The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Happy New Year!

January 1, 2018

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Reflections, December 2017

In Barbara Cooney’s Ms. Rumphius, a young girl tells her elderly aunt, “When I grow up, I too will go to faraway places, and when I grow old, I too will live beside the sea” to which her aunt responds, “There is a third thing you must do. You must do something to make the world more beautiful.”

—excerpt from Living Is for Living: A Caregiver’s Story

Speaking up #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, In the Moment, Keep it simple, Losing a loved one, Marriage, One day at a time, Parenting terry@thejoyofcaring.com 8 Comments

The Cherry On Top, getting Mom back to Maine

December 20, 2017

“When we get to Maine…” Mom often said, as she sat in our new home, here in Maine. Then, returning in the snow from the doctor’s office, we passed the dentist she’d gone to for five decades. “Dr. Ortengren…” she read aloud from the sign, and then turned toward me with a, “I guess we’re home.”

—excerpt from Living Is for Living: A Caregiver’s Story

Making peace #ENDALZ, Alzheimer's Disease, Caregiving, Detachment, Eldercare, Gratitude, Keep it simple, One day at a time, Parenting, Step 12 terry@thejoyofcaring.com 6 Comments

Looking for the Right Words, in Alzheimer’s and Elsewhere

December 18, 2017

IMG_0344-1The wonder of it is, finding and using a more loving language is something we can all do, here and now, to make the world more beautiful.

Learning as we go #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, One day at a time, Parenting, Siblings, Step 12 terry@thejoyofcaring.com 2 Comments

Paradiso Found, aka reversing the jinx : )

December 11, 2017

In response to the carpenter’s “this place is jinxed,” I chose Paradiso blue for the upstairs floor. Thank God for humor, animals, friendship and faith for keeping me on track; those, and Mom, who was not one bit superstitious and who knew paradise when she saw it, even with one eye.

—excerpt from Living Is for Living: A Caregiver’s Story

Laughing out loud, Practicing faith #ENDALZ, #gotitfrommymama, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, One day at a time, Pets, Reframing, Step 12 terry@thejoyofcaring.com 2 Comments

#TBT – Helping Mom Manage her Finances

December 7, 2017

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Mom’s Calculator

Helping Mom manage her finances was an important step in her care, one I’m glad we took, despite our discomfort, before another loss.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning from mistakes #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiving, Eldercare terry@thejoyofcaring.com Leave a Comment

Sweet Dreams, aka taking care of caregiver

November 30, 2017

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Fitbits don’t lie!

It hadn’t made sense to get mad at the kids for disrupted sleep, nor did it make sense to get irritated with Mom.  I just had to make a plan to get some shut-eye and stick with it.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, Alzheimer's Disease, Caregiver burden, Caregiving, Eldercare, Gratitude, Health first, Keep it simple, Parenting, Step 11 terry@thejoyofcaring.com Leave a Comment

Just Plain Thankful

November 23, 2017

Joan and Laures, mission accomplished
Thanksgiving brunch at camp in Belgrade, Maine

Mission accomplished. 170 years looked pretty damn good.

—excerpt from Living Is for Living: A Caregiver’s Story

Having fun #ENDALZ, Alzheimer's Disease, Caregiving, Eldercare, Gratitude, One day at a time terry@thejoyofcaring.com Leave a Comment

“Hot Tamale” and the Blessing of Awesome Caregivers

November 14, 2017

I met Hannah when I coached her on a fast-pitch softball team. I never anticipated that it would be Hannah, ten years later, who’d help us care for Mom. No surprise, Hannah was a great teammate!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Practicing faith #ENDALZ, Alzheimer's Disease, Caregiver burden, Caregiving, Eldercare, Friendship, Gratitude, Health first, Millennials, Step 11 terry@thejoyofcaring.com Leave a Comment

Post DVT Haikus

November 9, 2017

Deep vein thrombosis, her leg all swollen and blue, and we feared a bleed.

On blood thinner now, filter protecting her lungs, home to recover.

Compression stocking, why are you so freakin’ tight? No more blood clots, right?

Noticing the bench, “I played piano on that…” she says with a smile.

“Is that Mother’s chair?” I nod at the needlepoint, “Is she still around?”

“About the baby, can we make a plan to see?” a great grandma now.

Behind her at work, the builder pounding away, making our home sound.

Ever resilient, her eyes as blue as the sea, a cat with nine lives.

Mom sits with a book, dog in lap rocking a way, a smile on my face.

Eighty-five years young, expect the unexpected, one day at a time.

—from Living Is for Living: A Caregiver’s Story

Having fun #ENDALZ, Alzheimer's Disease, Caregiving, Deep Vein Thrombosis, Gratitude, Health first, Keep it simple, One day at a time, The Twelve Steps of AA terry@thejoyofcaring.com 2 Comments

Step Eleven, I Am Not Alone

November 1, 2017

AA’s Step Eleven: “Sought through prayer and meditation to improve our conscious contact with our Higher Power, praying only for knowledge of our Higher Power’s will for us and the power to carry that out.” When I’m feeling anxious and need a hand to hold, I can hold my own. Then I’ll find my hands are joined in prayer, and I am not alone. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith, Uncategorized Acting as if, Alzheimer's Disease, Caregiving, Eldercare, Gratitude, Keep it simple, Marriage, One day at a time, Parenting, Step 11 terry@thejoyofcaring.com Leave a Comment

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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