The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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#ENDALZ #gotitfrommymama Acting as if Alzheimer's Disease Believe Caregiver burden Caregiving COVID-19 Deep Vein Thrombosis Dementia Diverticulitis Eldercare Friendship Fun Gratitude Grief Health concerns Health first Hospice Care Hospitalization Infection In the Moment Keep it simple Life after death Losing a loved one Marriage Memory Loss Millennials One day at a time Parenting Pets Pet Therapy Pivoting Prednisone side effects Reframing Siblings Step 3 Step 4 Step 9 Step 11 Step 12 The Twelve Steps The Twelve Steps of AA Time Working outside the home
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Post DVT Haikus

November 9, 2017

Deep vein thrombosis, her leg all swollen and blue, and we feared a bleed.

On blood thinner now, filter protecting her lungs, home to recover.

Compression stocking, why are you so freakin’ tight? No more blood clots, right?

Noticing the bench, “I played piano on that…” she says with a smile.

“Is that Mother’s chair?” I nod at the needlepoint, “Is she still around?”

“About the baby, can we make a plan to see?” a great grandma now.

Behind her at work, the builder pounding away, making our home sound.

Ever resilient, her eyes as blue as the sea, a cat with nine lives.

Mom sits with a book, dog in lap rocking a way, a smile on my face.

Eighty-five years young, expect the unexpected, one day at a time.

—from Living Is for Living: A Caregiver’s Story

Having fun #ENDALZ, Alzheimer's Disease, Caregiving, Deep Vein Thrombosis, Gratitude, Health first, Keep it simple, One day at a time, The Twelve Steps of AA terry@thejoyofcaring.com 2 Comments

A Tree in a Forest and a Health Care POA Prayer

October 28, 2017

From my diary two years before, as I stepped into the shoes of health care agent:

Please help me to care for Mom,

to stay in the moment with her while getting her the health care she needs,

to keep her safe while supporting her independence,

to collaborate with the boys and all the rest,

to meet her needs as well as those of the others in my life, and

to stay right here, right now, while figuring out what’s next.

Thank you for helping us to help her.

Amen

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go, Practicing faith #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiver burden, Caregiving, Deep Vein Thrombosis, Diverticulitis, Gratitude, Health first, Intestinal Bleed, Power of Attorney, Prayer, Step 3 terry@thejoyofcaring.com 4 Comments

Finding our Balance in Maine – Look Who’s Boomeranging Now?!

October 21, 2017

Safe and sound in a familiar routine – A daring cross-country move 

Leaving a community of awesome people – Moving to another community of awesome people

The Midwest Prairie – The Atlantic Ocean

Encouragement – Discouragement

Remembering Mom’s “Go For It” and Dad’s “Don’t let the weather get in the way” – The Reality of Mom’s five-day hospital stay

Mom saying she’s so glad she’s here – Then forgetting where here is

Mom insisting she does not need a doctor – A doctor is exactly what she needs

An intestinal bleed due to too little clotting – Deep vein thrombosis due to too much clotting

Warm welcomes – Cold shoulders 

A medicine that stops a clot in its path – The same medicine threatens another bleed

Worrying whether I pushed too hard to get Mom back – Witnessing her joyful reunions with my brothers and their families 

Feeling alone at 4 AM – Feeling support at 9 AM when brother Dob surprises me with coffee

Questioning whether I’m fit for this job, after another sleepless night – Refinding my way, thanks to a prayer written by Megan, a dear friend in the Midwest

An unfinished house – Everyone involved going above and beyond to get it ready

Mom speculating about my spouse’s love life – He at our new home, cleaning and prepping, for our return

A compression sock that hurts so much to put on – A compression sock that helps her leg to heal

Night four in the hospital spent trying to climb over bed rails – Day five heralding freedom in the form of discharge, after she tells the doc she’s in no rush to get out

Nonsensical at bedtime, so exhausted from the week – Clarity the next day, as we go to our new home:

“Portland…” she says, when we drive though the city

“It hasn’t changed a bit,” she adds, as we turn up the road of my childhood home

“It’s so big and blue,” she observes after we wheel her seaside, her eyes tearing up

Afternoon spent watching boats go by – Evening spent worrying that she needs to pack 

My repeated assurance that we are not going anywhere – We are home for good.

Letting Go of Expectations, as they say in A.A. – Holding on to what’s helped before: my husband and kids, cousins and friends, research and advocacy, love and faith

Thank you. 

Amen.

—from Living Is for Living: A Caregiver’s Story

Practicing faith #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiving, Deep Vein Thrombosis, Eldercare, Gratitude, Health first, One day at a time terry@thejoyofcaring.com 4 Comments

Finding a Samantha in Maine, during Hospitalization #3 (this one for a DVT)

October 19, 2017

Finding me awake and in tears, the nighttime nurse replied, “Your mom is 85. She has a complicated health history, with Alzheimer’s, diverticulitis, kidney disease, infection, limited activity level and  dehydration. This clot is so big, it didn’t just happen in travel; this condition’s been developing for a while. This is not on you.” Thanks to her, I went from feeling alone to feeling the love.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help #ENDALZ, Alzheimer's Disease, Caregiver burden, Caregiving, Deep Vein Thrombosis, Eldercare, Friendship, Gratitude, Health first, Millennials terry@thejoyofcaring.com 8 Comments

I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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