
“Grief and the Holidays, dealing with the pain,” grief.com. See also, Litsa Williams, “64 Tips for Coping with Grief at the Holidays,” whatsyourgrief.com (12/3/2019); Tish Harrison Warren, “Want to Get into the Christmas Spirit? Face the Darkness: How I fell in love with the season of Advent,” www.nytimes.com (11/30/2019); Anthony Komaroff, MD, Harvard Health Letter, “Coping with grief and loss during the holidays,” www.health.harvard.edu (updated 12/1/2017); Amy Morin, “How to Deal with Grief During the Holidays: The holidays can be the toughest time of the year,” www.psychologytoday.com (12/21/2015).
Heidi Godman, executive ed., Harvard Health Letter, “Regular exercise changes the brain to improve memory, thinking skills,” www.health.harvard.edu (updated 11/29/2016).
“How to Give Your Parent a Peaceful Passage: 9 Pieces of Bedside Wisdom,” www.parentgiving.com. See also, Donna Authers, “How to Support a Loved One Who Is Dying,” www.agingcare.com; R.M. Vaughan, “What to expect when your parent is dying,” www.thegloveandmail.com (1/1/2015, updated 5/12/2018).
“If a tree falls in a forest,” en.wikipedia.org.
Jason Samenow, “More than 1 million power outages in the Northeast after blockbuster fall storm,” www.washingtonpost.com (10/30/2017).
Jeffrey M. Schwartz, MD, and Beverly Beyette, Brain Lock: Free Yourself from Obsessive-Compulsive Behavior, A Four-Step Treatment Method to Change Your Brain Chemistry (New York, NY: Harper Perennial, 2016).
Jennifer Wegerer, “The Connection Between UTIs and Dementia,” www.alzheimers.net (6/26/2017). See also, Marlo Sollitto, “Urinary Tract Infections in the Elderly,” www.agingcare.com (6/19/2017).
John Bradshaw, Healing the Shame That Binds You (Deerfield Beach, FL: Health Communications, Inc., 1988).
John Green, The Fault in Our Stars (Dutton Books, 2012).
John B. Adams, MD, and David A. Margolin, MD, “Management of Diverticular Hemorrhage,” www.ncbi.nlm.nih.gov. See also, Deepak Gunjan, et al., “Small bowel bleeding: a comprehensive review,” www.ncbi.nlm.nih.gov; John P. Cunha, DO, FACOEP, and Bhupinder Anand, MD, “Gastrointestinal Bleeding,” www.emedicinehealth.com (10/17/2016); Mayo Clinic staff, “Capsule Endoscopy,” www.mayoclinic.org (9/8/2015); Otto S. Lin, “Performing colonoscopy in elderly and very elderly patients: Risks, costs and benefits,” www.ncbi.nlm.nih.gov (6/16/2014); Maxwell Chait, MD, “Lower Gastrointestinal Bleeding in the Elderly,” www.managedhealthcareconnect.com (9/5/2008); T.O. Kovacs, “Small Bowel Bleeding,” www.ncbi.nlm.nih.gov (2005).
Judy Flickinger, Spirit Matters: How to Remain Fully Alive with a Life-Limiting Illness (Mustang, OK: Tate Publishing & Enterprises, 2009).
Kathleen Allen, LCSW, C-ASWCM, “Alzheimer’s Disease: The Magic of Pets,” www.brightfocus.org. See also, Anne-Marie Botek, “Canine Caregivers Improve the Lives of People with Alzheimer’s Disease” www.agingcare.com; Being Patient, “Good Dogs: Dementia Service Dogs Provide Patients, Caregivers with Improved Quality of Life,”www.beingpatient.com (12/28/2018).
Kierstan Boyd, reviewed by Robert H. Janigian Jr., MD, “What Is a Stroke Affecting the Eye?” www.aao.org (10/14/15).
Lisa Steele-Maley, Dean of the Chaplaincy Institute of Maine, Arriving Here: Reflections from the Hearth and Trail(USA: Lampryridae, LLC, 2020). See also, Steele-Maley, Without a Map: A Caregiver’s Journey through the Wilderness of Heart and Mind (San Antonio, TX: Turning Stone Press, 2018).
Liz Neporent, “Strep Throat May Cause OCD, and 5 Other Surprising Facts,” abcnews.go.com (January 29, 2013).
Lulu Wang, The Farewell, www.scriptslug.com.
Maggie Oman Shannon, The Way We Pray: Prayer Practices from Around the World (Berkeley, CA: Conari Press, 2001).
Mayo Clinic staff, “Deep vein thrombosis (DVT),” www.mayoclinic.org. See also, “Inferior Vena Cava Filter Placement and Removal,” www.radiologyinfo.org.
Mayo Clinic, “Empty nest syndrome: Tips for coping,” en.m.wikipedia.org (retrieved February 9, 2013).
Mayo Clinic, “Sed rate (erythrocyte sedimentation rate),” www.mayoclinic.com (8/10/2021).
Melinda Smith, MA, et al., “Preventing Alzheimer’s Disease and Dementia—or Slowing Its Progress,” www.helpguide.org (updated 3/2021).
Melody Beattie, The Language of Letting Go (USA: Hazelden Publishing, 1990). See also, Beattie, Codependent No More: How to Stop Controlling Others and Start Caring for Yourself (San Francisco, CA: Harper/Hazelden, 1987).
mirabai starr, Wild Mercy: Living the Fierce and Tender Wisdom of the Women Mystics, (Boulder, CO: sounds true, 2019).
“Munchausen Syndrome by Proxy,” www.webmd.com (5/18/16).
Nancy L. Mace, MA, and Peter V. Rabins, MD, MPH, The 36-Hour Day, A Family Guide to Caring for People Who Have Alzheimer’s Disease, Related Dementias, and Memory Loss (New York, NY: Grand Central Life & Style, 2011).
National Institute of Health (NIH) National Institute on Aging (NIA), “Managing Money Problems in Alzheimer’s Disease,” www.nia.nih.gov (reviewed 5/18/2017).
“2019 National Senior Games Presented by Humana Boasts Record-High Athlete Attendance,” nsga.com (June 10, 2019).
Patti Kerr, I Love You…Who Are You? Loving and Caring for a Parent with Alzheimer’s (Flemington, NJ: Along the Way Press, 2010).
Paula Spencer Scott, Surviving Alzheimer’s: Practical Tips and Soul-Saving Wisdom for Caregivers (San Francisco, CA: Eva Birch Media, 2018).
“Prednisone Tablet, Delayed Release (Enteric Coated)—Uses, Side Effects, and More,” www.webmd.com.
Robert B. Santulli, MD, and Kesstan Blandin, PhD, The Emotional Journey of the Alzheimer’s Family (Hanover, NH: Dartmouth College Press, 2015).
Sam Sellers, president of Dignity Enterprises, Inc., Finding Freedom at Home: The Ultimate Guide to Home Care (Little Rock, AR: Paperback Expert, 2013).
Sarah Shepley, Interfaith Minister, “The Wisdom of Trauma,” a workshop provided by the Chaplaincy Institute of Maine (11/7/2021).
Skin Cancer Foundation, “Mohs Micrographic Surgery: An Overview,” www.skincancer.org.
Susan Howe, Interfaith Chaplain, “Reconnecting with Nature,” a workshop provided by the Chaplaincy Institute of Maine (10/4/2020).
Susan J. Jeffers, PhD, Feel the Fear and Do it Anyway: Dynamic Techniques for Turning Fear, Indecision, and Anger into Power, Action, and Love (New York, NY: Ballantine Books, 1987).
Tara Bahrampour, “Changing ‘the tragedy narrative’: Why a growing camp is promoting a more joyful approach to Alzheimer’s,” www.washingtonpost.com (2/21/2019).
“Your Rights Under HIPAA,” www.hhs.gov.
W. Gifford-Jones, MD, “Use it or lose it, Studies show that increased activity translates into greater brain power,” www.pressreader.com (1/31/2017).
