The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Green Monster of the Midwest, aka “How time flies…”

October 17, 2017

Playing Games, then
and now

Over the past seventeen years, Mike and his wife Jen had become dear friends – neighbors first, family later. All that was left to say was a deep-felt thank you to them and all our Midwest friends. I hoped our friendships would endure.

—excerpt from Living Is for Living: A Caregiver’s Story

Letting go #ENDALZ, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, Parenting terry@thejoyofcaring.com Leave a Comment

Fingers Crossed, all packed up and ready to go

October 9, 2017

IMG_1096

Getting Mom back to Maine among family and friends, the ocean near, was my own bucket list odyssey.  My counselor said, “Some dreams do come true.” I hoped she was right.

—excerpt from Living Is for Living: A Caregiver’s Story

 

Practicing faith #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Gratitude, Marriage, One day at a time terry@thejoyofcaring.com 4 Comments

Step Ten, “Progress Not Perfection”

October 5, 2017

FullSizeRender-1

AA’s Step Ten: “Continued to take personal inventory and when we were wrong promptly admitted it.” These days, with how Mom’s Alzheimer’s anchors her in the moment, I’m grateful for how this slogan and Step Ten help me stay right here with her. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, Marriage, One day at a time, Parenting, Progress not Perfection, Step 10, The Twelve Steps of AA terry@thejoyofcaring.com Leave a Comment

Glad to be Acadia Manset’s Granddaughter

October 2, 2017

grammy rosie me
Grammy, aka Acadia Manset (1991)

Sorting through Grammy’s records, I discovered she’d written under the pen name Acadia Manset, for her favorite haunts in Maine. The way she’d cared for her aging mother, Dora, inspired me to care for my mom like she had, in the sanctity of our home.

—excerpt from Living Is for Living: A Caregiver’s Story

Listening first #ENDALZ, Alzheimer's Disease, Caregiving, Eldercare, Grandparenting, Gratitude, Life after death, One day at a time, Parenting terry@thejoyofcaring.com 2 Comments

Celebrating G

September 26, 2017

How could we be so blessed a third time around? He’s so many things…among them a constant reminder that this is not a limited supply of love and beauty we are dealing with, it’s an endless one.

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Gratitude, Millennials, One day at a time, Parenting, Pets terry@thejoyofcaring.com 2 Comments

Moving Mom (again)

September 19, 2017

FullSizeRender
Mom loved the fact this guy never stopped smiling, even in strong winds!

Of the many difficult decisions we’d made in caring for Mom, one of the most challenging was moving her away from her home in Maine. The time had come to move her back. Fingers crossed her health would remain stable until we got her there.

—excerpt from Living Is for Living: A Caregiver’s Story

Looking forward Alzheimer's Disease, Caregiving, Friendship, Gratitude, Life after death, Marriage, Millennials, Parenting, Step 9 terry@thejoyofcaring.com 2 Comments

“First Things First”

September 14, 2017

Starting to feel breathless with all the What Ifs, I remembered this AA slogan. The nurse drew blood and collected urine in record time and, free to go, I asked Mom what she wanted for lunch. “Something meaty,” she replied: First Things First!

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Maintaining balance #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Diverticulitis, Gratitude, Health first, Infection, One day at a time, Step 9 terry@thejoyofcaring.com 4 Comments

“Lady Girl” – aka when Mom forgets who I am

September 13, 2017

FullSizeRender

Mom had referred to me as her sister and her friend. Then, as Tramadol messed with her mind, she asked me if I’d be her secretary and later, my personal favorite, her “Lady Girl.” I was just glad she still knew I was on her side.

—excerpt from Living Is for Living: A Caregiver’s Story

Letting go Alzheimer's Disease, Caregiving, Friendship, Gratitude, Losing a loved one, Marriage, One day at a time, Step 9 terry@thejoyofcaring.com 17 Comments

Empty Nest Plus One

September 12, 2017

Screen Shot 2017-09-08 at 12.29.12 PM
Mom and Doug, a couple summers back

Sunday morning, two days after we stopped the Tramadol, as she tried to make sense of the prior couple of days, Mom asked, “Who’s going to keep me from going crazy?” I was glad I could answer, “I will do my best, Mom, and Doug will help too.”

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Alzheimer's Disease, Back Pain, Caregiving, Diverticulitis, Gratitude, Keep it simple, Marriage, Millennials, Pain relief, Parenting, Step 9, Tramadol Side Effects terry@thejoyofcaring.com 4 Comments

No Need to Yell

September 7, 2017

Speak quietly with confidence, no need to yell.

Speak quietly with confidence, ‘til then listen well.

Don’t speak out of turn, when it’s not mine to learn.

Let them hold their own, now that they’re grown.

Forgive myself, I meant no harm.

Living learning, here on the farm.

(February 13, 2015)

—from Living Is for Living: A Caregiver’s Story

Listening first, Speaking up #ENDALZ, Gratitude, Marriage, Parenting, Pets, Step 9 terry@thejoyofcaring.com Leave a Comment

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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