The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Laughter in Grief – showing up the best we can and finding hope amidst loss

April 23, 2020

Little did Dad know when he made up Douglas the Rabbit stories for us kids, that someday I’d share them with my kids; little did I know that the stories I wrote down to remember Dad after he died, would someday entertain Mom, when she could no longer get out of bed.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Helping others, Laughing out loud, Learning as we go, Letting go, Looking forward, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, COVID-19, Eldercare, Gratitude, Keep it simple, Life after death, One day at a time terry@thejoyofcaring.com 2 Comments

COVID-19 Staying at Home – finding guidance in parental wisdom during this time of pandemic stress

April 1, 2020

Tamridge, Mom and Dad, circa 1980

There were moments, when nothing seemed as it was and everything seemed newly tenuous. Dad’s “we shall see” and “bottom line” and Mom’s “living is for living” and “aren’t we lucky” reminded me to be patient, to simplify, to let go of fear, and to count our blessings.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Gathering Info, Helping others, Learning as we go, Letting go, Listening first, Maintaining balance, Making peace, Practicing faith, Speaking up, Taking care of self Alzheimer's Disease, Caregiving, Corona Virus 2019, COVID-19, Eldercare, Gratitude, In the Moment, Infection, Keep it simple, Life after death, One day at a time terry@thejoyofcaring.com 14 Comments

Pep to my Step – sharing the emotional toll of caring for a loved one with Alzheimer’s, during and after

January 14, 2020

To ring in 2020, I went through the photos on my phone. Seeing all the good moments that preceded Mom’s last made my heart glad. I resolved to keep it simple – sleep, hydration, nutrition, exercise, writing, gratitude – while my heart adapted to this post-caregiving phase.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Learning as we go, Making peace, Taking care of self Alzheimer's Disease, Caregiver burden, Caregiving, Eldercare, Keep it simple, Life after death terry@thejoyofcaring.com 8 Comments

Remembering to Breathe, ie. taking care of ourselves during the holidays

December 9, 2019

On retreat with the Chaplaincy Institute of Maine, I took a long walk by myself in the woods. I flopped down in the fresh snow. I lay there, looking up at a tall evergreen that reached up to the blue sky (the blue Mom loved). I breathed in and out, deliberately, five times. It felt so good, I decided to go for ten.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Learning as we go, Learning from mistakes, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, Caregiver burden, Eldercare, Gratitude, Grief, Keep it simple, Life after death, Losing a loved one terry@thejoyofcaring.com 4 Comments

Father’s Day in Albuquerque

June 22, 2019

Me and Dad, circa 1974
Me and Dad, circa 1974

That Father’s Day, sixteen years since Dad died, I heard him heckle when I missed foul shots, laugh when I threw elbows, and cheer when I backed someone down. When I worried about missed opportunities, I recalled his “don’t worry about what’s over and done.” And, when I noticed the 85+-year-old men playing on a neighboring court, I imagined Dad and his killer hook shot in their midst. Too bad I didn’t get that gene!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Laughing out loud, Learning from mistakes, Taking care of self Alzheimer's Disease, Caregiving, Gratitude, Health first, Infinity, Keep it simple, Life after death, Losing a loved one, Marriage, Millennials, One day at a time, Parenting terry@thejoyofcaring.com 8 Comments

RIP little bunny – processing grief in Alzheimer’s and elsewhere, and finding meaning to help us through

May 4, 2019

When I discovered our eleven-year-old bunny rabbit sprawled out in her cage, I was hit with disbelief. Even when death is expected, peaceful, and quick, it can be hard to accept. I’m grateful for my spouse and neighbor Mandy who helped me through.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Laughing out loud, Learning as we go, Letting go, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, Caregiving, Friendship, Gratitude, In the Moment, Keep it simple, Life after death, Losing a loved one, Marriage, One day at a time terry@thejoyofcaring.com 6 Comments

High Fives All Around – We’ve Got This

April 12, 2019

In support of a member facing a cancer diagnosis, her team had handed out bracelets with the words No One FIGHTS Alone! Running errands and thinking of this fierce, kind and resilient athlete, I pulled into Dunkin Donuts for an afternoon pick-up. When the guy in front of me bought my cup of coffee, it was the high five I needed, reminding me to reach out to others too.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Having fun, Helping others, Learning as we go, Maintaining balance, Practicing faith, Taking care of self Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, One day at a time, Parenting, Step 12 terry@thejoyofcaring.com 6 Comments

“Excuse Me”- Saving Face and Alzheimer’s disease

December 1, 2018

Helping caregiver Jess shop for her wedding dress

I don’t believe Mom saw Alzheimer’s coming; I do believe, though, that it would have eased her mind to know that she continued to make new friends, bringing joy, humor and grace, and inspiring the rest of us to do the same.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Letting go, Making peace Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage terry@thejoyofcaring.com 10 Comments

#tbt Making Peace with Mom’s DNR

November 15, 2018

Dear Higher Power, Please help me to take heroic measures to love and care for Mom, to help her continue to live healthy and well – not to prolong the time when she is failing and unwell. Please help me to never give up, and also to let go when the time comes. Please help me to honor Mom while she is alive, and also when she dies. A DNR – natural death – is the right choice – it’s a choice my Mom has made. It’s a choice I agree with. It’s a choice that hurts and relieves. It’s a choice I need to respect. Please help me to find peace with Mom’s DNR. Thy will be done. Amen

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go, Letting go, Listening first, Maintaining balance, Making peace, Practicing faith Alzheimer's Disease, Caregiving, Gratitude, Keep it simple, One day at a time terry@thejoyofcaring.com 4 Comments

Simple Kindness

October 24, 2018

When in doubt

In a world with atrocity, apathy, anxiety, distraction and just plain busy-ness, I was touched by all the simple kindnesses that helped me as I helped Mom. Thanks to those simple, and often unexpected, kindnesses, the pieces of our life in Maine were starting to fall into place.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Learning as we go, Maintaining balance, Making peace, Taking care of self Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, One day at a time, Parenting terry@thejoyofcaring.com 4 Comments

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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