The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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#ENDALZ #gotitfrommymama Acting as if Alzheimer's Disease Believe Caregiver burden Caregiving COVID-19 Deep Vein Thrombosis Dementia Diverticulitis Eldercare Friendship Fun Gratitude Grief Health concerns Health first Hospice Care Hospitalization Infection In the Moment Keep it simple Life after death Losing a loved one Marriage Memory Loss Millennials One day at a time Parenting Pets Pet Therapy Pivoting Prednisone side effects Reframing Siblings Step 3 Step 4 Step 9 Step 11 Step 12 The Twelve Steps The Twelve Steps of AA Time Working outside the home
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Glad to be Acadia Manset’s Granddaughter

October 2, 2017

grammy rosie me
Grammy, aka Acadia Manset (1991)

Sorting through Grammy’s records, I discovered she’d written under the pen name Acadia Manset, for her favorite haunts in Maine. The way she’d cared for her aging mother, Dora, inspired me to care for my mom like she had, in the sanctity of our home.

—excerpt from Living Is for Living: A Caregiver’s Story

Listening first #ENDALZ, Alzheimer's Disease, Caregiving, Eldercare, Grandparenting, Gratitude, Life after death, One day at a time, Parenting terry@thejoyofcaring.com 2 Comments

“Retiring” the Car Keys, i.e. Driving Lala

September 29, 2017

IMG_8891
Mom’s 85th birthday, photo cred to our caregiver Hannah

When I reminded her that her license had expired and reassured her that I’d be happy to drive her anywhere she wanted to go, Mom nodded and smiled. What a relief that the driving question was behind us.

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Alzheimer's Disease, Dementia and Driving, Eldercare, Millennials terry@thejoyofcaring.com Leave a Comment

Celebrating G

September 26, 2017

How could we be so blessed a third time around? He’s so many things…among them a constant reminder that this is not a limited supply of love and beauty we are dealing with, it’s an endless one.

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Gratitude, Millennials, One day at a time, Parenting, Pets terry@thejoyofcaring.com 2 Comments

Nine Squares

September 21, 2017

FullSizeRender-10
Whole Life Grid a la Susan Jeffers, PhD, Feel the Fear and Do It Anyway

According to the sign out front of a local church, “THERE IS A TIME FOR EVERYTHING.  BE SURE TO MAKE TIME FOR GOD.” My middle square – “Spirituality and Faith” was a great place to start!

—excerpt from Living Is for Living: A Caregiver’s Story

Finding time, Taking care of self #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Health first, In the Moment, Marriage, Parenting, Pets, Step 9 terry@thejoyofcaring.com Leave a Comment

“First Things First”

September 14, 2017

Starting to feel breathless with all the What Ifs, I remembered this AA slogan. The nurse drew blood and collected urine in record time and, free to go, I asked Mom what she wanted for lunch. “Something meaty,” she replied: First Things First!

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Maintaining balance #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Diverticulitis, Gratitude, Health first, Infection, One day at a time, Step 9 terry@thejoyofcaring.com 4 Comments

Empty Nest Plus One

September 12, 2017

Screen Shot 2017-09-08 at 12.29.12 PM
Mom and Doug, a couple summers back

Sunday morning, two days after we stopped the Tramadol, as she tried to make sense of the prior couple of days, Mom asked, “Who’s going to keep me from going crazy?” I was glad I could answer, “I will do my best, Mom, and Doug will help too.”

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Alzheimer's Disease, Back Pain, Caregiving, Diverticulitis, Gratitude, Keep it simple, Marriage, Millennials, Pain relief, Parenting, Step 9, Tramadol Side Effects terry@thejoyofcaring.com 4 Comments

No Need to Yell

September 7, 2017

Speak quietly with confidence, no need to yell.

Speak quietly with confidence, ‘til then listen well.

Don’t speak out of turn, when it’s not mine to learn.

Let them hold their own, now that they’re grown.

Forgive myself, I meant no harm.

Living learning, here on the farm.

(February 13, 2015)

—from Living Is for Living: A Caregiver’s Story

Listening first, Speaking up #ENDALZ, Gratitude, Marriage, Parenting, Pets, Step 9 terry@thejoyofcaring.com Leave a Comment

Still Smiling : )

August 31, 2017

just smile
Drawn by Mom, April 14, 1973

Thanks to Mom, I’d learned to smile, even when it isn’t easy.  Thanks to Mom, I was still smiling now.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Letting go #ENDALZ, Alzheimer's Disease, Caregiving, College-age kids, Empty Nest, Gratitude, Millennials, Parenting, Working outside the home terry@thejoyofcaring.com 4 Comments

What Next? (dropping our youngest off at college)

August 28, 2017

Earnest 18-year-old you with me in your heart, asks me straight up “What next?”

You don’t want me to miss out on my life making sure that she doesn’t miss out on hers.

“I’m not sure,” I admit – I tell you the truth, cuz I value your two cents, and you’d see through anything else.

“I’m taking it a day at a time, trying to draw out this phase, trusting I’ll know when it’s time for a change.

Seriously, how lucky am I, that in the midst of your world, you see me sitting here, and give me just what I need.

Although I’m still not sure what is next, I promise to take care of me the best I can, in the mix.

All I ask is you do the same…What’s next for you?

Great things, I have no doubt – and I will cheer your every step.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, Alzheimer's Disease, Caregiving, Dementia, Eldercare, Empty Nest, Gratitude, In the Moment, Millennials, One day at a time, Parenting, Pivoting terry@thejoyofcaring.com Leave a Comment

Putting Out Fires

August 17, 2017

“Do you have a plan in case of fire?” asked the fit physical therapist assigned to determine Mom’s need for in-home care. She looked him in the eye and answered definitively, “I’d put it out.”

—excerpt from Living Is for Living: A Caregiver’s Story

Laughing out loud #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiving, Health first terry@thejoyofcaring.com 4 Comments

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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