The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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#ENDALZ #gotitfrommymama Acting as if Alzheimer's Disease Believe Caregiver burden Caregiving COVID-19 Deep Vein Thrombosis Dementia Diverticulitis Eldercare Friendship Fun Gratitude Grief Health concerns Health first Hospice Care Hospitalization Infection In the Moment Keep it simple Life after death Losing a loved one Marriage Memory Loss Millennials One day at a time Parenting Pets Pet Therapy Pivoting Prednisone side effects Reframing Siblings Step 3 Step 4 Step 9 Step 11 Step 12 The Twelve Steps The Twelve Steps of AA Time Working outside the home
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Step Ten, “Progress Not Perfection”

October 5, 2017

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AA’s Step Ten: “Continued to take personal inventory and when we were wrong promptly admitted it.” These days, with how Mom’s Alzheimer’s anchors her in the moment, I’m grateful for how this slogan and Step Ten help me stay right here with her. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, Marriage, One day at a time, Parenting, Progress not Perfection, Step 10, The Twelve Steps of AA terry@thejoyofcaring.com Leave a Comment

Nine Squares

September 21, 2017

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Whole Life Grid a la Susan Jeffers, PhD, Feel the Fear and Do It Anyway

According to the sign out front of a local church, “THERE IS A TIME FOR EVERYTHING.  BE SURE TO MAKE TIME FOR GOD.” My middle square – “Spirituality and Faith” was a great place to start!

—excerpt from Living Is for Living: A Caregiver’s Story

Finding time, Taking care of self #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Health first, In the Moment, Marriage, Parenting, Pets, Step 9 terry@thejoyofcaring.com Leave a Comment

Moving Mom (again)

September 19, 2017

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Mom loved the fact this guy never stopped smiling, even in strong winds!

Of the many difficult decisions we’d made in caring for Mom, one of the most challenging was moving her away from her home in Maine. The time had come to move her back. Fingers crossed her health would remain stable until we got her there.

—excerpt from Living Is for Living: A Caregiver’s Story

Looking forward Alzheimer's Disease, Caregiving, Friendship, Gratitude, Life after death, Marriage, Millennials, Parenting, Step 9 terry@thejoyofcaring.com 2 Comments

“Lady Girl” – aka when Mom forgets who I am

September 13, 2017

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Mom had referred to me as her sister and her friend. Then, as Tramadol messed with her mind, she asked me if I’d be her secretary and later, my personal favorite, her “Lady Girl.” I was just glad she still knew I was on her side.

—excerpt from Living Is for Living: A Caregiver’s Story

Letting go Alzheimer's Disease, Caregiving, Friendship, Gratitude, Losing a loved one, Marriage, One day at a time, Step 9 terry@thejoyofcaring.com 17 Comments

Boomerang (and the almost empty nest)

August 24, 2017

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I never expected that our eldest would come home to live between college and graduate school. I was going to miss her and l looked forward to the next time she’d land back home, whatever the duration.

—excerpt from Living Is for Living: A Caregiver’s Story

Letting go Caregiving, Friendship, Gratitude, Millennials, One day at a time, Parenting, Pets terry@thejoyofcaring.com Leave a Comment

Fountain of Youth – hanging out with our Millennial kids and their Millennial friends

August 21, 2017

Millennial Sunrise on Snow Pond, thanks to Hannah

I knew I’d miss our Millennial kids when they went away to school; it hit me now, just how much I’d miss their Millennial friends as they set out on their next chapters too.

—excerpt from Living Is for Living: A Caregiver’s Story

Having fun Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Millennials, Parenting terry@thejoyofcaring.com 2 Comments

“Beast Mode” Time

August 9, 2017

A gift from my CrossFit trainer Nicole

Hospitalized again, Mom being evaluated for another intestinal ailment, with enough blood loss to warrant a transfusion, it was time to gear up again.

—excerpt from Living Is for Living: A Caregiver’s Story

Helping others #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, One day at a time, Parenting terry@thejoyofcaring.com 8 Comments

Step Seven Humility

July 13, 2017

AA’s Step Seven: “Humbly asked our Higher Power to remove our shortcomings.” Faith in a Higher Power…It’s what helped me, Mom still in Maine for a bit longer, in another’s care. #thankGodforHannah! (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Alzheimer's Disease, Caregiving, Friendship, Health first, Marriage, Parenting, Step 7, The Twelve Steps of AA terry@thejoyofcaring.com 2 Comments

My Sisters (in-law)

June 13, 2017

My sisters (in-law) may not have been part of my start, still, I was grateful they were part of my present.  Although we were from different gardens, I loved our awesome bouquet!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help Alzheimer's Disease, Caregiver burden, Eldercare, Friendship, Fun, Gratitude, Marriage, Pivoting, Reframing terry@thejoyofcaring.com Leave a Comment

What Is Your Reason?

May 12, 2017

One of my reasons, then (1994) and now (note Dad’s reflection on the right)

For as long as I could remember, exercise had relieved stress and cleared my mind. These days, Mom rebounding, I hoped it would help me get my spark back too.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, Alzheimer's Disease, Caregiving, Dementia, Exercise, Friendship, Health first, Marriage, Parenting terry@thejoyofcaring.com 2 Comments

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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