“Do you have a plan in case of fire?” asked the fit physical therapist assigned to determine Mom’s need for in-home care. She looked him in the eye and answered definitively, “I’d put it out.”
—excerpt from Living Is for Living: A Caregiver’s Story
Reflections of a Daughter of the Silent Generation and Mother of Generation Y
“Do you have a plan in case of fire?” asked the fit physical therapist assigned to determine Mom’s need for in-home care. She looked him in the eye and answered definitively, “I’d put it out.”
—excerpt from Living Is for Living: A Caregiver’s Story
I was starting to feel emotional about the changes ahead and grateful for the prospect of time together beforehand, when I noticed Mom’s intestinal bleed – a “complete curveball” my husband called it… and a classic example of the importance of “Letting Go of Expectations,” as they say in AA.
—excerpt from Living Is for Living: A Caregiver’s Story
Hospitalized again, Mom being evaluated for another intestinal ailment, with enough blood loss to warrant a transfusion, it was time to gear up again.
—excerpt from Living Is for Living: A Caregiver’s Story
AA’s Step Eight: “Made a list of all persons we had harmed, and became willing to make amends to them all.” According to a fortune cookie, my life was about to get more interesting. It was time to move on with faith and open up to the healing ahead. (Al-Anon’s Twelve Steps & Twelve Traditions)
—excerpt from Living Is for Living: A Caregiver’s Story
AA’s Step Seven: “Humbly asked our Higher Power to remove our shortcomings.” Faith in a Higher Power…It’s what helped me, Mom still in Maine for a bit longer, in another’s care. #thankGodforHannah! (Al-Anon’s Twelve Steps & Twelve Traditions)
—excerpt from Living Is for Living: A Caregiver’s Story
While it complicated her care, Mom’s inability to remember the pain or other details had its advantages: she loved taking guilt-free naps with Cinnamon and regularly expressed gratitude for her good health when I tucked her in at night.
—excerpt from Living Is for Living: A Caregiver’s Story
In the many conversations we’d had regarding whether Mom wanted a DNR, this was her bottom line: “There’s no point to living if you’re not really living.” So, as I made our daily plans, in addition to the items Mom’s care required, I added time to enjoy a “calm and prolonged breakfast,” nature, and companionship.
—excerpt from Living Is for Living: A Caregiver’s Story
For as long as I could remember, exercise had relieved stress and cleared my mind. These days, Mom rebounding, I hoped it would help me get my spark back too.
—excerpt from Living Is for Living: A Caregiver’s Story
It was the first time I’d signed a consent form on Mom’s behalf. As I waited for her bone marrow biopsy, I realized I was like a seeing eye dog, only my job was to provide short-term memory. When I told Mom later that I was happy to be her memory dog, she smiled groggily and asked me where my tail was.
—excerpt from Living Is for Living: A Caregiver’s Story
Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.