The Joy of Caring

Reflections of a Daughter of the Silent Generation and Mother of Generation Y

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On the Edge, aka re-finding balance in caring for a loved one with Alzheimer’s disease

August 29, 2019

Stepping away gave me time to feel Alzheimer’s vastness – like standing beside the Grand Canyon, exhausted, I felt overwhelmed, like I could fall right in. The following summer, during valuable caregiving hours, my spouse and I visited local memory and nursing care facilities. Our options better understood, I could get back to taking it a day at a time and feeling grateful for the moments we still had with Mom in our home. 

—excerpt from Living Is for Living: A Caregiver’s Story

Accepting help, Finding time, Gathering Info, Learning as we go, Learning from mistakes, Letting go, Looking forward, Maintaining balance, Making peace, Practicing faith, Taking care of self A day at a time, Caregiver burden, Eldercare, Gratitude, Parenting, Step 3 terry@thejoyofcaring.com 10 Comments

A Tree in a Forest and a Health Care POA Prayer

October 28, 2017

From my diary two years before, as I stepped into the shoes of health care agent:

Please help me to care for Mom,

to stay in the moment with her while getting her the health care she needs,

to keep her safe while supporting her independence,

to collaborate with the boys and all the rest,

to meet her needs as well as those of the others in my life, and

to stay right here, right now, while figuring out what’s next.

Thank you for helping us to help her.

Amen

—excerpt from Living Is for Living: A Caregiver’s Story

Learning as we go, Practicing faith #ENDALZ, #gotitfrommymama, Alzheimer's Disease, Caregiver burden, Caregiving, Deep Vein Thrombosis, Diverticulitis, Gratitude, Health first, Intestinal Bleed, Power of Attorney, Prayer, Step 3 terry@thejoyofcaring.com 4 Comments

Vacation Defined (the dictionaries and me)

April 20, 2017

Vacation (noun)(vā-kā′shən, və-) “A period of time devoted to pleasure, rest, or relaxation”(thefreedictionary.com) … the sun on the horizon, the wind in the palms, the waves on the beach, my family in their beds asleep, and Mom at home safe and sound …

“… a period spent away from home or business in travel or recreation …”(merriam-webster.com)… exploring new places, reading a book just for fun, closing my eyes – sun on my hat, sand under my feet, enjoying new foods prepared by another, talking and laughing, together, apart …

“… the time during which a person temporarily ceases regular duties of any kind and performs other activities … typically used for rest, travel, or recreation, but may be used for any purpose …” (webster-dictionary.org)… I step away, I unravel, I rejuvenate, I rediscover, and I look forward to returning home to Mom.

—from Living Is for Living: A Caregiver’s Story

Maintaining balance, Taking care of self Acting as if, Alzheimer's Disease, Caregiving, Dementia, Eldercare, Gratitude, In the Moment, Marriage, One day at a time, Parenting, Pivoting, Step 3, Time terry@thejoyofcaring.com 6 Comments

Step Three, Mid-Air Challenge

March 27, 2017

AA’s Step Three:  “Made a decision to turn our will and our lives over to the care of our Higher Power.” Like the kids when they were young, Mom trusted me so completely it was sobering; it helped to know I wasn’t alone. (See, Al-Anon’s Twelve Steps & Twelve Traditions)

—excerpt from Living Is for Living: A Caregiver’s Story

Letting go, Practicing faith Dementia, Eldercare, Parenting, Step 3, The Twelve Steps of AA terry@thejoyofcaring.com 2 Comments

The Bottom Line

March 24, 2017

Dad and Me
July 30, 1988

What’s the Bottom Line? My Dad’s catchphrase, the one he came back to, used to bug me. I fought its simplicity, was irritated by his repetitiveness, preferred the complications.

The Bottom line:

My Dad died almost ten years ago.

He was uncomfortable with difficult emotions.

He worked right up to the end.

He drank too much.

He was imperfect.

The Bottom Line:

My Dad was funny.

He was insightful.

He was devoted to my Mom, his clients, and his family.

He is still with me.

He was and is my Dad.

(Written in 2012)

The Bottom Line:

I love you Dad.

I miss you Dad.

I carry you with me every day.

I know you trust me to take care of Mom.

I will do my best to protect her happiness, health and independence without sacrificing my own.

(Added in 2017)

—excerpt from Living Is for Living: A Caregiver’s Story

Practicing faith Eldercare, Life after death, Step 3 terry@thejoyofcaring.com Leave a Comment

I am Acadia Manset's granddaughter. Raised in Maine, graduated from Dartmouth College and Harvard Law, I have spent the last 24 years parenting. With our adult kids in the process of leaving the nest, my mom has moved in, leading to precious time and daily opportunities I never anticipated. I hope that this site will inspire insight and growth, humor and fun, questions and answers, for you and for me.

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Raised in Maine, I had spent the prior 24 years parenting, mostly in Wisconsin. With our adult kids in the process of leaving the nest, my mom moved in, from Maine, leading to precious time and daily opportunities I had never anticipated. I launched this site in 2017 as a way to share that experience, hoping to pass along what I was learning about Alzheimer's disease, to process the challenging parts, and to have some fun too. I never anticipated the way the community of readers would fuel me in staying the course. Today, I am deeply grateful for that, and so much more.

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