The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Grief and Guilt, a year later, and the Magic of Fruit Loops, Pivoting, Barking Dogs, Yellow Leaves and Blue Jays

October 12, 2020

As we returned home from an afternoon hike, Siena spotted another Blue Jay, this one perched in a tree at the top of our street. We looked at each other and smiled, understanding that Mom is still right here, with us. We just need to be available to the moment, the best we can.

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Having fun, Helping others, Laughing out loud, Learning as we go, Learning from mistakes, Letting go, Maintaining balance, Making peace, Taking care of self #ENDALZ, Alzheimer's Disease, Canine Caregiver, Caregiver burden, Eldercare, Gratitude, Grief, Hospice Care, Life after death, Pet Therapy, Pivoting, Progress not Perfection terry@thejoyofcaring.com 4 Comments

Never too old to play basketball

July 7, 2019

It was an honor to be one of 130 Maine athletes to attend the National Senior Games where I played on Team Phoenix. Watching women, ages 50-90, play basketball, not only inspired me, it gave me hope –  I wanted to be kicking ass when I’m in my eighties and beyond too!

—excerpt from Living Is for Living: A Caregiver’s Story

Finding time, Having fun, Learning as we go, Letting go, Maintaining balance, Practicing faith, Taking care of self #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Eldercare, Fun, Gratitude, Health first, Pivoting terry@thejoyofcaring.com 6 Comments

What Next? (dropping our youngest off at college)

August 28, 2017

Earnest 18-year-old you with me in your heart, asks me straight up “What next?”

You don’t want me to miss out on my life making sure that she doesn’t miss out on hers.

“I’m not sure,” I admit – I tell you the truth, cuz I value your two cents, and you’d see through anything else.

“I’m taking it a day at a time, trying to draw out this phase, trusting I’ll know when it’s time for a change.

Seriously, how lucky am I, that in the midst of your world, you see me sitting here, and give me just what I need.

Although I’m still not sure what is next, I promise to take care of me the best I can, in the mix.

All I ask is you do the same…What’s next for you?

Great things, I have no doubt – and I will cheer your every step.

—excerpt from Living Is for Living: A Caregiver’s Story

Taking care of self #ENDALZ, Alzheimer's Disease, Caregiving, Dementia, Eldercare, Empty Nest, Gratitude, In the Moment, Millennials, One day at a time, Parenting, Pivoting terry@thejoyofcaring.com Leave a Comment

My Sisters (in-law)

June 13, 2017

My sisters (in-law) may not have been part of my start, still, I was grateful they were part of my present.  Although we were from different gardens, I loved our awesome bouquet!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help Alzheimer's Disease, Caregiver burden, Eldercare, Friendship, Fun, Gratitude, Marriage, Pivoting, Reframing terry@thejoyofcaring.com Leave a Comment

The Manipulation/Essence of Caring

April 29, 2017

“…All I can say is if one day you start to lose your memory I promise to manipulate you to get you the best care and living situation possible even if you can’t understand why…” texted our college-age son when I expressed my concern about over-stepping in Mom’s care. Wow.

—excerpt from Living Is for Living: A Caregiver’s Story

Letting go Alzheimer's Disease, Caregiving, Dementia, Eldercare, Health concerns, Hospitalization, Parenting, Pivoting, Reframing, Retiring the car keys terry@thejoyofcaring.com Leave a Comment

Vacation Defined (the dictionaries and me)

April 20, 2017

Vacation (noun)(vā-kā′shən, və-) “A period of time devoted to pleasure, rest, or relaxation”(thefreedictionary.com) … the sun on the horizon, the wind in the palms, the waves on the beach, my family in their beds asleep, and Mom at home safe and sound …

“… a period spent away from home or business in travel or recreation …”(merriam-webster.com)… exploring new places, reading a book just for fun, closing my eyes – sun on my hat, sand under my feet, enjoying new foods prepared by another, talking and laughing, together, apart …

“… the time during which a person temporarily ceases regular duties of any kind and performs other activities … typically used for rest, travel, or recreation, but may be used for any purpose …” (webster-dictionary.org)… I step away, I unravel, I rejuvenate, I rediscover, and I look forward to returning home to Mom.

—from Living Is for Living: A Caregiver’s Story

Maintaining balance, Taking care of self Acting as if, Alzheimer's Disease, Caregiving, Dementia, Eldercare, Gratitude, In the Moment, Marriage, One day at a time, Parenting, Pivoting, Step 3, Time terry@thejoyofcaring.com 6 Comments

Thought Bubble Reset

April 17, 2017

Dad and Me, circa 1976

Fifteen hundred miles from home and I was still worried about Mom. The wild weather at sea turned out to be exactly what I needed—like Dad was taking care of me from above, dumping water on my head, changing things up, and reminding me to accept when I’m not in control, to ride it out, and to let myself have some spontaneous fun.

—excerpt from Living Is for Living: A Caregiver’s Story

Having fun Alzheimer's Disease, Caregiving, Eldercare, Gratitude, Life after death, Marriage, Parenting, Pivoting terry@thejoyofcaring.com 2 Comments

Making Time for the One I Chose First

March 30, 2017

July 30, 1988

Time with my spouse, when he had my full attention, was rare. It was time to make an effort to find time together in our life with Mom in our home.

—excerpt from Living Is for Living: A Caregiver’s Story

Finding time Marriage, Pivoting, Reframing, Time terry@thejoyofcaring.com 2 Comments

Our Game

March 17, 2017

Mom and her mom, Gum, who showed her the way

“I like to help out where I can… to play Terry’s game,” said Mom when the doctor asked her what she liked to do. Here I thought I was helping her with her life, when what she wanted was to help me with mine. Sounded good to me!

—excerpt from Living Is for Living: A Caregiver’s Story

Listening first Caregiving, Parenting, Pivoting, Reframing terry@thejoyofcaring.com Leave a Comment

I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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