The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

Categories

Tags

#ENDALZ #gotitfrommymama Acting as if Alzheimer's Disease Believe Caregiver burden Caregiving COVID-19 Deep Vein Thrombosis Dementia Diverticulitis Eldercare Friendship Fun Gratitude Grief Health concerns Health first Hospice Care Hospitalization Infection In the Moment Keep it simple Life after death Losing a loved one Marriage Memory Loss Millennials One day at a time Parenting Pets Pet Therapy Pivoting Prednisone side effects Reframing Siblings Step 3 Step 4 Step 9 Step 11 Step 12 The Twelve Steps The Twelve Steps of AA Time Working outside the home

  • Reading List
  • Contact Me

Putting Out Fires

August 17, 2017

“Do you have a plan in case of fire?” asked the fit physical therapist assigned to determine Mom’s need for in-home care. She looked him in the eye and answered definitively, “I’d put it out.”

—excerpt from Living Is for Living: A Caregiver’s Story

Laughing out loud #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiving, Health first terry@thejoyofcaring.com 4 Comments

Curveball Complete (what I learned during Mom’s second hospital stay)

August 12, 2017

I was starting to feel emotional about the changes ahead and grateful for the prospect of time together beforehand, when I noticed Mom’s intestinal bleed – a “complete curveball” my husband called it… and a classic example of the importance of “Letting Go of Expectations,” as they say in AA.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info #ENDALZ, Alzheimer's Disease, Caregiving, Diverticulitis, Eldercare, Health first, Letting Go of Expectations, One day at a time, Parenting, Sandwiched terry@thejoyofcaring.com Leave a Comment

“Beast Mode” Time

August 9, 2017

A gift from my CrossFit trainer Nicole

Hospitalized again, Mom being evaluated for another intestinal ailment, with enough blood loss to warrant a transfusion, it was time to gear up again.

—excerpt from Living Is for Living: A Caregiver’s Story

Helping others #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, One day at a time, Parenting terry@thejoyofcaring.com 8 Comments

Step Eight Discernment

August 7, 2017

AA’s Step Eight: “Made a list of all persons we had harmed, and became willing to make amends to them all.” According to a fortune cookie, my life was about to get more interesting. It was time to move on with faith and open up to the healing ahead. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Health first, Step 8, The Twelve Steps of AA terry@thejoyofcaring.com Leave a Comment

Step Seven Humility

July 13, 2017

AA’s Step Seven: “Humbly asked our Higher Power to remove our shortcomings.” Faith in a Higher Power…It’s what helped me, Mom still in Maine for a bit longer, in another’s care. #thankGodforHannah! (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Alzheimer's Disease, Caregiving, Friendship, Health first, Marriage, Parenting, Step 7, The Twelve Steps of AA terry@thejoyofcaring.com 2 Comments

The Challenges of Pain and Delirium as they relate to Dementia – aka Guess who has a UTI?

June 29, 2017

While it complicated her care, Mom’s inability to remember the pain or other details had its advantages: she loved taking guilt-free naps with Cinnamon and regularly expressed gratitude for her good health when I tucked her in at night.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go #ENDALZ, Alzheimer's Disease, Caregiving, Dehydration, Delerium, Health first, Infection, Pain, UTI terry@thejoyofcaring.com 6 Comments

“Living is for Living” – Mom’s Three Things

May 30, 2017

IMG_9448

In the many conversations we’d had regarding whether Mom wanted a DNR, this was her bottom line: “There’s no point to living if you’re not really living.” So, as I made our daily plans, in addition to the items Mom’s care required, I added time to enjoy a “calm and prolonged breakfast,” nature, and companionship.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go, Maintaining balance Alzheimer's Disease, Caregiving, Dementia, Eldercare, Fun, Health first, In the Moment, Reframing terry@thejoyofcaring.com 6 Comments

What Is Your Reason?

May 12, 2017

One of my reasons, then (1994) and now (note Dad’s reflection on the right)

For as long as I could remember, exercise had relieved stress and cleared my mind. These days, Mom rebounding, I hoped it would help me get my spark back too.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, Alzheimer's Disease, Caregiving, Dementia, Exercise, Friendship, Health first, Marriage, Parenting terry@thejoyofcaring.com 2 Comments

Memory Dog Goes to the Hospital

April 27, 2017

It was the first time I’d signed a consent form on Mom’s behalf. As I waited for her bone marrow biopsy, I realized I was like a seeing eye dog, only my job was to provide short-term memory. When I told Mom later that I was happy to be her memory dog, she smiled groggily and asked me where my tail was.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self Alzheimer's Disease, Caregiving, Health first terry@thejoyofcaring.com 4 Comments

  • « Previous Page
  • 1
  • 2
  • 3

I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

Subscribe to Blog via Email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 57 other subscribers

Top Posts & Pages

  • A Mom's Love, unlimited
  • Newest Release...
  • Upcoming Book Release: A Seal Named Sunshine
  • The Wrap: Douglas the Rabbit's Winter Holiday Surprise
  • Seeing What Is Right in front of Us
  • A Giant Lesson in Mindfulness
  • 1, 2, 3...ready or not, here we come: Douglas the Rabbit's Fall Field Trip
  • Up next, just in time for Mom's birthday: Douglas the Rabbit Makes Some Friends
  • Introducing my next adventure: The Original Douglas the Rabbit Story
  • Living Is for Living: A Caregiver's Story is launched!

Archives

  • May 2025
  • January 2024
  • November 2023
  • October 2023
  • September 2023
  • August 2023
  • July 2023
  • June 2023
  • November 2022
  • October 2022
  • September 2022
  • August 2022
  • July 2022
  • June 2021
  • October 2020
  • September 2020
  • July 2020
  • May 2020
  • April 2020
  • February 2020
  • January 2020
  • December 2019
  • November 2019
  • October 2019
  • September 2019
  • August 2019
  • July 2019
  • June 2019
  • May 2019
  • April 2019
  • December 2018
  • November 2018
  • October 2018
  • August 2018
  • April 2018
  • February 2018
  • January 2018
  • December 2017
  • November 2017
  • October 2017
  • September 2017
  • August 2017
  • July 2017
  • June 2017
  • May 2017
  • April 2017
  • March 2017

Pages

  • Reading List
  • Contact Me

Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

Spam Blocked

1,359 spam blocked by Akismet

Subscribe to Blog via Email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 57 other subscribers

© 2025 ·Journey · by WPStud.io