The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Letting Go, for real

November 6, 2022

As Lindy and I volley last looks at Living Is for Living: a Caregiver’s Story, I wrestle the same old same old: what if my words upset someone, what if there’s a glaring mistake, what if I’m oversharing, what if Mom wouldn’t like what I wrote?

“In the full realization of our repetitiveness, the best thing is to stop saying anything for a while, and in that saying nothing, something begins to break down and opens us up.”—David Whyte, September 2022 Series: Crossing the Unknown Sea, Life and Work as a Pilgrimage of Identity, Session 2

Heeding Whyte’s words, I quiet my anxious mind and observe:

  • a dear friend, in reference to caring for her father, texts: “I remember you asking me, ‘how do I know when [Mom] is ready to let go’, and I told you ‘you will know because it will just happen naturally'”;
  • another dear friend, in the midst of caring for her brother, asks about the book and when I share my concerns, offers the warmest of hugs;
  • searching Mom’s things for the key to her safety deposit box, I discover Henry Van Dyke’s I Am Standing Upon the Seashore, describing a sailboat reaching the horizon: “Gone from my sight. That is all“; and
  • I meet my brother Dave for breakfast and, still keyless, we make up fun stories about what we might find inside Mom’s box before he asks me about the book and advises me to let it go.

I do realize, all this writing has been a way I’ve continued to care for Mom, even after her death. This book has given me space to visit and revisit our lifetime together; it has helped me to grieve, process, and heal. It’s reminded me to laugh.

What if this next stage, publishing, is less about setting myself off for new horizons, and more about sending off the lessons I’ve learned? What if letting go is really more about handing over, and in so doing, setting free? What if I choose love, not fear? What if it’s all going to be okay?

As Van Dyke concludes: “Her diminished size is in me—not in her. And, just at the moment when someone says, “There, she is gone,” there are other eyes watching her coming, and other voices ready to take up the glad shout, “Here she comes!”

Accepting help, Gathering Info, Learning as we go, Letting go, Listening first Caregiving, Gratitude, Keep it simple terry@thejoyofcaring.com 2 Comments

Launching Lala, and me

October 16, 2022

Yesterday was three years since Mom died. It’s been a nostalgic month, with Dad and Grammy’s birthdays to start, followed by Mother Nature’s plentiful reminders of Mom’s last stretch—bright sun, pounding surf, brisk winds, and yellow leaves, every where I turn.

To Dad’s “when my number’s up, fill my dinghy up with gin and push me out to sea” came Mom’s “living is for living” which meant a reluctance to push off when there was still fun to be had, as evidenced by the friendships she formed with every caregiver who came through our door.

While Dad died true to form, so did Mom, who moved on, me and the animals at her side, the sun just breaking the horizon, reminiscent of this excerpt from Katherine Tynan Hinkson’s Shades Are Up, a poem Mom had chosen to share at her funeral:

Some morning I shall rise from sleep,

When all the house is still and dark.

I shall steal down and find my ship

By the dim quayside, and embark…

As I work this month with publishing consultant Lindy, finishing the last details of my caregiving story, it’s been hard to finalize, to let go, for fear of making a mistake, choosing the wrong words, misrepresenting, over-stepping. I’m sure the timing is no coincidence.

“There are times when we know we should move but we don’t even know how to push our boat out from the shoreline on which we are marooned…Part of our ability to go is to understand what we’re missing…”—David Whyte, September 2022 Series: Crossing the Unknown Sea, Life and Work as a Pilgrimage of Identity, Session 3.

While I’m not quite sure what I’m missing, I am curious where all this time and energy freed up will land me next. I take heart in another excerpt from Shades are Up:

…The winds shall bear me safe and kind…

With love… to lead me by the hand.

This morning, in the early hours, I recall Kristin Neff’s self-compassion practice which ChiME advisor Katie taught me in the days following Mom’s death:

“1. This is a moment of suffering”—I feel stressed about finalizing Living Is for Living, about being so vulnerable.

“2. Suffering is a part of life”—Other people feel stressed too, on the verge of putting themselves out there in what feel like big ways.

I lay my hands on my heart.

“3. May I be kind to myself”—I love and accept myself unconditionally. I’ve got this.

(Dr. Kristin Neff, Co-Founder of the Center for Mindful Self-Compassion, https://self-compassion.org/exercise-2-self-compassion-break/).

It’s time to shove off. Let’s do this.

Learning as we go, Letting go, Practicing faith, Uncategorized Alzheimer's Disease, Caregiving, Gratitude, Keep it simple terry@thejoyofcaring.com 5 Comments

Laughter in Grief – showing up the best we can and finding hope amidst loss

April 23, 2020

Little did Dad know when he made up Douglas the Rabbit stories for us kids, that someday I’d share them with my kids; little did I know that the stories I wrote down to remember Dad after he died, would someday entertain Mom, when she could no longer get out of bed.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Helping others, Laughing out loud, Learning as we go, Letting go, Looking forward, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, COVID-19, Eldercare, Gratitude, Keep it simple, Life after death, One day at a time terry@thejoyofcaring.com 2 Comments

COVID-19 Staying at Home – finding guidance in parental wisdom during this time of pandemic stress

April 1, 2020

Tamridge, Mom and Dad, circa 1980

There were moments, when nothing seemed as it was and everything seemed newly tenuous. Dad’s “we shall see” and “bottom line” and Mom’s “living is for living” and “aren’t we lucky” reminded me to be patient, to simplify, to let go of fear, and to count our blessings.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Gathering Info, Helping others, Learning as we go, Letting go, Listening first, Maintaining balance, Making peace, Practicing faith, Speaking up, Taking care of self Alzheimer's Disease, Caregiving, Corona Virus 2019, COVID-19, Eldercare, Gratitude, In the Moment, Infection, Keep it simple, Life after death, One day at a time terry@thejoyofcaring.com 14 Comments

Pep to my Step – sharing the emotional toll of caring for a loved one with Alzheimer’s, during and after

January 14, 2020

To ring in 2020, I went through the photos on my phone. Seeing all the good moments that preceded Mom’s last made my heart glad. I resolved to keep it simple – sleep, hydration, nutrition, exercise, writing, gratitude – while my heart adapted to this post-caregiving phase.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Learning as we go, Making peace, Taking care of self Alzheimer's Disease, Caregiver burden, Caregiving, Eldercare, Keep it simple, Life after death terry@thejoyofcaring.com 8 Comments

Remembering to Breathe, ie. taking care of ourselves during the holidays

December 9, 2019

On retreat with the Chaplaincy Institute of Maine, I took a long walk by myself in the woods. I flopped down in the fresh snow. I lay there, looking up at a tall evergreen that reached up to the blue sky (the blue Mom loved). I breathed in and out, deliberately, five times. It felt so good, I decided to go for ten.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Learning as we go, Learning from mistakes, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, Caregiver burden, Eldercare, Gratitude, Grief, Keep it simple, Life after death, Losing a loved one terry@thejoyofcaring.com 4 Comments

Father’s Day in Albuquerque

June 22, 2019

Me and Dad, circa 1974
Me and Dad, circa 1974

That Father’s Day, sixteen years since Dad died, I heard him heckle when I missed foul shots, laugh when I threw elbows, and cheer when I backed someone down. When I worried about missed opportunities, I recalled his “don’t worry about what’s over and done.” And, when I noticed the 85+-year-old men playing on a neighboring court, I imagined Dad and his killer hook shot in their midst. Too bad I didn’t get that gene!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Laughing out loud, Learning from mistakes, Taking care of self Alzheimer's Disease, Caregiving, Gratitude, Health first, Infinity, Keep it simple, Life after death, Losing a loved one, Marriage, Millennials, One day at a time, Parenting terry@thejoyofcaring.com 8 Comments

RIP little bunny – processing grief in Alzheimer’s and elsewhere, and finding meaning to help us through

May 4, 2019

When I discovered our eleven-year-old bunny rabbit sprawled out in her cage, I was hit with disbelief. Even when death is expected, peaceful, and quick, it can be hard to accept. I’m grateful for my spouse and neighbor Mandy who helped me through.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Laughing out loud, Learning as we go, Letting go, Maintaining balance, Making peace, Practicing faith, Taking care of self Alzheimer's Disease, Caregiving, Friendship, Gratitude, In the Moment, Keep it simple, Life after death, Losing a loved one, Marriage, One day at a time terry@thejoyofcaring.com 6 Comments

High Fives All Around – We’ve Got This

April 12, 2019

In support of a member facing a cancer diagnosis, her team had handed out bracelets with the words No One FIGHTS Alone! Running errands and thinking of this fierce, kind and resilient athlete, I pulled into Dunkin Donuts for an afternoon pick-up. When the guy in front of me bought my cup of coffee, it was the high five I needed, reminding me to reach out to others too.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Having fun, Helping others, Learning as we go, Maintaining balance, Practicing faith, Taking care of self Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, One day at a time, Parenting, Step 12 terry@thejoyofcaring.com 6 Comments

“Excuse Me”- Saving Face and Alzheimer’s disease

December 1, 2018

Helping caregiver Jess shop for her wedding dress

I don’t believe Mom saw Alzheimer’s coming; I do believe, though, that it would have eased her mind to know that she continued to make new friends, bringing joy, humor and grace, and inspiring the rest of us to do the same.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Letting go, Making peace Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage terry@thejoyofcaring.com 10 Comments

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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