The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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Book Lay Out: “and” not “or”

September 28, 2022

This last bit, the back and forth with Lindy as she carefully lays out Living Is for Living, word by word, reminds me of childbirth: it requires willingness, focus, patience and humility, in the midst of discomfort and anticipation. There’s the familiar cognitive back and forth: do I hold on or do I let go or am I kidding myself to think I have any control over what happens next, once this book is published.

So what do I do? I nest: I sort trinkets, rehang pictures, rearrange books. I even gladly pause to take my many morning herbs (intended to tame Lyme and other things). And, big surprise, I write : )

Then I remember the notion of AND that I learned in my interfaith chaplaincy studies. What if I swap and for or: I hold on and I let go and I kid myself. This balance of good intention and good humor do seem to come in handy at this moment of delivery.

I’m grateful

that the animals

are right here at my side

and that Lindy is

one heck of a writing midwife,

respecting my perspective and pace,

while attending to every single detail.

We’ll get there—I just gotta trust, breathe, do what I can, and let the process unfold. Speaking of which, back to checking the latest version!

Accepting help, Laughing out loud, Learning as we go, Letting go, Maintaining balance, Practicing faith, Speaking up Gratitude, Reframing terry@thejoyofcaring.com 2 Comments

Paradiso Found, aka reversing the jinx : )

December 11, 2017

In response to the carpenter’s “this place is jinxed,” I chose Paradiso blue for the upstairs floor. Thank God for humor, animals, friendship and faith for keeping me on track; those, and Mom, who was not one bit superstitious and who knew paradise when she saw it, even with one eye.

—excerpt from Living Is for Living: A Caregiver’s Story

Laughing out loud, Practicing faith #ENDALZ, #gotitfrommymama, Acting as if, Alzheimer's Disease, Caregiving, Friendship, Gratitude, Keep it simple, Marriage, One day at a time, Pets, Reframing, Step 12 terry@thejoyofcaring.com 2 Comments

My Sisters (in-law)

June 13, 2017

My sisters (in-law) may not have been part of my start, still, I was grateful they were part of my present.  Although we were from different gardens, I loved our awesome bouquet!

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help Alzheimer's Disease, Caregiver burden, Eldercare, Friendship, Fun, Gratitude, Marriage, Pivoting, Reframing terry@thejoyofcaring.com Leave a Comment

“Living is for Living” – Mom’s Three Things

May 30, 2017

IMG_9448

In the many conversations we’d had regarding whether Mom wanted a DNR, this was her bottom line: “There’s no point to living if you’re not really living.” So, as I made our daily plans, in addition to the items Mom’s care required, I added time to enjoy a “calm and prolonged breakfast,” nature, and companionship.

—excerpt from Living Is for Living: A Caregiver’s Story

Gathering Info, Learning as we go, Maintaining balance Alzheimer's Disease, Caregiving, Dementia, Eldercare, Fun, Health first, In the Moment, Reframing terry@thejoyofcaring.com 6 Comments

The Manipulation/Essence of Caring

April 29, 2017

“…All I can say is if one day you start to lose your memory I promise to manipulate you to get you the best care and living situation possible even if you can’t understand why…” texted our college-age son when I expressed my concern about over-stepping in Mom’s care. Wow.

—excerpt from Living Is for Living: A Caregiver’s Story

Letting go Alzheimer's Disease, Caregiving, Dementia, Eldercare, Health concerns, Hospitalization, Parenting, Pivoting, Reframing, Retiring the car keys terry@thejoyofcaring.com Leave a Comment

Making Time for the One I Chose First

March 30, 2017

July 30, 1988

Time with my spouse, when he had my full attention, was rare. It was time to make an effort to find time together in our life with Mom in our home.

—excerpt from Living Is for Living: A Caregiver’s Story

Finding time Marriage, Pivoting, Reframing, Time terry@thejoyofcaring.com 2 Comments

Our Game

March 17, 2017

Mom and her mom, Gum, who showed her the way

“I like to help out where I can… to play Terry’s game,” said Mom when the doctor asked her what she liked to do. Here I thought I was helping her with her life, when what she wanted was to help me with mine. Sounded good to me!

—excerpt from Living Is for Living: A Caregiver’s Story

Listening first Caregiving, Parenting, Pivoting, Reframing terry@thejoyofcaring.com Leave a Comment

I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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