The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Step Seven Humility

July 13, 2017

AA’s Step Seven: “Humbly asked our Higher Power to remove our shortcomings.” Faith in a Higher Power…It’s what helped me, Mom still in Maine for a bit longer, in another’s care. #thankGodforHannah! (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Alzheimer's Disease, Caregiving, Friendship, Health first, Marriage, Parenting, Step 7, The Twelve Steps of AA terry@thejoyofcaring.com 2 Comments

The Happiest Days, i.e. “Going to Camp”

July 6, 2017

Mom looking at lake in bathrobe

As we weighed the challenges of getting Mom to camp vs. her love of summers there, I remembered her advice twenty-five years earlier when I asked her about taking our newborn first to live in Prague so that Doug could take a job there: “Go for it.”

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance #ENDALZ, Alzheimer's Disease, Caregiving, Gratitude, One day at a time terry@thejoyofcaring.com 4 Comments

The Challenges of Pain and Delirium as they relate to Dementia – aka Guess who has a UTI?

June 29, 2017

While it complicated her care, Mom’s inability to remember the pain or other details had its advantages: she loved taking guilt-free naps with Cinnamon and regularly expressed gratitude for her good health when I tucked her in at night.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go #ENDALZ, Alzheimer's Disease, Caregiving, Dehydration, Delerium, Health first, Infection, Pain, UTI terry@thejoyofcaring.com 6 Comments

Summer Solstice 2017, the longest day and grief

June 24, 2017

After a busy spring, I was exhausted. It helped that, when our youngest played Herb Alpert and the Tijuana Brass on his phone, Mom danced in her chair, from head to toe.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, Alzheimer's Disease, Caregiver burden, Caregiving, Gratitude, Grief, Losing a loved one terry@thejoyofcaring.com 4 Comments

Looking for Dad

June 18, 2017

It’d been fifteen years since Dad died, and I looked for him every day, grateful for all the ways he was still right here, with me.

—excerpt from Living Is for Living: A Caregiver’s Story

Making peace #ENDALZ, Alzheimer's Disease, Caregiving, Gratitude, Life after death, Losing a loved one terry@thejoyofcaring.com 2 Comments

a thousand words

June 12, 2017

IMG_9555-1

Having fun #ENDALZ, Caregiving, Gratitude, Millennials, Parenting terry@thejoyofcaring.com 6 Comments

“Living is for Living” – Mom’s Three Things

May 30, 2017

IMG_9448

In the many conversations we’d had regarding whether Mom wanted a DNR, this was her bottom line: “There’s no point to living if you’re not really living.” So, as I made our daily plans, in addition to the items Mom’s care required, I added time to enjoy a “calm and prolonged breakfast,” nature, and companionship.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go, Maintaining balance Alzheimer's Disease, Caregiving, Dementia, Eldercare, Fun, Health first, In the Moment, Reframing terry@thejoyofcaring.com 6 Comments

Letting Go and Moving On

May 25, 2017

Dad, circa 1970

In caring for Mom, stuff was gonna happen that we couldn’t foresee or prevent. I was relieved when I remembered Dad’s post-game basketball advice. It was time to let go of the woulda coulda shouldas inherent in Mom’s care and move on to what we could do for her next.

—excerpt from Living Is for Living: A Caregiver’s Story

Letting go Alzheimer's Disease, Caregiver burden, Caregiving, Diverticulitis, Eldercare, Health concerns, Prednisone side effects, Temporal Arteritis terry@thejoyofcaring.com 5 Comments

Motherhood Then, Caregiving Now

May 14, 2017

Mom and the kids, 1999

The challenges I faced as mother and daughter were strikingly similar, and what comforted me then, comforted me now: Faith is the way. Caregiving, like motherhood, is living proof of our Higher Power’s love.

Practicing faith Alzheimer's Disease, Caregiving, Parenting terry@thejoyofcaring.com 2 Comments

What Is Your Reason?

May 12, 2017

One of my reasons, then (1994) and now (note Dad’s reflection on the right)

For as long as I could remember, exercise had relieved stress and cleared my mind. These days, Mom rebounding, I hoped it would help me get my spark back too.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, Alzheimer's Disease, Caregiving, Dementia, Exercise, Friendship, Health first, Marriage, Parenting terry@thejoyofcaring.com 2 Comments

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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