After a tough day, a nurse roused Mom for her night time medicine; afterward, when I told Mom how much I loved her, she smiled and said, “I love you too, thank you for helping me.”
—excerpt from Living Is for Living: A Caregiver’s Story
Reflections of a Daughter of the Silent Generation and Mother of Generation Y
After a tough day, a nurse roused Mom for her night time medicine; afterward, when I told Mom how much I loved her, she smiled and said, “I love you too, thank you for helping me.”
—excerpt from Living Is for Living: A Caregiver’s Story
Mom suddenly sat up in bed. i stopped her before she ripped out the tube in her side. when i handed her her hearing aid, she tried to put it in her mouth. it was time for memory dog to step aside and call in the big dog.
—excerpt from Living Is for Living: A Caregiver’s Story
It was the first time I’d signed a consent form on Mom’s behalf. As I waited for her bone marrow biopsy, I realized I was like a seeing eye dog, only my job was to provide short-term memory. When I told Mom later that I was happy to be her memory dog, she smiled groggily and asked me where my tail was.
—excerpt from Living Is for Living: A Caregiver’s Story
Maybe for worriers, it’s a blessing to forget – what we cannot remember, we cannot fret. Somewhere in the middle, we may get stuck – then we’re totally, shit out of luck. Unless we have someone, standing right there – to give us a smile and offer us care. Being the one to get it done – can be a bit much and sometimes not fun. Being a part of a bigger team – that is the way, the way that redeems. : )
—from Living Is for Living: A Caregiver’s Story
Vacation (noun)(vā-kā′shən, və-) “A period of time devoted to pleasure, rest, or relaxation”(thefreedictionary.com) … the sun on the horizon, the wind in the palms, the waves on the beach, my family in their beds asleep, and Mom at home safe and sound …
“… a period spent away from home or business in travel or recreation …”(merriam-webster.com)… exploring new places, reading a book just for fun, closing my eyes – sun on my hat, sand under my feet, enjoying new foods prepared by another, talking and laughing, together, apart …
“… the time during which a person temporarily ceases regular duties of any kind and performs other activities … typically used for rest, travel, or recreation, but may be used for any purpose …” (webster-dictionary.org)… I step away, I unravel, I rejuvenate, I rediscover, and I look forward to returning home to Mom.
—from Living Is for Living: A Caregiver’s Story
Fifteen hundred miles from home and I was still worried about Mom. The wild weather at sea turned out to be exactly what I needed—like Dad was taking care of me from above, dumping water on my head, changing things up, and reminding me to accept when I’m not in control, to ride it out, and to let myself have some spontaneous fun.
—excerpt from Living Is for Living: A Caregiver’s Story
With the cognitive change Mom was experiencing, time together didn’t need to be complex – the simpler, the better. An invite a day helped me offer her time to use her curiosity and sense of adventure so that hopefully she wouldn’t lose them.
—excerpt from Living Is for Living: A Caregiver’s Story
Bottom Line? Mom still kicked ass, even with “moderate dementia of the Alzheimer’s type” (doctor’s new diagnosis) as I witnessed at night when I’d go in to tell her I loved her and she’d say: “Aren’t we lucky?”
—excerpt from Living Is for Living: A Caregiver’s Story
Just because a person can’t remember, it doesn’t mean they can’t be fully present, trying to make sense of the world around them. I’m grateful Mom was near, where we could help.
—excerpt from Living Is for Living: A Caregiver’s Story
I’m Okay: Stay or go? I don’t know. Them or her? I’m not sure. Where to be? Don’t ask me. Either way, I’m okay.
—excerpt from Living Is for Living: A Caregiver’s Story
Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.