The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Father’s Day in Albuquerque

June 22, 2019

Me and Dad, circa 1974
Me and Dad, circa 1974

That Father’s Day, sixteen years since Dad died, I heard him heckle when I missed foul shots, laugh when I threw elbows, and cheer when I backed someone down. When I worried about missed opportunities, I recalled his “don’t worry about what’s over and done.” And, when I noticed the 85+-year-old men playing on a neighboring court, I imagined Dad and his killer hook shot in their midst. Too bad I didn’t get that gene!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Laughing out loud, Learning from mistakes, Taking care of self Alzheimer's Disease, Caregiving, Gratitude, Health first, Infinity, Keep it simple, Life after death, Losing a loved one, Marriage, Millennials, One day at a time, Parenting terry@thejoyofcaring.com 8 Comments

Sandwiched – caring for Mom, while caring for kids

February 18, 2018

2004                             2018

There’s plenty of literature out there about the challenge of being part of the “Sandwich Generation.” I too have sleepless nights worrying about Mom, as well as the kids. At the same time, I gotta admit, it’s pretty cool.

—excerpt from Living Is for Living: A Caregiver’s Story

Maintaining balance #ENDALZ, Alzheimer's Disease, Caregiving, Generation X, Gratitude, Health first, In the Moment, Keep it simple, Millennials, One day at a time, Parenting terry@thejoyofcaring.com 2 Comments

The Gift of Parenting from the Empty Nest Plus One

December 18, 2017

Why bother having kids if friendship isn’t the ultimate goal? That doesn’t mean abdicating parental responsibilities, it means building honest communication, when our kids are little and when they’re big. It’s not always easy; still, it seems to me, it’s the whole point.

—excerpt from Living Is for Living: A Caregiver’s Story

Having fun #ENDALZ, Caregiving, Friendship, Frienship, Gratitude, Millennials, One day at a time, Parenting terry@thejoyofcaring.com Leave a Comment

“Hot Tamale” and the Blessing of Awesome Caregivers

November 14, 2017

I met Hannah when I coached her on a fast-pitch softball team. I never anticipated that it would be Hannah, ten years later, who’d help us care for Mom. No surprise, Hannah was a great teammate!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Practicing faith #ENDALZ, Alzheimer's Disease, Caregiver burden, Caregiving, Eldercare, Friendship, Gratitude, Health first, Millennials, Step 11 terry@thejoyofcaring.com Leave a Comment

Finding a Samantha in Maine, during Hospitalization #3 (this one for a DVT)

October 19, 2017

Finding me awake and in tears, the nighttime nurse replied, “Your mom is 85. She has a complicated health history, with Alzheimer’s, diverticulitis, kidney disease, infection, limited activity level and  dehydration. This clot is so big, it didn’t just happen in travel; this condition’s been developing for a while. This is not on you.” Thanks to her, I went from feeling alone to feeling the love.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help #ENDALZ, Alzheimer's Disease, Caregiver burden, Caregiving, Deep Vein Thrombosis, Eldercare, Friendship, Gratitude, Health first, Millennials terry@thejoyofcaring.com 8 Comments

Healing as We Go – UTIs and Mohs Nose, Mom and Me

October 12, 2017

FullSizeRender-1

As my spouse and I drove 1400 miles to Maine where we’d set up shop for Mom and Cinnamon to join us, I tried to be brave, to count my lucky stars, to practice my faith. Fingers crossed, in prayer and gratitude.

—excerpt from Living Is for Living: A Caregiver’s Story

Making peace, Practicing faith #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiving, Eldercare, Keep it simple, Losing a loved one, Marriage, Millennials, Mohs procedure, Parenting, UTI, Working outside the home terry@thejoyofcaring.com Leave a Comment

“Retiring” the Car Keys, i.e. Driving Lala

September 29, 2017

IMG_8891
Mom’s 85th birthday, photo cred to our caregiver Hannah

When I reminded her that her license had expired and reassured her that I’d be happy to drive her anywhere she wanted to go, Mom nodded and smiled. What a relief that the driving question was behind us.

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Alzheimer's Disease, Dementia and Driving, Eldercare, Millennials terry@thejoyofcaring.com Leave a Comment

Celebrating G

September 26, 2017

How could we be so blessed a third time around? He’s so many things…among them a constant reminder that this is not a limited supply of love and beauty we are dealing with, it’s an endless one.

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Gratitude, Millennials, One day at a time, Parenting, Pets terry@thejoyofcaring.com 2 Comments

Moving Mom (again)

September 19, 2017

FullSizeRender
Mom loved the fact this guy never stopped smiling, even in strong winds!

Of the many difficult decisions we’d made in caring for Mom, one of the most challenging was moving her away from her home in Maine. The time had come to move her back. Fingers crossed her health would remain stable until we got her there.

—excerpt from Living Is for Living: A Caregiver’s Story

Looking forward Alzheimer's Disease, Caregiving, Friendship, Gratitude, Life after death, Marriage, Millennials, Parenting, Step 9 terry@thejoyofcaring.com 2 Comments

Empty Nest Plus One

September 12, 2017

Screen Shot 2017-09-08 at 12.29.12 PM
Mom and Doug, a couple summers back

Sunday morning, two days after we stopped the Tramadol, as she tried to make sense of the prior couple of days, Mom asked, “Who’s going to keep me from going crazy?” I was glad I could answer, “I will do my best, Mom, and Doug will help too.”

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go #ENDALZ, Alzheimer's Disease, Back Pain, Caregiving, Diverticulitis, Gratitude, Keep it simple, Marriage, Millennials, Pain relief, Parenting, Step 9, Tramadol Side Effects terry@thejoyofcaring.com 4 Comments

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I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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