The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Guess Who Got Her Spark Back?

May 11, 2017

When she got into bed, Mom said “I’m sorry” – I’m not quite sure for what. I answered “I’m sorry” back – I’m not quite sure for what for. It broke my heart even as I knew it meant that the part of her that I had feared had shut down for good was back. How lucky am I?

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Alzheimer's Disease, Caregiving, Gratitude, Marriage, One day at a time, Parenting terry@thejoyofcaring.com 4 Comments

Just Listen

May 8, 2017

Listen, just listen…why is it so hard to do, when I know it’s what you need from me most?

I start out trying, and the next thing I know, I’m speaking, advising, wanting to take your pain away.

Listen, just listen…why is it so hard to do?

I don’t want you to feel anxious, sad, or alone, even though I know that’s part of life too.

You’ll be okay, I’ll be okay, if I just let you be, to find your way.

So I’ll try to listen, just listen…as long as you’ll try to let me know, when it’s something different you need from me.

—excerpt from Living Is for Living: A Caregiver’s Story

Listening first Caregiving, Friendship, Gratitude, Marriage, Parenting terry@thejoyofcaring.com Leave a Comment

We Shall See… One Day at a Time

May 6, 2017

Like AA’s One Day at a Time, Dad’s “We shall see” freed me to turn my attention elsewhere. These days his approach helped me to take care of Mom in each moment – to offer and love, not to force or press.

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance Alzheimer's Disease, Caregiving terry@thejoyofcaring.com Leave a Comment

Please Take a Look at Mom

May 3, 2017

I was grateful to all who took a look at Mom as they addressed her health concerns; I believe it was the most important part of providing her care. I wanted them to know, I saw them too.

—excerpt from Living Is for Living: A Caregiver’s Story

Speaking up Alzheimer's Disease, Caregiving, Gratitude terry@thejoyofcaring.com 2 Comments

A Week of Haikus for Darlene

May 3, 2017

Gosling in the Yard

On hospital time, with Spring’s midwest prairie view, I google “haiku.”

Japanese poem, three lines of five, seven, five, nature inspires.

The lake with its geese, “attached by a stream to Maine”, reminds Mom of home.

We may wonder why, we reach for the sun each day…It’s the way we love.

Goslings in the yard, Mom would enjoy if she could – I see for us both.

Neighbor boy in boots, plops butt-first in the puddle, his Dad and I smile.

The dogs tug the leash – trees bud, flowers bloom, birds sing – we rejoice at life.

—from Living Is for Living: A Caregiver’s Story

Having fun Alzheimer's Disease, Caregiving, Friendship terry@thejoyofcaring.com Leave a Comment

Online History during Hospital Stay

May 1, 2017

…prednisone makes some patient’s worse, diverticulitis can be very painful, surgery is not always necessary, ice cream sandwiches and haikus help, dementia gets in the way of pain relief, delirium isn’t necessarily permanent, fecal impaction is no joke, Milk of Magnesia works…

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info Alzheimer's Disease, Caregiving, Dementia, Diverticulitis, Eldercare, Health concerns, Hospitalization, Pain relief, Prednisone side effects terry@thejoyofcaring.com Leave a Comment

The Manipulation/Essence of Caring

April 29, 2017

“…All I can say is if one day you start to lose your memory I promise to manipulate you to get you the best care and living situation possible even if you can’t understand why…” texted our college-age son when I expressed my concern about over-stepping in Mom’s care. Wow.

—excerpt from Living Is for Living: A Caregiver’s Story

Letting go Alzheimer's Disease, Caregiving, Dementia, Eldercare, Health concerns, Hospitalization, Parenting, Pivoting, Reframing, Retiring the car keys terry@thejoyofcaring.com Leave a Comment

Around We Go

April 28, 2017

Mom at 2

“A defining event of my life occurred when I was 1 1/2 years old,” wrote Mom of a childhood infection, “I was lucky to survive.” I hoped that this time around, at almost 85, she would recover as she had back then. We just had to convince her to take her medicine!

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Alzheimer's Disease, Caregiving, Dementia, Eldercare, Gratitude, Health concerns terry@thejoyofcaring.com Leave a Comment

There’s Still Joy

April 28, 2017

After a tough day, a nurse roused Mom for her night time medicine; afterward, when I told Mom how much I loved her, she smiled and said, “I love you too, thank you for helping me.”

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance Alzheimer's Disease, Caregiving, Eldercare, Gratitude, In the Moment terry@thejoyofcaring.com 2 Comments

homesick

April 27, 2017

Mom suddenly sat up in bed. i stopped her before she ripped out the tube in her side. when i handed her her hearing aid, she tried to put it in her mouth. it was time for memory dog to step aside and call in the big dog.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info Alzheimer's Disease, Caregiving, Dementia, Eldercare, Health concerns, Memory Loss, One day at a time terry@thejoyofcaring.com 2 Comments

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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