The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Fingers Crossed, all packed up and ready to go

October 9, 2017

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Getting Mom back to Maine among family and friends, the ocean near, was my own bucket list odyssey.  My counselor said, “Some dreams do come true.” I hoped she was right.

—excerpt from Living Is for Living: A Caregiver’s Story

 

Practicing faith #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Gratitude, Marriage, One day at a time terry@thejoyofcaring.com 4 Comments

Step Ten, “Progress Not Perfection”

October 5, 2017

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AA’s Step Ten: “Continued to take personal inventory and when we were wrong promptly admitted it.” These days, with how Mom’s Alzheimer’s anchors her in the moment, I’m grateful for how this slogan and Step Ten help me stay right here with her. (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Alzheimer's Disease, Caregiving, Friendship, Gratitude, Health first, Keep it simple, Marriage, One day at a time, Parenting, Progress not Perfection, Step 10, The Twelve Steps of AA terry@thejoyofcaring.com Leave a Comment

Nine Squares

September 21, 2017

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Whole Life Grid a la Susan Jeffers, PhD, Feel the Fear and Do It Anyway

According to the sign out front of a local church, “THERE IS A TIME FOR EVERYTHING.  BE SURE TO MAKE TIME FOR GOD.” My middle square – “Spirituality and Faith” was a great place to start!

—excerpt from Living Is for Living: A Caregiver’s Story

Finding time, Taking care of self #ENDALZ, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Health first, In the Moment, Marriage, Parenting, Pets, Step 9 terry@thejoyofcaring.com Leave a Comment

Moving Mom (again)

September 19, 2017

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Mom loved the fact this guy never stopped smiling, even in strong winds!

Of the many difficult decisions we’d made in caring for Mom, one of the most challenging was moving her away from her home in Maine. The time had come to move her back. Fingers crossed her health would remain stable until we got her there.

—excerpt from Living Is for Living: A Caregiver’s Story

Looking forward Alzheimer's Disease, Caregiving, Friendship, Gratitude, Life after death, Marriage, Millennials, Parenting, Step 9 terry@thejoyofcaring.com 2 Comments

“Lady Girl” – aka when Mom forgets who I am

September 13, 2017

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Mom had referred to me as her sister and her friend. Then, as Tramadol messed with her mind, she asked me if I’d be her secretary and later, my personal favorite, her “Lady Girl.” I was just glad she still knew I was on her side.

—excerpt from Living Is for Living: A Caregiver’s Story

Letting go Alzheimer's Disease, Caregiving, Friendship, Gratitude, Losing a loved one, Marriage, One day at a time, Step 9 terry@thejoyofcaring.com 17 Comments

Empty Nest Plus One

September 12, 2017

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Mom and Doug, a couple summers back

Sunday morning, two days after we stopped the Tramadol, as she tried to make sense of the prior couple of days, Mom asked, “Who’s going to keep me from going crazy?” I was glad I could answer, “I will do my best, Mom, and Doug will help too.”

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Alzheimer's Disease, Back Pain, Caregiving, Diverticulitis, Gratitude, Keep it simple, Marriage, Millennials, Pain relief, Parenting, Step 9, Tramadol Side Effects terry@thejoyofcaring.com 4 Comments

No Need to Yell

September 7, 2017

Speak quietly with confidence, no need to yell.

Speak quietly with confidence, ‘til then listen well.

Don’t speak out of turn, when it’s not mine to learn.

Let them hold their own, now that they’re grown.

Forgive myself, I meant no harm.

Living learning, here on the farm.

(February 13, 2015)

—from Living Is for Living: A Caregiver’s Story

Listening first, Speaking up #ENDALZ, Gratitude, Marriage, Parenting, Pets, Step 9 terry@thejoyofcaring.com Leave a Comment

Standing by Me

August 1, 2017

standbyme photo
July 30, 1988

When we danced as newlyweds to “Stand by Me,” I didn’t know exactly what that would mean, only that we’d have ups and downs and I hoped he’d be at my side through both. The words comforted me now as they had then, and I was ever grateful.

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance #ENDALZ, Alzheimer's Disease, Caregiving, Gratitude, Marriage terry@thejoyofcaring.com 4 Comments

Triple Salchow – enough is enough

July 16, 2017

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As my spouse put it when I fretted: “getting your Mom two weeks in Maine is like completing a triple salchow – that’s something to feel good about.”

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance #ENDALZ, Alzheimer's Disease, Caregiving, Gratitude, Marriage, Unearned Guilt terry@thejoyofcaring.com 6 Comments

Step Seven Humility

July 13, 2017

AA’s Step Seven: “Humbly asked our Higher Power to remove our shortcomings.” Faith in a Higher Power…It’s what helped me, Mom still in Maine for a bit longer, in another’s care. #thankGodforHannah! (Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Alzheimer's Disease, Caregiving, Friendship, Health first, Marriage, Parenting, Step 7, The Twelve Steps of AA terry@thejoyofcaring.com 2 Comments

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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