The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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RIP little bunny – processing grief in Alzheimer’s and elsewhere, and finding meaning to help us through

May 4, 2019

When I discovered our eleven-year-old bunny rabbit sprawled out in her cage, I was hit with disbelief. Even when death is expected, peaceful, and quick, it can be hard to accept. I’m grateful for my spouse and neighbor Mandy who helped me through.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Laughing out loud, Learning as we go, Letting go, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, Caregiving, Friendship, Gratitude, In the Moment, Keep it simple, Life after death, Losing a loved one, Marriage, One day at a time terry@thejoyofcaring.com 6 Comments

High Fives All Around – We’ve Got This

April 12, 2019

In support of a member facing a cancer diagnosis, her team had handed out bracelets with the words No One FIGHTS Alone! Running errands and thinking of this fierce, kind and resilient athlete, I pulled into Dunkin Donuts for an afternoon pick-up. When the guy in front of me bought my cup of coffee, it was the high five I needed, reminding me to reach out to others too.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Having fun, Helping others, Learning as we go, Maintaining balance, Practicing faith, Taking care of self Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, One day at a time, Parenting, Step 12 terry@thejoyofcaring.com 6 Comments

“Excuse Me”- Saving Face and Alzheimer’s disease

December 1, 2018

Helping caregiver Jess shop for her wedding dress

I don’t believe Mom saw Alzheimer’s coming; I do believe, though, that it would have eased her mind to know that she continued to make new friends, bringing joy, humor and grace, and inspiring the rest of us to do the same.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Letting go, Making peace Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage terry@thejoyofcaring.com 10 Comments

#tbt Making Peace with Mom’s DNR

November 15, 2018

Dear Higher Power, Please help me to take heroic measures to love and care for Mom, to help her continue to live healthy and well – not to prolong the time when she is failing and unwell. Please help me to never give up, and also to let go when the time comes. Please help me to honor Mom while she is alive, and also when she dies. A DNR – natural death – is the right choice – it’s a choice my Mom has made. It’s a choice I agree with. It’s a choice that hurts and relieves. It’s a choice I need to respect. Please help me to find peace with Mom’s DNR. Thy will be done. Amen

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go, Letting go, Listening first, Maintaining balance, Making peace, Practicing faith Alzheimer's Disease, Caregiving, Gratitude, Keep it simple, One day at a time terry@thejoyofcaring.com 4 Comments

Simple Kindness

October 24, 2018

When in doubt

In a world with atrocity, apathy, anxiety, distraction and just plain busy-ness, I was touched by all the simple kindnesses that helped me as I helped Mom. Thanks to those simple, and often unexpected, kindnesses, the pieces of our life in Maine were starting to fall into place.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Learning as we go, Maintaining balance, Making peace, Taking care of self Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, One day at a time, Parenting terry@thejoyofcaring.com 4 Comments

What is basketball? – aka caring for me

August 3, 2018

When a coach at the Not Too Late, women over 50, basketball camp said, “you’re only as strong as your biggest weakness,” her words resonated, giving me reason to keep working on me, on the court and off.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, Marriage, Parenting terry@thejoyofcaring.com 8 Comments

#tbt when meds are a mess, aka take note(s) and speak up

April 26, 2018

Photos courtesy of our caregiver Karly, showing she’d cut pill in half and was making the day great!

I was grateful for my husband and kids and our awesome caregivers who spent enough time with Mom to know her well, to let me know what they saw, and to make sure she got her meds when I stepped away.

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go Alzheimer's Disease, Caregiving, Eldercare, Gratitude, Health concerns, Medicine Side Effects terry@thejoyofcaring.com Leave a Comment

Happy Easter!

April 1, 2018

I was grateful, too, that these days, I could sit at Mom’s side, no words necessary, knowing she felt my love and that it was the emotionality I once felt sorry about, that fueled me now in her daily care.

—excerpt from Living Is for Living: A Caregiver’s Story

 

Making peace Alzheimer's Disease, Gratitude, Losing a loved one, Parenting, Step 4 terry@thejoyofcaring.com 2 Comments

Sandwiched – caring for Mom, while caring for kids

February 18, 2018

2004                             2018

There’s plenty of literature out there about the challenge of being part of the “Sandwich Generation.” I too have sleepless nights worrying about Mom, as well as the kids. At the same time, I gotta admit, it’s pretty cool.

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance #ENDALZ, Alzheimer's Disease, Caregiving, Generation X, Gratitude, Health first, In the Moment, Keep it simple, Millennials, One day at a time, Parenting terry@thejoyofcaring.com 2 Comments

Thank You for That, aka an Attitude of Gratitude

February 8, 2018

I was especially grateful for the wisdom and support I received from so many places, including Mom – she may have forgotten some things due to Alzheimer’s, however there was an awful lot else she still reminded me to appreciate.

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance #ENDALZ, #gotitfrommymama, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, Parenting, Pets terry@thejoyofcaring.com 2 Comments

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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