The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Grief and Guilt, a year later, and the Magic of Fruit Loops, Pivoting, Barking Dogs, Yellow Leaves and Blue Jays

October 12, 2020

As we returned home from an afternoon hike, Siena spotted another Blue Jay, this one perched in a tree at the top of our street. We looked at each other and smiled, understanding that Mom is still right here, with us. We just need to be available to the moment, the best we can.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Helping others, Laughing out loud, Learning as we go, Learning from mistakes, Letting go, Maintaining balance, Making peace, Taking care of self #ENDALZ, Alzheimer's Disease, Canine Caregiver, Caregiver burden, Eldercare, Gratitude, Grief, Hospice Care, Life after death, Pet Therapy, Pivoting, Progress not Perfection terry@thejoyofcaring.com 4 Comments

Labor of Love, another take on “caregiver burden”

September 10, 2020

Labor Day, after everyone left, leaving me and the dogs, I spent several hours doing the laundry, covering the boat, taking down the flag, moving things around, packing things up. Mom was with me every step of the way I realized as I stored the paddles behind the bathroom door, like she used to do. Sometimes what looks like a burden is actually an opportunity to heal.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Having fun, Learning as we go, Letting go, Listening first, Maintaining balance, Making peace, Taking care of self #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiver burden, Eldercare, Life after death terry@thejoyofcaring.com 6 Comments

Grief and Belief, in the four weeks since Mom passed on

November 12, 2019

Mom died at dawn on Tuesday, October 15, 2019 – two years from the day we got her back to Maine. Then, at 54, our beautiful friend Terry T died too. Even in the midst of battling cancer, she’d texted me: Sorry about your mom, but I know, because I believe, that she is at peace. Thank you dear Terry T for showing me the way. Peace be with you, too.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Helping others, Learning as we go, Letting go, Maintaining balance, Making peace, Practicing faith, Taking care of self #ENDALZ, Caregiver burden, Eldercare, Gratitude, Grief, Hospice Care, Life after death terry@thejoyofcaring.com 10 Comments

Never too old to play basketball

July 7, 2019

It was an honor to be one of 130 Maine athletes to attend the National Senior Games where I played on Team Phoenix. Watching women, ages 50-90, play basketball, not only inspired me, it gave me hope –  I wanted to be kicking ass when I’m in my eighties and beyond too!

—excerpt from Living Is for Living: A Caregiver’s Story

Finding time, Having fun, Learning as we go, Letting go, Maintaining balance, Practicing faith, Taking care of self #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Eldercare, Fun, Gratitude, Health first, Pivoting terry@thejoyofcaring.com 6 Comments

In Mom’s Words

April 12, 2019

When I thought back on a lifetime with Mom (54 years and counting), I recalled her words, like salve to my soul. As reserved as she was, the words she chose stood out – even the ones that stung when delivered, felt like love now.  

—excerpt from Living Is for Living: A Caregiver’s Stor

Finding time, Having fun, Letting go, Listening first, Making peace, Taking care of self #ENDALZ terry@thejoyofcaring.com 6 Comments

What is basketball? – aka caring for me

August 3, 2018

When a coach at the Not Too Late, women over 50, basketball camp said, “you’re only as strong as your biggest weakness,” her words resonated, giving me reason to keep working on me, on the court and off.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, Marriage, Parenting terry@thejoyofcaring.com 8 Comments

Sandwiched – caring for Mom, while caring for kids

February 18, 2018

2004                             2018

There’s plenty of literature out there about the challenge of being part of the “Sandwich Generation.” I too have sleepless nights worrying about Mom, as well as the kids. At the same time, I gotta admit, it’s pretty cool.

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance #ENDALZ, Alzheimer's Disease, Caregiving, Generation X, Gratitude, Health first, In the Moment, Keep it simple, Millennials, One day at a time, Parenting terry@thejoyofcaring.com 2 Comments

Thank You for That, aka an Attitude of Gratitude

February 8, 2018

I was especially grateful for the wisdom and support I received from so many places, including Mom – she may have forgotten some things due to Alzheimer’s, however there was an awful lot else she still reminded me to appreciate.

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance #ENDALZ, #gotitfrommymama, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, Parenting, Pets terry@thejoyofcaring.com 2 Comments

January Freeze, Step Two’s Coming to Believe

February 5, 2018

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AA’s Step Two: “Came to believe a power greater than ourselves can restore us to sanity.” When offering Mom the paper birds to touch and the memory of our home in Wisconsin to connect didn’t soothe her, I took down the mobile and put it in a drawer. Sometimes, we just gotta believe someone we trust can take our worries away. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith #ENDALZ, Acting as if, Alzheimer's Disease, Anxiety, Caregiving, Depression, Friendship, Gratitude, Keep it simple, Marriage, Parenting, The Twelve Steps terry@thejoyofcaring.com 4 Comments

HALT and let in the love

January 17, 2018

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I learned long ago, in Al-Anon, that when we feel irritable or unreasonable, we need to “HALT” – it may be that we are Hungry, Angry, Lonely and/or Tired. Sometimes HALTing means putting our own feet up, sometimes it means taking a moment to learn from others who are doing just that.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Helping others, Learning as we go, Taking care of self #ENDALZ, Addiction, Alzheimer's Disease, Anxiety, Caregiving, Depression, Friendship, Gratitude, In the Moment, Keep it simple, Marriage, Parenting, Prayer terry@thejoyofcaring.com

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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